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PubMedDate not supplied

Out of sight, out of mind: the impact of 9/11 on HIV-positive persons.

Providing care and support for persons living with HIV (PLWHIV) is an enormous challenge for providers throughout the world. At the same time, the cost of care both financially and emotionally continues to be quite expensive. Signs of caregiver burnout and public apathy were already taking a toll on providers, PLWHIV, and their families when the 9/11 tragedy occurred. The impact of the tragedy has significantly affected PLWHIV, providers, and families day-to-day lives in many ways. This study reveals the initial impact during the first few months after the 9/11 event.

Adaptation, Psychological↗
PubMed2006

Family strategies for supporting involvement in meaningful activity by persons with dementia.

Involvement in meaningful activity may be helpful for those with dementia, although it is a poorly understood phenomenon among those living in the community with family members. An interpretive phenomenological study was conducted with eight families to determine how family members support involvement in activity of persons with dementia and what it means to families. Repeated individual interviews were conducted with the person with dementia and a family member; they were asked to tell stories about their usual activities, to consider the impact of the dementia on everyday life and what they did to cope with difficulties. They were also observed taking part in everyday activities. Analysis revealed three strategies used by families to support activity: (a) reducing demands, (b) guiding, and (c) accompanying. These strategies allowed families to sustain meaning for both the person with dementia and the family itself. Significance for practice and ideas for future research are discussed.

Activities of Daily Living↗
PubMed2006

The impact of a family systems nursing educational program on the practice of psychiatric nurses: a pilot study.

A pilot study was conducted to examine the impact of a Family Systems Nursing educational program on the practice of psychiatric nurses and to explore the nurses' perceptions of the educational program. One year after the program, six nurses were asked to complete logbooks and to participate in an individual semistructured interview based on open-ended questions and on the critical incident approach to describe their family nursing interventions and to explore their perceptions on how the educational program influenced their practice of family nursing care. Content analyses indicated that participant nurses integrated systemic family interventions in their practice and were satisfied with the program.

Adaptation, Psychological↗
PubMed2007

Collegiate sororities and dating violence: an exploratory study of informal and formal helping strategies.

Women in collegiate sororities are more at risk for violence within the context of dating relationships than is the general population of college women. Because assaulted women are more likely to turn to their peer networks for support, this study explores the formal and informal helping strategies available to sorority members within the context of their sororities. A total of 35 women representing 17 different sororities participated in 4 focus groups. Although the central finding uncovered how violence is largely omitted from the formal agendas of sororities, community and campus-based programs addressing the issue can build on their sincere interest in helping each other.

Adult↗
PubMed2006

Are peer support groups for adolescents with Asperger's syndrome helpful?

There is very little documentation dealing with peer support groups for people with Asperger's syndrome, and especially about groups for adolescents. This article gives a description of three such groups that were run in parallel with support groups for parents. The great majority of the participants completed the course of the group. In a consumer satisfaction survey, the majority of the participants (76.5%) and nearly all of their parents (95%) rated satisfaction with the group meetings as good or very good. These responses indicate that adolescents with Asperger's syndrome and their parents perceive peer support groups as helpful.

Adolescent↗
PubMed2006

Mechanisms of action in the process of change: helping eating disorder clients make meaningful shifts in their lives.

This article describes a model for change that draws upon motivational and cognitive-behavioural theories. It is suggested that maladaptive beliefs hold individuals captive in destructive self-perpetuating cycles dominated by the illness. In the context of a trusting therapeutic relationship, inquiry and experimentation can lead to the reformulation of maladaptive beliefs, and to the development, reprioritization and/or strengthening of higher values. A clear cohesive system of higher values allows individuals to make autonomous life decisions, which reduces the need for maladaptive coping strategies.

Adaptation, Psychological↗
PubMed2000

Ways of working: CCNs and chronic illness.

The study explored the role/skills used by CCNs caring for children with chronic illness. A participant inquiry paradigm was used and data were generated using semi-structured interviews supported by extensive field notes. All the CCNs described the special relationship with the children and their families which was characterised by deep understanding of current and future needs. The CCNs emphasised 'ways of working' which involved high degrees of trust, flexibility, support, reflexivity and empowerment. CCNs help families regain, maintain and develop control over their lives.

Adult↗
PubMed2005

The experience of being ill as narrated by hospitalized children aged 7-10 years with short-term illness.

Children's illness has been investigated through the eyes of parents and nurses but the child's own perspective has been largely ignored. The aim of this study is to illuminate the 7-10-year-olds' experiences of being ill. Three girls and four boys were interviewed and narrated their experience about short-term illness. The data obtained was subjected to a thematic qualitative content analysis. The analysis suggests that the children combined reality and imagination and contrasts seemed to coexist such as being scared/confident, sad/cosy and hurt/having fun. They felt caught and tried to escape. The experience of illness as narrated by children can lead to a richer understanding and influence the way we care for paediatric patients.

Acute Disease↗
PubMed2005

Pain experiences and non-pharmacological strategies for pain management after tonsillectomy: a qualitative interview study of children and parents.

Tonsillectomy is one of the most common paediatric surgical procedures. This study aimed to investigate children's experience of pain and the nonpharmacological strategies that they used to manage pain after tonsillectomy. A further aim was to investigate parental views on these same phenomena. Six children (aged seven to 18 years) and their parents (four mothers and two fathers) were interviewed separately on the day after tonsillectomy. The data were analysed using a qualitative approach. Pain experiences were divided into the categories of physiological pain and psychological pain. Children rated their 'worst pain' during the past 24 hours between 6 and 10 (visual analogue scale, 0-10). The non-pharmacological strategies used most frequently to manage pain were thermal regulation (physical method) and distraction (cognitive-behavioural method) according to the framework used. Specific non-pharmacological strategies for pain management relative to different surgical procedures need to be considered.

Adolescent↗
PubMed1999

Helping children cope: chronic renal failure.

Chronic renal failure places many restrictions on children. Children's nurses need to assist the child with chronic renal failure in achieving as normal a life as possible. Purssell's model of normalisation provides a useful framework to identify strategies to help children cope. The need for further research in this area is established.

Activities of Daily Living↗
PubMed2005

Consulting the "experts": a pilot study on perceptions of professional support among lung transplant recipients and accompanying relatives.

BACKGROUND: Lung transplantation is extremely stressful for patients and accompanying support persons. PURPOSE: To improve delivery of care, we designed a cross-sectional study about unmet needs and perceived helpfulness of staff. METHODS: The sample consisted of 30 adult lung transplant recipients with cystic fibrosis (and 22 relatives) and 20 age-matched recipients with other reasons for transplantation (and 17 relatives). Mean survival since transplantation was 5 years. Data were collected via questionnaires (numerical rating scales and fill-in-the-blank items). RESULTS: Most patients in both groups were satisfied with staff support (nurse, doctor) especially during the acute stage of illness. Relatives were less satisfied at all stages. Patients' satisfaction with doctors' support was higher after than before transplantation, but the opposite was true for relatives. Insufficient continuity of care was the most frequent critical comment from patients and support persons. Recommendations to improve delivery of care included providing access to psychosocial professionals and broadening the information provided before transplantation. CONCLUSIONS: Regular screening of customer satisfaction should become routine. Particular attention should be paid to support persons.

Adult↗
PubMed2006

Living donation decision making: recipients' concerns and educational needs.

CONTEXT: Despite the advantages of living donor transplantation, evidence suggests that some potential recipients with living donors have psychological concerns that prevent them from pursuing living donation. Addressing these concerns through education may increase the rates of living donation. OBJECTIVE: To understand the psychological barriers and educational needs of potential kidney recipients regarding living donation. SUBJECTS AND DESIGN: Qualitative focus group study of kidney transplant recipients, donors, and family members to explore their assessment of the advantages of dialysis and deceased donor transplantation over living donation, their concerns about living donation, and what types of living donation education would be most helpful. RESULTS: Kidney recipients reported that they might not pursue living donation because they felt guilty and indebted to the donor, did not want to harm or inconvenience the donor, did not want to accept a kidney that a family member might need later, and did not want to disappoint the donor if the kidney failed. Recipients were generally unaware that donors could personally benefit from donating and would rather wait for donor volunteers than ask anyone directly. Both donors and recipients thought that training on how to make the donation request and education about living donors' motivations for donation and transplant experience could help more renal patients pursue living donation.

Adaptation, Psychological↗