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PubMed2004

[Resources of information in the field of bioethics in Italy: survey of the present state and perspectives].

The research project "Collection and dissemination of bioethical information through an integrated electronic system", started in 2001 by the Istituto Superiore di Sanità (ISS), had among its objectives, the realization of an integrated system for data collection and exchange of documents related to bioethics. The system should act as a reference tool for those research activities impacting on citizens' health and welfare. This paper aims at presenting some initiatives, developed in the project framework, in order to establish an Italian documentation network, among which: a) exchange of ISS publications with Italian institutions active in this field; b) survey through a questionnaire aimed at assessing Italian informative resources, state-of-the-art and holdings of documentation centres and ethical committees; c) Italian Internet resources analysis. The results of the survey, together with the analysis of web sites, show that at present in Italy there are many interesting initiatives for collecting and spreading of documentation in the bioethical fields, but there is an urgent need for an integration of such resources. Ethical committees generally speaking need a larger availability of documents, while there are good potentialities for the establishment of an electronic network for document retrieval and delivery.

Academies and Institutes↗
PubMed2004

[Bioethics: problems and prospects within a research institute].

Bioethics aims to identify an ethical framework by means of a multidisciplinary debate open to the scientific community, in order to allow support to scientists involved in biomedical research. The Istituto Superiore di Sanità (Italian National Institute of Health) has recognized the need for an ethical review board to cope with the problems of different researches carried on within the Institute. An Ethics Committee, better defined as an Independent Review Board, has therefore been appointed by the Minister of Health in order to evaluate different research proposals ranging from clinical trials to non clinical biomedical research. The experience of the first Committee is described.

Academies and Institutes↗
PubMed2004

[Italian Thesaurus of Bioethics, TIB].

The article aims at illustrating the characteristics and functions of a monolingual thesaurus, focusing on the Italian Thesaurus of Bioethics (Thesaurus Italiano di Bioetica, TIB) the controlled vocabulary used to index and retrieve documents within SIBIL (Italian Online Bioethics Information System). TIB includes controlled terms (descriptors) translated from the Bioethics Thesaurus adopted by the Kennedy Institute of Ethics of the Georgetown University of Washington and revised according to the Italian context of study and scientific debate in the field of bioethics. The overall amount of TIB terms consists in over 1600 headings. Methods to link thesaurus terms hierarchically, by association and by showing synonyms as recommended in ISO standards are applied with reference to descriptors drawn from TIB. Future plans to make the English version of TIB available online within European networks are also illustrated, aiming at spreading information relating to bioethics at an international level.

Bioethical Issues↗
PubMed2004

[Retrieval of bioethical information from the SIBIL database].

SIBIL (Italian Online Bioethical Information System) is the database distributed on the net by the Istituto Superiore di Sanita through the homonymous system, conceived for a systematic dissemination of bioethical information, which is scattered in a multitude of informative resources, due to the interdisciplinary nature of the subject. The present work shows the structure and the main features of the database, which aims to provide a regular update on the national ethical debate through the collection of a wide range of documents. Emphasis is laid on the query mechanisms through practical suggestions which may contribute to a more precise searching, thus granting the retrieval of relevant documents. The article also describes the short-term development of the system, which is expected to take part in a European bioethical net in the near future.

Academies and Institutes↗