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Educating asthmatic patients in primary care: a pilot study of small group education.

Patient education is an important part of asthma management. Individual education is usually used for this task. The object of this study was to assess whether another educational technique, educating patients in small groups, would be as effective and as acceptable as individual counselling in improving knowledge about asthma. A specially designed questionnaire was used to assess knowledge and other variables before and after education. Thirty-four patients were educated individually and 34 patients were educated in small groups. There were significant improvements in knowledge scores after both types of education. However group education took 4.5 hours for 34 patients whereas individual counselling took 14.25 hours for the same number. The results of this study suggest that educating patients in small groups is as effective as individual counselling in improving knowledge of asthma, is acceptable to patients and takes much less time.

Adult↗

'Baby Check' in the inner city--use and value to parents.

'Baby Check', an information booklet designed to aid assessment of acutely ill babies, was given to a group of socioeconomically disadvantaged families from one inner city general practice. Parents' perceptions and use of the booklet were explored in a qualitative study based on audiotaped interviews with 42 parents of 34 babies under 6 months old. Most families (26) used Baby Check spontaneously. Parents found that Baby Check was helpful, reduced anxiety and increased confidence coping with illness, seeking medical advice and communicating with doctors. Parents experienced some difficulties, e.g. they had concerns about a check for rectal temperature and they sought more information and advice about common illnesses. Parents valued and were empowered by access to 'medical' information. Further evaluation and consultation with parents is required to ensure that information is relevant to their needs.

Attitude to Health↗

A PIL for every ill? Patient information leaflets (PILs): a review of past, present and future use.

This article reviews the usefulness and importance of written information, specifically leaflets, being given to patients. Evidence suggesting how both patient and doctor may benefit from the giving of written information is reviewed. Identification of good practice relating to the content and readability of leaflets is discussed. An argument is put forward that the giving of written information is an under-utilized resource in contributing to improving patient outcomes but that this may be changing with the increasing use of patient leaflet databases. The advantages and disadvantages of computer-generated patient leaflets are discussed and desirable further areas of research on computer-generated leaflets are proposed.

Computers↗

Evaluation of a practice information leaflet.

Over 10 months 5,000 practice information leaflets were distributed in a practice in Glasgow. The leaflet was principally evaluated by assessing patients' attitudes to and use of leaflets and changes in their knowledge about the practice. Changes in the pattern of consultation with the practice nurse and the timing of incoming telephone calls were also measured. Most patients read, kept and referred to the leaflet and reported it to be useful. Those who had seen the leaflet had significantly greater knowledge (mean knowledge score 7.5) on 15 questions on practice organization than two comparison groups: the base-line study sample (mean knowledge score 5.2) and those in the follow-up sample who had not seen the leaflet (mean knowledge score 5.7). Improvements in knowledge were statistically significant for 10 out of 15 questions. Two changes of behaviour were noted, increased self-referral to nurses (37% of new consultations at follow-up were self-referred compared with 29% at baseline: P = 0.05) and the timing of incoming telephone calls was more in line with practice policy (for example, 23% of calls for repeat prescriptions were made between 12.00 and 16.00 hours at follow-up compared with only 11% at baseline, P less than 0.001). The leaflet was judged to be useful.

Adolescent↗

Providing information on metered dose inhaler technique: is multimedia as effective as print?

BACKGROUND: Metered dose inhalers (MDIs) are not easy to use well. Every MDI user receives a manufacturer's patient information leaflet (PIL). However, not everyone is able or willing to read written information. Multimedia offers an alternative method for teaching or reinforcing correct inhaler technique. OBJECTIVE: The aim of this study was to compare the effects of brief exposure to the same key information, given by PIL and multimedia touchscreen computer (MTS). METHODS: A single-blind randomized trial was conducted in 105 fluent English speakers (53% female; 93% White) aged 12-87 years in London general practices. All patients had had at least one repeat prescription for a bronchodilator MDI in the last 6 months. Inhaler technique was videotaped before and after viewing information from a PIL (n = 48) or MTS (n = 57). Key steps were rated blind using a checklist and videotape timings. The main outcome measures were a change in (i) global technique; (ii) co-ordination of inspiration and inhaler actuation; (iii) breathing-in time; and (iv) information acceptability. RESULTS: Initially, over a third of both groups had poor technique. After information, 44% (MTS) and 19% (PIL) were rated as improved. Co-ordination improved significantly after viewing information via MTS, but not after PIL. Breathing-in time increased significantly in both groups. Half the subjects said they had learned 'something new'. The MTS group were more likely to mention co-ordination and breathing. CONCLUSIONS: Short-term, multimedia is as least as effective as a good leaflet, and may have advantages for steps involving movement. MTS was acceptable to all age groups. The method could be used more widely in primary care.

Adolescent↗

Does a patient-held health record give rise to lifestyle changes? A study in clinical practice.

BACKGROUND: Patient-held records have been sparsely studied as instruments for behavioral change. OBJECTIVE: Our aim was to examine to what extent patients report lifestyle changes as a result of using a patient-held health record. METHODS: This was a descriptive cross-sectional study based on questionnaires distributed in six primary health care centres in Sweden, and comprised 418 patients aged 20-64 years. The main outcome measure was patients' self-reported valuation of having made changes in their health situation as a result of reading the booklet regarding their health. RESULTS: Twenty-five percent of the patients reported a change in health situation as a result of reading the booklet. Exercise, diet and habits related to stress were the most common habits to be specified. Age, educational level, health status and smoking habits did not influence the proportion of patients who reported lifestyle changes. CONCLUSION: The study suggests that patient-held health records might be a useful tool for promoting lifestyle changes in primary health care.

Adult↗

Developing and testing outreach materials on Alzheimer's disease for Asian and Pacific Islander Americans.

Compared to whites, minorities have similar rates of dementia but are less likely to use services. Native language videos and brochures that incorporated culturally specific perceptions of dementia, caregiving, and help-seeking for seven Asian and Pacific Islander American (APIA) groups were developed and tested. Findings suggested that these tools were culturally appropriate and, when used in combination with discussion, helped increase awareness of Alzheimer's disease and sources of help.

Adult↗

Effectiveness of a cognitive behaviour therapy self-help programme for smokers in London, UK.

One of the key goals of health promotion strategies in the UK and other developed countries is to reduce the prevalence of cigarette consumption. While overall smoking rates in the UK have fallen over the last few decades, they have barely fallen for the least advantaged adults (Department of Health, 1998a). There is a need for interventions that are suitable for lower socio-economic status (SES) smokers that have undergone rigorous evaluation. This study describes a randomized controlled trial of cognitive behaviour therapy (CBT) with smokers from a deprived area of London. At 6 months follow-up, 21 (17.2%) of 122 participants receiving therapy were abstinent and 14 (11.5%) had reduced cigarette consumption by at least 25% of pre-treatment level. Six (5.6%) of 107 participants in the control group were abstinent and none had reduced consumption. These results suggest that this self-help CBT intervention has the potential to reduce the prevalence of smoking among lower SES smokers.

Adult↗

Increasing compliance with colorectal cancer screening: the development of effective health education.

The ability of a health education leaflet to raise awareness of the frequency of colorectal cancer and its asymptomatic nature and to increase intention to participate in screening with faecal occult blood testing (FOBT) was investigated. One hundred subjects were interviewed before and after reading the leaflet. The number of men stating bowel cancer was 'very common' increased significantly from 20 to 60% (chi 2 = 16.7, P < 0.0001) and those understanding its asymptomatic nature form 64 to 92% (chi 2 = 11.4, P < 0.001). The leaflet significantly increased the percentage of women reporting bowel cancer as 'very common' from 30 to 70% (chi 2 = 16.0, P < 0.0001) and as being asymptomatic from 58 to 94% (chi 2 = 17.8, P < 0.0001). After reading the leaflet, 55% of men who initially declined screening reversed their decision (chi 2 16.5, P < 0.0001) and 50% of female non-adherers reversed their decision (chi 2 = 17.3, P < 0.0001). Reasons most frequently given for declining colorectal cancer screening were feeling well (77% of subjects declining), concern about further tests (38%), unpleasantness of FOBT (13%) and illness (6%). This leaflet successfully educates people about colorectal cancer and increased intention to participate in screening programmes.

Aged↗

Text and graphics: manipulating nutrition brochures to maximize recall.

This study examined how altering text and graphics of a nutrition brochure could affect the ability to remember the content of the message. Two theoretical models were used to guide alterations: dual-coding theory and the communications model. Three brochure formats were tested: the original brochure containing abstract text and abstract graphics, a modified brochure with relatively concrete text and abstract graphics, and a relatively concrete text brochure with concrete graphics. Participants (N = 239 women) were divided into four age groups: 20-30, 40-50, 60-70 and over 70 years. Women were randomly assigned into each of the three experimental brochure formats or a control group. Participants completed recalled materials from the assigned brochures (the no treatment control group did not include a brochure) at two different sessions, 30 days apart. Data were content analyzed and results were compared using analysis of covariance to test differences by age and brochure types. Younger women (20-30 and 40-50 years) recalled more information than women over 60 years. More concrete nutrition education print materials enhanced recall of information presented immediately after reading the material; however, this effect was transient and lasted less than 30 days after a one-time reading. The implications of these data for communicating nutrition messages with print materials are discussed.

Adult↗

Use of technology in reproductive health information designed for communities in South Africa.

The need to change sexual behavior to reduce the spread of the HIV/AIDS epidemic has highlighted the critical need for dissemination of effective reproductive health information. A wide range of media, including visual technologies, is used to provide health information to communities in South Africa. However, little is known about the ability of the technology used in communicating intended messages or on the comprehension of messages by the target audience. The study determined the ability of the technology to convey intended messages and the level of understanding of the information disseminated among the community members. A survey of both rural and urban communities of Umtata district in the Eastern Cape province was conducted to examine the readability and understanding of reproductive health information. The study revealed that urban communities understood disseminated reproductive health information better than rural. The findings also indicated that visual communication is much more problematic for older people. Frequency and consistency of reproductive health information improved the level of comprehension.

Adolescent↗

Providing an integrated program of low intensity tobacco cessation services in a health maintenance organization.

This paper reports on the development, promotion and use of a coordinated program of low intensity intervention services designed to appeal to smokers (and smokeless tobacco users) at various stages of change. An initial package of four components: a telephone advice line, self-help materials, single session group meetings and bi-monthly newsletter was offered to subjects in a variety of different settings (outpatient clinics, dental offices, worksites, hospitals) within a health maintenance (HMO) program project. Based upon consumer response and formative evaluations, these components were modified during the course of the year-long intervention. Results revealed differences in use of the various components of the program, with greatest use of self-help materials (manuals, 'tobacco substitutes' and a computerized smoking cessation aid) and least response to group meetings and the advice line. Most encouraging was the finding that it was possible to reach heavy smokers and to engage them in tobacco cessation activities through a centralized program of low intensity services. Data are presented on member characteristics associated with use/non-use of the various low intensity resources and suggestions are made for wider use of such interventions in other health care systems.

Adult↗

Development of a health education program for parents of preschool children with asthma.

This paper presents the development and pilot testing of a self-management education program for parents of preschool children (0-4 years) with asthma, involving general practitioners, asthma nurses, community nurses and doctors of child health centers. The program intends to integrate education in the medical care provided to the child (and the parent). The program contains four manuals, one for each group of health care providers, and a booklet for parents. The manuals identify the educational tasks per discipline and regulate referral from one discipline to another. The booklet provides written information for parents. In the development of the program, representative from both the target population and the providers of the education were involved in needs assessment surveys. Findings of these surveys were integrated into the design of the program. Then, a pilot study was conducted to test the efficacy of the program during group sessions. Findings indicate that the variables measured (knowledge, attitude, self-efficacy and self-management behaviors) improved significantly from pre- to post-test. Finally, the program was revised for the next phase in which the program will be evaluated in primary health care with a controlled trial.

Adult↗

Crutches, confetti or useful tools? Professionals' views on and use of health education leaflets.

This paper examines the views on and use of health education leaflets by a number of professional groups: health visitors, midwives, occupational health workers, pharmacists and school health education co-ordinators. Eighty nine percent currently obtain leaflets from health promotion units, with the exception of health visitors, professionals are largely satisfied with the units' service. Seventy six percent use commercial or sponsored leaflets primarily because of the large numbers and topics that are available. The numbers and type of leaflets used were found to vary across the professions. All professionals see an increasingly important role for leaflets in their work. A number of them, pharmacists and occupational health workers in particular, saw the numbers they use rising. These views were accompanied by lower levels of belief in a leaflets ability to increase knowledge and behaviour as well as lower levels of satisfaction with current leaflet use and a concern over the public's reception of leaflets. Methods of leaflet distribution to the public largely reflect the professionals' work contexts. Most popular were handing out leaflets with advice, leaving them in a public place and using them as a back-up to a meeting. A number of contradictions emerge between distribution practices and perceived effectiveness. Few professionals thought leaving leaflets in a public place was effective, and few health visitors and midwives believed giving leaflets to the family of a client was effective despite large numbers doing so. The implications of these findings for health promotion policy and practice are discussed.

Attitude of Health Personnel↗

Does tailoring matter? The impact of a tailored guide on ratings and short-term smoking-related outcomes for older smokers.

There is new evidence that smokers of all ages benefit from cessation of smoking. Although most older smokers, like younger smokers, prefer to quit on their own, at the time this project was started, there were no materials or programs targeted to older smokers. Using the literature, focus groups with older smokers and a national survey of older smokers, we created Clear Horizons, a self-help guide for older smokers, and a telephone counseling protocol tailored to the needs of older smokers (age 50-74). Smokers were recruited from around the United States and assigned randomly to a control guide, Clearing the Air, Clear Horizons alone or Clear Horizons and two counselor calls. Follow-up of nearly 2000 smokers was conducted by telephone 3, 6, 12 and 24 months after delivery of the self-help guides. This report focuses primarily on results at 3 months because that was the measurement for reactions to the interventions. At the 3 month interview, those in the tailored interventions rated their guides more highly than did those in the control group. They also read more of their guides and were more likely to reread them. Quit rates were significantly higher among smokers who received a combination of the tailored guide and telephone counseling. At 3 months, the combination of the guide and telephone counseling was most effective in helping smokers to quit. By 12 months, both the tailored guide alone and the tailored guide and calls groups had higher quit rates than the control guide but were not statistically different from one another.

Age Factors↗

A linguistic framework for assessing the quality of written patient information: its use in assessing methotrexate information for rheumatoid arthritis.

Patient information leaflets are an important adjunct to verbal exchange between doctor and patient. Their value is dependent upon whether they contain useful information from the viewpoint of the patient and are easily understood. We developed a framework based upon linguistic theory for assessing the quality of written patient information and applied it to a set of leaflets about methotrexate treatment. Items included the overall structure of the text, the technicality of the vocabulary used, the number of content words per clause ('lexical density'), and the clarity of the role relationship between author and reader. The leaflets consisted of up to nine identifiable sections (range 3-8): background information about the drug, summary of its use, dosage instructions, outline of benefits and side-effects, monitoring information, constraints on patient behavior, storage instructions, and clinical contact availability. Most leaflets contained a high number of content words per clause and the identity of the author was clear in only three (17%). Linguistic analysis provides highly relevant information about written patient information. Together with critical assessment of factual and visual aspects, consideration of key linguistic features should improve the quality of informational texts for our patients.

Antirheumatic Agents↗

Why organizations continue to create patient information leaflets with readability and usability problems: an exploratory study.

Readability and usability problems with patient information leaflets continue to be reported despite long-standing recognition of their existence and the availability of guidelines for developing health education materials. This exploratory study examined possible causes for such problems, based on interviews with professionals who developed leaflets in large health organizations. Findings suggest that readability is an important concern for developers, but that complex organizational processes are involved in creating leaflets, and that developers face a need to cope with organizational politics, goal conflicts and various other pressures. Six factors were identified, i.e. (1) initiators, (2) intended users and contexts of use, (3) goals, (4) work flow and content decisions, (5) readability considerations, and (6) evaluation practices, that can adversely affect the content, organization, and resulting comprehensibility and usability of leaflets. It is suggested to adopt a broad ecological view of the environments in which patient education materials are created and deployed. Implications for practice and for future related research are discussed.

Comprehension↗

Written medicines information for South African HIV/AIDS patients: does it enhance understanding of co-trimoxazole therapy?

Written information to promote patient education is being increasingly recognized as an integral part of quality health care. The main objective of this study was to evaluate the effect of distributing a patient information leaflet (PIL) on knowledge acquisition and recall. Two different PILs were designed for co-trimoxazole tablets: a simple, shorter PIL that incorporated pictograms and text and a text-only PIL that was longer and more complex. Human immunodeficiency virus-positive participants on chronic co-trimoxazole therapy were enrolled from five local primary health care clinics in Grahamstown, South Africa, and were randomly allocated to a Control Group (no PIL), Group A (text-only PIL) or Group B (simple PIL with pictograms). At the preliminary interview, demographic data were collected and the tablets dispensed according to normal clinic protocol. In a follow-up interview approximately 14 days later, participant medicines knowledge was investigated by asking a series of questions. The mean percentage for medicines knowledge was significantly higher in the group that received the simple PIL incorporating pictograms (76.3%), compared with both the Control Group (43.3%) and the group who received the longer, text-only PIL (50.9%). This study reinforces the value of providing patients with an appropriately designed PIL to inform appropriate medicine-taking behaviour.

Adolescent↗