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Understanding and responding to patients' requests for assistance in dying.

PURPOSE: To explore how nurses experience and respond to patients' requests for assistance in dying (AID). DESIGN AND METHODS: A phenomenological study of 10 self-selected nurses. FINDINGS: Four major themes: Being Open to Hear and Hearing; Interpreting and Responding to the Meaning; Responding to Persistent Requests for AID, and Reflections. When faced with persistent requests for AID, participants provided a continuum of interventions: refusal, providing palliative care that might secondarily hasten dying, respecting and not interfering with patients' or families' plans to hasten dying, and providing varying types and degrees of direct AID. Their responses were context-driven rather than rule-mandated, and they drew a distinction between secondarily hastening and directly causing death. CONCLUSIONS: Few nurses in this study unequivocally agreed or refused to directly help a patient die. Most struggled alone and in silence to find a morally and legally acceptable way to help patients who persisted in requesting AID. Regardless of how they responded, many described feelings of conflict, guilt, and moral distress.

Attitude of Health Personnel↗

Translation and adaptation of the Social Support Network Inventory in Brazil.

PURPOSE: To describe the translation and adaptation of the Social Support Network Inventory (SSNI) to Brazilian Portuguese. METHODS: The SSNI is a widely used, reliable, and valid instrument, designed to measure social support among English-speaking people. The questionnaire was translated and adapted to the Brazilian-Portuguese language by the back-translation method. The translated version was evaluated in a sample of 120 Brazilian women in treatment for breast cancer. FINDINGS AND CONCLUSIONS: Internal consistency and construct validity were examined, and the psychometric properties of the translated instrument were good. The translated SSNI was easily understood by the respondents and did not present difficulty during the interviews. The Portuguese version of the SSNI is a valid instrument to assess social support among Portuguese-speaking patients.

Adult↗

Nursing support in labor.

A retrospective survey was conducted to identify the helpfulness of nursing support behaviors as perceived by women in labor. Behaviors were classified as providing affect, affirmation, or aid support. A convenience sample of 78 women completed two data collection instruments: a demographic questionnaire and the Nursing Support in Labor Questionnaire (NSILQ). All 20 of the nursing support behaviors identified on the NSILQ were perceived as helpful by the study sample. No major differences were found between the perceived helpfulness of affective, affirmation, or aid support.

Adult↗

Expectant fathers' roles during labor and birth.

OBJECTIVE: To describe and explain the expectant father's experience during labor and delivery. DESIGN: A grounded theory methodology was used for data collection and analysis. SETTING: Semistructured interviews were held in the homes of participants, and data were collected from observations in the labor and delivery rooms. PARTICIPANTS: Twenty couples recruited from five hospitals in the San Francisco Bay area. MAIN OUTCOMES: The study identified three roles that expectant fathers adopted: coach, teammate, and witness. RESULTS: The roles adopted by expectant fathers were related to the degrees of understanding and mutuality within the couples' relationships. The majority of the men in the study adopted the role of witness. CONCLUSION: The current expectations of the father in the role of coach should be reevaluated.

Adult↗

Helping women and their families cope with the impact of gynecologic cancer.

The impact of gynecologic cancer on the woman and her family depends on psychosocial factors and cancer-specific factors. Family assessments determine how the family is adapting to the woman's illness. Nursing interventions that families say are helpful include providing physical care, providing information, and giving support. Strategies used by families to cope with the stress and emotional strain of caregiving include taking time for themselves, maintaining a sense of humor, and focusing on the present.

Adaptation, Psychological↗

Psychosocial outcomes in individuals living with genital herpes.

Genital infection, a common chronic sexually transmitted infection, is associated with physical and psychosocial concerns. While recognizing that some patients are able to take advantage of medication to chronically suppress the virus, researchers have examined the role that stress and other variables play in the frequency of outbreaks a patient might experience. In this article, several theories are reviewed from the stress literature that relate to patients' experience with herpes: the adjustment issues associated with having herpes, the role of social support, and the issue of disclosure. These theories and their clinical implications are discussed within the context of nursing interventions.

Adaptation, Psychological↗

Fathers' support to mothers of medically fragile infants.

OBJECTIVE: To examine mothers' perceptions of support from fathers over the 1st year after birth of a medically fragile infant. DESIGN: A descriptive, correlation design based on an ecologic systems view of the family. It was hypothesized that the levels of paternal support would be influenced by factors within the two subsystems: the mother-father system (marital status) and the child subsystem (health and gender). SETTING: A tertiary care children's hospital. PARTICIPANTS: Sixty-four mothers of medically fragile term and preterm infants, who were married or living with the father. MAIN OUTCOME MEASURES: The Stress Support Scale assessed maternal perceptions of helpfulness and satisfaction with paternal support at enrollment, after discharge, and around 1 year of age. RESULTS: Mothers reported high levels of help from fathers at enrollment. Married mothers did not differ from unmarried mothers in their perceptions of helpfulness of support but were more satisfied with support. Mothers of female infants received more help from fathers than mothers of male infants, and this difference increased over time. However, mothers of female infants were not more satisfied with paternal support. Neither number of technologies nor birthweight related the maternal perceptions of paternal support. CONCLUSIONS: Family systems factors were more significant in maternal perceptions of paternal support than the health status of the infant.

Adaptation, Psychological↗

The use of psychiatric facilities by depressives: results of the Upper Bavarian Study.

Utilization of psychiatric facilities by noninstitutionalized persons aged 20 years and older, identified as "depressive cases", was examined. Data were based on the representative community sample of the Upper Bavarian follow-up field study with an original sample size of 1668 people. In the 5-year follow-up 1384 (83%) subjects were interviewed, while 80 subjects (4.8%) had died. The 5-year prevalence of depressive disorders, according to the definition used, was 10.3%. We analyzed which people with depressive disorders sought help from mental health professionals according to type of depressive disorder, sociodemographic data, psychosocial factors and course of disorder. The psychiatric treatment rate (in- or outpatient) was 23.9% of the depressive cases. The majority of treated persons were outpatients. Patients with the diagnosis of endogenous depression were most likely to have received psychiatric treatment. Limitation in the ability to work due to depression was the most important psychosocial factor influencing help-seeking behavior. The highest consultation rate in psychiatric facilities was obtained from the depressives who had grown up without their parents.

Adult↗

Moving into Parenthood: a program for new adolescent mothers combining parent education with creative physical activity.

ISSUES AND PURPOSE: To describe a school-based program combining traditional parent education with creative physical activity classes to assist newly delivered adolescent mothers to develop positive parenting behaviors while remaining in school. CONCLUSIONS: The program contains sessions on parenting information, creative coping strategies, fitness, and role modeling of positive parenting behaviors to help young mothers learn healthy parenting skills as they continue in their own adolescent development. PRACTICE IMPLICATIONS: The content and teaching strategies can be adapted for individual or group clinical work with teen mothers and their infants in a variety of community settings as well as in school-based healthcare programs.

Adaptation, Psychological↗

Modeling awareness of feelings: a needed tool in the therapeutic communication workbox.

Feelings are the focus of much therapeutic time with clients. This article reviews the reasons for encouraging clients to explore feelings and provides a therapeutic communication tool. Clients who are reluctant or unable to acknowledge their feelings present a challenge. One way around this impasse is for the nurse to model feelings--directly or indirectly.

Communication↗

Mental health care providers' perception of giving culturally responsive care to American Indians.

PROBLEM: To determine if mental health care providers delivering culturally responsive care to American Indians experiencing severe and persistent mental illness. METHODS: This qualitative study used grounded theory. Eleven mental health care providers and two administrators participated on two American Indian reservations with two different tribal affiliations. FINDINGS: Preliminary findings indicate the ability of providers to be culturally responsive varied based on an awareness of their personal culture and of the diversity within the American Indian culture. CONCLUSIONS: Mental health providers need to develop a higher level of awareness of diversity within their culture, which is possible through greater connection to their own culture. Future research should ask clients what mental health services would be culturally responsive.

Attitude to Health↗

Exploring boundaries in the nurse-client relationship: professional roles and responsibilities.

TOPIC: The creation and maintenance of boundaries as they pertain to the nurse-client relationship. PURPOSE: To challenge readers to reflect on their fiduciary responsibilities by identifying boundary crossings and violations. SOURCES: Review of the literature and the authors' clinical and teaching experiences. CONCLUSIONS: Although self-awareness and monitoring, debriefing, and availing oneself of supervision and education are important tools in creating and maintaining boundaries, in the final analysis, the nursing profession needs nurses who have the ability to make decisions about boundaries based on the best interests of the clients in their care.

Attitude of Health Personnel↗

Presence: four ways of being there.

Presence is an important but confusing concept in nursing. At times, it is used to simply characterize a nurse's physical presence, while, at other times, it is used in a highly metaphysical sense to depict a nurse's full physical, psychological, and spiritual presence. As a concept, presence has not been clearly defined. Its core characteristics need to be identified and separated from those characteristics that reflect its variability. The authors establish a definition of presence as "being there" based on the essence of the concept as it is used in the nursing literature; identifying four ways in which presence varies based on the quality of being there, the focus of the nurse's energy, and the nature of the nurse-patient interaction; and address possible outcomes of each type.

Empathy↗

Caregiver distress: what nurses in rural settings can do to help.

Caregivers in rural settings experience unmet needs. Some family caregivers in rural areas, either willingly or grudgingly, take on the role of caregiving as one of many responsibilities. A review of the literature reveals that the burden of the added responsibility results in physiological and psychological caregiver distress. The authors suggest some strategies to meet caregiver needs and outline areas where research is needed.

Caregivers↗

The nurse practitioner's role in helping patients achieve lipid goals with statin therapy.

PURPOSE: To discuss the merits of statins in achieving lipid goals and the role of nurse practitioners (NPs) in improving adherence to medical regimens with the goals of improving patient outcomes, reducing cardiovascular disease (CVD) risk within the population at large, and enhancing patients' ability to reach their individual goals. DATA SOURCES: Original research articles, journal articles, professional association practice guidelines. CONCLUSIONS: Despite extensive research clearly documenting the relation between lowering low-density lipoprotein cholesterol (LDL-C) and decreasing rates of cardiovascular events and deaths, lipid-lowering therapy is not being aggressively managed to achieve optimal lipid levels and CVDs remain the leading cause of death among adults in the United States. Contributing factors include lack of patient adherence with prescribed therapy, absence of dose titration when needed, and suboptimal follow-up. Two pathways to improving compliance are the following: first, use of a starting dose of a more efficacious statin to allow more patients to reach their LDL-C goal and, second, more effective primary care programs with NPs as team leaders who can assess and diagnose patients, then develop individual treatment plans and follow-up with patients to ensure that their lipid goals are met. IMPLICATIONS FOR PRACTICE: NPs are well suited to manage patients with hypercholesterolemia. The NP can bridge all aspects of care for the patient by overseeing assessment and treatment of cardiovascular risk factors, including elevated levels of LDL-C, initiating pharmacotherapy when needed, and establishing for each patient an individualized program that features education, support, and follow-up.

Anticholesteremic Agents↗