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Effects of a computerized system to support shared decision making in symptom management of cancer patients: preliminary results.

OBJECTIVE: (1) To evaluate preliminary effects of a computerized support system on congruence between patients' reported symptoms and preferences and those addressed in the patient consultation and (2) to investigate the system's ease of use, time requirements, and patient satisfaction. DESIGN: Fifty-two patients were randomly assigned to intervention or control conditions. MEASUREMENTS: Cancer patients scheduled for an outpatient visit used the system on a tablet computer to report their symptoms and preferences prior to their consultation. This information was processed, printed, and provided to the patient and clinician in the subsequent consultation in the experimental group but not in the control group. RESULTS: While patients in both groups were equivalent at baseline in symptom characteristics, there was significantly greater congruence between patients' reported symptoms and those addressed by their clinicians in the experimental group. The system scored high on ease of use. There were no significant group differences in patient satisfaction. CONCLUSION: This study provided beginning evidence that eliciting patients' symptoms and preferences and providing clinicians with this information prior to consultation can be an effective and feasible strategy to improve patient-centered care.

Attitude to Computers↗

A clinical research strategy to support shared decision making.

Greater use of evidence in health care decision making has highlighted the limited quantity and quality of evidence for many decisions. To make informed decisions, patients and physicians depend on valid evidence about benefits, risks, and costs of alternative treatments. Policymakers can also use this information to make promising new technologies available sooner, while ensuring adequate evaluation. The clinical research enterprise can be expanded with simple trials and registries. A more systematic effort to produce this evidence will entail establishing research priorities, improving research methods, expanding the research infrastructure, and engaging new funds.

Decision Making, Organizational↗

Creating informed consumers and achieving shared decision making.

BACKGROUND: The internet has become a powerful tool to disseminate health information and there are millions of people accessing this free information for a second medical opinion. Consumers seeking information from this resource are more responsible for their own health. However, the quality of health information on the internet varies and there is no simple instrument that can effectively evaluate its quality. OBJECTIVE: This paper reviews recent studies on the validity of instruments or guidelines developed for evaluating health information. It describes government initiatives around the world in establishing quality health information and proposes an alternative way of empowering consumers with reliable health information. It emphasises the importance of the role of primary family physicians in this consumer education process. DISCUSSION: The debate over the quality of health information on the internet and the attempt to use instruments to evaluate the quality of web information are discussed. The relationship between family physicians and consumer informations in this information age is also addressed.

Decision Making↗