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[The problem of Bechterew's disease from the viewpoint of social security].

Ankylosing spondylitis has a medically well defined clinical picture. It was investigated how often the social security has to deal with it with regards to pension and treatment. The investigations were based on the statistics of the "Verband Deutcher Rentenversicherungen" and 2 groups of the "Landerversicherungsanstalt Rheinprovinz", and the number of individuals who in 1969/70 received a pension because of this disease (n = 157) or received a treatment payed by the social security. The pensioners were observed over a period of 7 years. 21.7% had died and 27.4% were receiving a pension because of disability. Most of the insured persons who had died had not had treatment. From the insured persons who had had treatment 7 years earlier (n = 971) 3% had died and only 16% had applied for a pension, almost always with success. It is pointed out that in case of medical diagnosis the discrepancy between objective finding and the patients' willingness to work must be considered together. There are considerable doubts with regards to drawing any epidemiological conclusions from these results.

Adult↗
PubMed1981

[The disabled--object or partner of rehabilitation? (author's transl)].

The experience made in the field of rehabilitation in the post-WW II period have not only led to the enactment of Parliamentary legislation. The personal experiences of rehabilitation workers has often entailed their having gradually formed guiding principles that are being strongly insisted upon in all their dealings with their disabled clients. Rejection of these guidelines may lead to the disabled being regarded as unfit or unwilling, and even more so if he tries to develop personal views on his part in rehabilitation. There is thus a great risk of rehabilitation becoming an end in itself for those who are pursuing it. The disabled for their part should not only underline their rights but accept the responsibilities as well. The risk of stiffening oppositions on all fronts is best countered by those involved talking with each other on a partnership footing. Partnership is however also needed among those who have to co-operate in the various field involved in rehabilitation.

Persons with Disabilities↗
PubMed1995

Attitudes toward genetic testing among the general population and relatives of patients with a severe genetic disease: a survey from Finland.

In the present study we explore the attitudes of the Finnish population toward genetic testing by conducting a questionnaire study of a stratified sample of the population as well as of family members of patients with a severe hereditary disease, aspartylglucosaminuria (AGU). The questionnaire evaluated attitudes toward gene tests in general and also respondents' preparedness to undergo gene tests for predictive testing, carrier detection, prenatal diagnosis, and selective abortion, in theoretical situations. The results of the study indicate that both the Finnish population in general and family members of AGU patients have a favorable attitude toward genetic testing. However, a commonly expressed reason against testing was that test results might lead to discrimination in employment or insurance policies. Based on the responses, we predict that future genetic testing programs will most probably be met with a high acceptance rate by the Finnish population.

Adolescent↗