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At least 109 records · Page 6Linked to original sources
PubMed1980

Alternative data sources and discrepant results in case-control studies of estrogens and endometrial cancer.

In most case-control studies, little attention has been given to two features that can affect the odds ratio: 1) self-selection of the people who are available for interviews, and 2) disagreements between the data obtained by medical records and by direct conversation. The authors investigated these problems during two separate case-control studies of estrogens and endometrial cancer. When interviews were attempted with all patients, fewer controls than cases were available. In samples of patients from a tumor registry, more controls than cases had died before the interview could be solicited, and fewer control patients could be located. In patients sampled from a diagnostic test registry, more controls than cases refused participation. The interview data about estrogen usage disagreed with previously recorded medical information in 16% (52/324) of patients). Among persons marked as "non-users" in medical record data, more cases than controls were available for interview and thus for redesignation as estrogen users. The bias produces a possible artificial increase in the odds ratio when interview and medical record data are combined. Since patients available for interview were systematically biased in favor of having both estrogen use and endometrial cancer, the odds ratio for this association should be calculated separately for record and for interview data.

Connecticut↗
PubMed1999

Critical evaluation of medical, statistical, and occupational data sources in the Kola Peninsula of Russia pertinent to reproductive health studies.

BACKGROUND: The feasibility study described herein was prompted by a report in 1992 of possible reproductive and developmental health concerns among female workers in a Russian nickel refinery. OBJECTIVE: The primary goal was to ascertain whether medical, statistical, and occupational data bases could be accessed for information about the pregnancy histories, occupational histories, and life-style factors of the women affected. METHODS: The project was facilitated by construction of a registry of all births in three towns with a nickel refinery and verification of its contents against patients' records obtained from hospital delivery and gynecology departments and community polyclinics. Municipal Registration Board, Regional Health Statistics Board, and nickel company records were also reviewed. RESULTS: Reproductive/developmental outcome information and workplace histories were acceptable. Sample-size calculations indicated that a cohort or cross-sectional study would be amenable and suitable for the detection of an excess risk for spontaneous abortion with adequate statistical significance and power. Such investigations would need to be supplemented by workplace environmental/biological monitoring assessments for evaluation of exposure to occupational hazardous factors and a worker's questionnaire to obtain information about life-style factors. A case-control design is recommended for the study of congenital defects. CONCLUSIONS: A well-designed, comprehensive epidemiology study is technically feasible because of the availability of a favorable pool of study subjects, reproductive/developmental outcome data, information to control for major confounders, and suitable occupational records.

Adult↗
PubMed1995

Archaeological techniques for exhumations: a unique data source for crime scene investigations.

If exhumations to retrieve a body or body samples are conducted according to archaeological methodology, they may provide evidence on events which occurred during the interment process. This article discusses the exhumation methodology employed during exhumations in a tropical environment and provides a case study to serve as an example of the data that can be obtained beyond the simple recovery of human remains.

Archaeology↗
PubMed1997

The use of external data sources and ratio estimation to improve estimates of hardcore drug use from the NHSDA.

Levels of hardcore drug use have been especially difficult to estimate because of the relative rarity of the behavior, the difficulty of locating hardcore drug users, and the tendency to underreport stigmatized behavior. This chapter presents a new application of ratio estimation, combining sample data from the National Household Survey on Drug Abuse (NHSDA) together with population counts of the number of persons arrested in the past year from the Uniform Crime Report (UCR) and the number of persons in drug treatment programs in the past year from the National Drug and Alcoholism Treatment Unit Survey (NDATUS). The population counts serve as a benchmark accounting for undercoverage and underreporting of hard drug users.

Cocaine↗
PubMed1999

Using 3 data sources and methods to shape a nutrition campaign.

The first objective of this research was to define a target population of African-American women more clearly. The second was to provide specific information about the needs and preferences of that population in order to design an effective, culturally relevant, community-based communications campaign to promote more healthful lifestyles. Data collection and analysis included the following: interviews with 10 community nutritionists and the director of the State Office of Nutrition, 6 focus groups with a total of 47 members of the target population, and direct observation and documentation of key community resources. This approach, called "triangulation," permits more in-depth understanding of issues, provides different perspectives on the problem, and helps ensure accuracy of conclusions. Interviews with nutritionists identified young African-American women as the appropriate target population for the campaign. These interviews and the focus-group discussions confirmed the acceptability of higher weight and better body-esteem among African-American women than among white women. Both the nutritionists and the focus-group members identified the need and desire for information and skills related to food preparation and provided specific direction for program content. Community observation confirmed the need for food markets with merchandise of consistently high quality, especially in the fresh and frozen produce sections. Observation also helped identify community services and programs. The 3 sets of data, which augmented a comprehensive literature review, provided a firm foundation for the campaign's design and development. Dietitians and nutritionists working in community settings can use triangulation to gain a better understanding of their populations in order to develop more effective interventions.

Adolescent↗
PubMed1989

Methodological issues in a multicentric study of gastric cancer and diet in Italy: study design, data sources and quality controls.

The authors examine the problems of planning and conducting a multicentric case-control study on diet and gastric cancer in Italy. The solutions chosen for the study design, cases and controls identification, dietary interview, production of a common protocol for the field work are discussed. Results on the evaluation of the quality and comparability of collected data are presented. Further, compliance of cases and controls to the interview and to the blood and urine sampling with reasons of non-response are shown. Finally, the phases of the study and the methods for improving and controlling homogeneity among Centers are summarized.

Aged↗
PubMed1998

Development of a clinical event monitor for use with the Veterans Affairs Computerized Patient Record System and other data sources.

We are developing an event monitor to operate with the Veterans Affairs Computerized Patient Record System (CPRS). The event monitor is designed to receive messages when important patient events such as posting of new results, patient movement, and orders occur. Our design separates the event monitor from CPRS itself, using communication via a network connection to receive HL7 messages, to access other data needed to run rules, and to communicate with providers by message display, electronic mail and other mechanisms. Results from operation of the event monitor using patient data in our test account show that a wide variety of data can be accessed by the event monitor with acceptable response times.

Computer Communication Networks↗
PubMed1992

Trends of HIV infections using the anonymous mandatory reporting system and other data sources in Switzerland and in the Federal Republic of Germany.

In Switzerland and in the Federal Republic of Germany the reporting of HIV infections is based on an anonymous mandatory reporting system for laboratories. In Switzerland, physicians have to complete a questionnaire on the patient's clinical status and risk behaviour. To make a rough estimate of the prevalence of HIV infections in the general population at low risk, data on blood donations are used in both countries. In Switzerland, additional data with information on positive and negative test results have been obtained since 1985 from anonymous test sites. In both countries, the data do not show evidence of an increasing incidence of HIV infection. The number of positive test results reported by the laboratories and physicians remains stable, and the rates of HIV-positive blood donations are declining. In the Federal Republic of Germany, homo-/bisexual men play the most important role in the epidemic, whilst in Switzerland, injecting drug users contribute most to the burden of HIV infection, and the proportion of persons probably heterosexually infected is increasing steadily. Possible selection biases need to be further discussed.

Acquired Immunodeficiency Syndrome↗
PubMed1984

Data sources for estimating environment-related diseases.

Relating current morbidity and mortality to environmental and occupational factors requires information on parameters of environmental exposure for practitioners of medicine and other health scientists. A fundamental source of that information is the exposure history recorded in hospitals, clinics, and other points of entry to the health care system. The qualitative and quantitative aspects of this issue are reviewed.

Data Collection↗
PubMed1995

The goals, development, and use of trauma registries and trauma data sources in decision making in injury.

Trauma is the leading killer of Americans under the age of 40 years and the fourth most common cause of death for all Americans. Its impact has not been studied adequately or understood completely. Rational decisions in the care and treatment of trauma patients, the prevention of injury, and the reduction of trauma's annual $177 billion costs can only be made with adequate information on the effectiveness of prevention and treatment measures. This information includes current and accurate data on who is at risk, what types of injuries are sustained, how they are treated, the severity of their consequences, and their outcomes. The availability of this information enables local and national agencies and hospitals to establish priorities, characterize high-risk groups, target prevention and treatment measures within each community, and evaluate the effectiveness of injury-control interventions. The value of hospital trauma registries as a major research tool is recognized increasingly because of their role in improving the care of the trauma patient and bringing about better resource utilization.

Hospital Information Systems↗
PubMed2000

How many data sources are needed to determine diabetes prevalence by capture-recapture?

BACKGROUND: Capture-recapture (CR) methods are increasingly used to estimate the size of human populations, including those with diabetes. Few studies have examined the demographic details needed to match patients on the lists used in these techniques, or to determine the optimum number of lists. METHODS: Six lists of known diabetic patients attending different medical settings during the study year were obtained. The effects on total enumeration after aggregation of these lists were examined using increasing numbers of demographic data items as patient identifiers. The CR estimates of prevalence were obtained using 15 different combinations of two lists. Estimates were obtained after log-linear modelling for interdependence between different combinations of three and four lists, and after combining the six available lists into three logical lists. RESULTS: For matching patients, adding date of birth to first name and family name as matching criteria increased the total of identified patients from 2500 to 2585 (3% increase), corresponding to a period prevalence of 1.5% (95% CI : 1.41-1.52). Addition of further identifiers, such as partial postcode, only increased the estimate by a further 15 patients (0.5%), and more detailed matching with full postcode introduced uncertainty. The use of two-list CR yielded widely varying estimates of the total diabetic population from 1379 (95% CI : 435-2273) to 9554 (95% CI : 7291-10 983). Log-linear modelling using different combinations of three and four lists produced estimates of 5074 (95% CI : 4417-5947) and 5578 (95% CI : 4918-7081), respectively, after compensating for statistical interdependence between the lists used. The appropriate condensation of six available lists into three lists for modelling yielded estimates of 5492 (95% CI : 4870-6285), corresponding to a CR-adjusted period prevalence of 3.1% (95% CI : 3.03-3.19%). CONCLUSIONS: In a Western population, the only demographic data required for matching patients on lists used for CR methods are first name, family name and date of birth, if unique identifiers such as social security numbers are not available. Two lists alone do not produce reliable data, and at least three lists are needed to allow for modelling for 'dependence' between datasets. The use of more than three lists does not substantially alter the absolute value or confidence of enumeration, and multiple lists (if available) should be condensed into three lists for use in CR calculations.

Databases, Factual↗
PubMed1996

Using an alternative data source to examine randomization in the Canadian National Breast Screening Study.

Criticisms of the Canadian National Breast Screening Study (NBSS) assert that reported findings (more deaths in women aged 40-49 allocated to mammography versus no mammography and no difference in mortality between women who had mammography and physical examination versus physical examination alone for those aged 50-59) may be due to more women with prior breast disease being allocated to the mammography arms of the study. The possibility that allocation was not random was examined for NBSS participants in Manitoba, Canada, using health insurance data that were external to and independent of the NBSS. The study design consisted of a retrospective observation study using health insurance (claims) data to construct health histories of breast disease prior to NBSS entry. Self-reported breast disease from the NBSS entry questionnaires was compared to breast disease histories on the basis of health insurance claims. The setting consisted of one NBSS screening center in Winnipeg, Canada. The patient population consisted of 9477 women with at least one health insurance claim in the 24 months prior to NBSS entry. We determined the proportions of women within each study arm who had claims for breast disease, breast disease investigation, or xeromammograms in the 24 months prior to NBSS entry, and compared the proportion of women's self-reports of breast disease or xeromammography with the presence/absence of a claim prior to NBSS entry for breast disease or xeromammography. No significant differences in the proportion of women with prior histories of benign breast disease, investigation, or xeromammograms (p > 0.05) were found across the study arms. Nine women in the mammography group versus one in the no mammography group had one prior health insurance claim for breast cancer, but eight of these women had no subsequent claims for breast cancer. There were no differences across the study arms in the proportion of women who reported a prior history of breast disease or a prior xeromammogram for whom an insurance claim was found. Using data external to the NBSS for Manitoba participants, the study found no definitive evidence to support a nonrandom allocation of women with prior breast disease to the mammography arms of the study. However, generalizability to the other NBSS centers cannot be assured.

Adult↗
PubMed1995

The patient survey as data source for CQI and risk management.

Improving communication between patients and providers is important for several reasons. Survey tools provide a useful approach to enhancing patient-provider communication. Combined with clear and concise verbal communication, information obtained through the use of survey tools provides a comprehensive databank of individualized information for delivery of patient-centered care within efficient time parameters.

Data Collection↗
PubMed1993

Use of two data sources to estimate odds ratios in case-control studies.

Information bias is among the most serious and common problems in epidemiology. Approaches have been developed to reduce information bias by correcting for known amounts of misclassification. Unfortunately, in most studies, the extent of exposure misclassification cannot be easily estimated. We discuss the application to case-control studies of an approach originally proposed by Hui and Walter in 1980 to estimate the sensitivity and specificity of two independent classification schemes (Hui SL, Walter SD. Biometrics 1980;36:167-171). In this paper, we propose using the EM algorithm to provide a simple numeric technique for implementing their method that seems to converge for most real-world data. Our approach allows inclusion of a measure of non-independence of the two classification schemes, and we assess the influence of non-independence on the odds ratio. Finally, we provide a simple variance estimate for the odds ratio based on the delta method and maximum likelihood theory. We exemplify our results and method with data from a case-control study of sudden infant death syndrome in which data on some variables were obtained from both maternal interviews and medical records.

Algorithms↗
PubMed1999

Information acquisition from audio-video-data sources: an experimental study on remote diagnosis. The LOTAS Group.

OBJECTIVE: To determine what information sources are used during a remote diagnosis task. MATERIALS AND METHODS: Experienced trauma care providers viewed segments of videotaped initial trauma patient resuscitation and airway management. Experiment 1 collected responses from anesthesiologists to probing questions during and after the presentation of recorded video materials. Experiment 2 collected the responses from three types of care providers (anesthesiologists, nurses, and surgeons). Written and verbal responses were scored according to detection of critical events in video materials and categorized according to their content. Experiment 3 collected visual scanning data using an eyetracker during the viewing of recorded video materials from the three types of care providers. Eye-gaze data were analyzed in terms of focus on various parts of the videotaped materials. RESULTS: Care providers were found to be unable to detect several critical events. The three groups of subjects studied (anesthesiologists, nurses, and surgeons) focused on different aspects of videotaped materials. CONCLUSION: When the remote events and activities are multidisciplinary and rapidly changing, experts linked with audio-video-data connections may encounter difficulties in comprehending remote activities, and their information usage may be biased. Special training is needed for the remote decision-maker to appreciate tasks outside his or her speciality and beyond the boundaries of traditional divisions of labor.

Anesthesiology↗
PubMed1997

Continued inadequacies in data sources for the evaluation of cancer services.

There is a need to evaluate cancer services and provide a baseline on current treatment success and organization. This study shows that this process may be severely hindered by case note destruction or inaccessibility and incomplete information. This is an ongoing problem that needs to be addressed now.

Breast Neoplasms↗
PubMed1998

[The trend in induced abortions in Denmark until 1995. Illustrated by the relation to other data sources, preventive campaigns during the last years and the stage of pregnancy].

This study presents a review of the trend in the Danish abortion rate, with a view to prevention campaigns and introduction of electronic registration of abortions through the National Patient Registry. The number of induced abortions has been decreasing steadily since 1975; abortion on demand up to the end of 12th gestational week has been permitted by law in Denmark since 1973. The lowest number ever was registered in 1994 and 1995, corresponding to a rate of 13.7 per 1,000 women aged 15-49 years. The number per 1,000 liveborn decreased from 277 in 1993 to 253 in 1994. The relative number of abortions was highest among women aged 20-29 years, and in the capital area. Since 1993 the health authorities have strengthened campaigns to reduce the number of unplanned pregnancies, primarily focusing on younger women and with special programs in the capital area. The reduction for these groups could point to a success of the prevention campaigns, although the rates of terminated pregnancies might be influenced by many other factors.

Abortion, Legal↗
PubMed1992

Hospital records as a data source for occupational disease surveillance: a feasibility study.

To assess the feasibility of using hospital records for occupational disease surveillance and to evaluate the quality of the industry/occupation (I/O) information available in these records, the computer file of all discharge diagnoses from a large health maintenance organization during 1985 was reviewed. The frequencies of discharge diagnoses previously listed as Sentinel Health Events (Occupational), or SHE (O), were calculated and three possible SHE(O) diagnoses--lung cancer, bladder cancer, and toxic hepatitis--were selected for further review. Outpatient charts of patients discharged for each diagnosis were abstracted with regard to I/O information and the discharged patients were interviewed by telephone to obtain a lifetime occupational history. The accuracy of the I/O information obtained from the hospital chart was compared to that obtained by patient interview by number of digits matched on standard classification codes. The frequencies of matches for occupation and industry were greater for "usual" than for "last" categories with both cancer diagnoses, but were similar for "usual" and "last" categories with toxic hepatitis. To assess the proportion of each possible SHE(O) diagnosis that was related to workplace exposures, the I/O information obtained by interview was rated in a blinded fashion by an experienced occupational medicine physician. The highest probability ratings for work-relatedness were noted for lung cancer, primarily due to asbestos exposure. The results of this study suggest that hospital records can be used to identify possible SHE(O); if adequate I/O information is available, then work-relatedness can be assessed. However, the accuracy of I/O obtained from hospital charts is relatively low. The efficient and accurate collection of I/O information from hospital records will require the use of a simple, easily coded instrument to be routinely administered on admission.

Asbestos↗