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Factors influencing the selection of toys for handicapped and normally developing preschool children.

Factors influencing the selection and purchase of toys for children's use were investigated. Subjects were 73 parents or adult friends of normally developing or handicapped preschool children. In addition to providing demographic information about themselves, the subjects rated the importance of 17 factors influencing their selection and purchase of toys. Contrary to previous research, the sex of the child was reported to be of only minor importance in toy selection, as was the picture on the toy package. Two factors, safety and teaching new skills, were rated as extremely important. There were no significant differences in ratings as a result of sex, ethnicity, or whether or not the subjects were parents of a handicapped child. The findings suggest a substantial degree of agreement among parents about what they consider important when choosing toys for children.

Adult↗

Reliability and validity of a Danish adaptation of the Tinnitus Handicap Inventory.

The objective of this study was to determine the reliability and validity of a Danish translation of the Tinnitus Handicap Inventory (THI), a self-report measure of perceived tinnitus handicap. The Danish version of the THI was administered to 50 patients reporting tinnitus as their primary complaint or secondary to hearing loss. Construct validity was assessed using tinnitus symptom rating scales, the Beck Depression Inventory (BDI), the State-Trait Anxiety Inventory (STAI), the Tinnitus Coping Style Questionnaire (TCSQ), the Eysenck Personality Questionnaire (EPQ), and perceived tinnitus loudness and pitch. The Danish translation of the THI and its subscales showed good internal consistency reliabilities (c = 0.93 to alpha = 0.74) comparable to those of the original version. High to moderate correlations were observed between THI and psychological distress, tinnitus symptom ratings, neuroticism and maladaptive tinnitus coping. A confirmatory factor analysis failed to validate the three subscales of THI, and high intercorrelations found between the subscales question whether they represent three distinct factors. The results suggest that the Danish THI-Total scale may be a reliable and valid measure of general tinnitus related distress that can be used in a clinical setting to quantify the impact of tinnitus on daily living.

Adult↗

Effects of static and dynamic shoulder rotator exercises in women with rheumatoid arthritis: a randomised comparison of impairment, disability, handicap, and health.

The aim was to compare static and dynamic shoulder rotator endurance training in a group of women with mild rheumatoid arthritis and to see whether such training could influence impairment, disability, and handicap. The effects on general health were also studied. Patients were randomly assigned to a static (n = 17) (average age 59, median disease duration 7) or a dynamic training group (n = 20) (average age 56, median disease duration 10.5). Measurements were taken at the start, 10 weeks later when the training period was finished, and after a further 10 weeks. After the training both groups had fewer swollen joints in the upper extremity and less shoulder-arm pain. The dynamic group patients also improved according to the physical and overall dimensions of the Sickness Impact Profile. As impairment and aspects of disability and handicap were influenced by training but not by the patients' opinions regarding perceived disease activity and health, these relationships must be studied further.

Adult↗

The epidemiology of disability and occupation handicap resulting from major traumatic injury.

PURPOSE: To assess the prevalence of disability and handicap among survivors of major traumatic injury (injury severity score > 15) using a prospective population based cohort study design. The study was set in the former Yorkshire Health Region. SUBJECTS/METHODS: A cohort of 367 individuals identified as having received and survived major traumatic injury during the 12 month period October 1988-September 1989. OPCS disability scores and employment status at 5 years post injury were established through structured face-to-face interviews. RESULTS: Three hundred and four (84% response. 89% adjusted response) individuals were interviewed. Seventy-seven percent of these were male and they had a mean age (SEM) of 30.8 (1.06) years. Injuries were caused by road traffic accidents in 68% of the cases and were primarily orthopaedic and neurological in nature. At 5 years post injury 81.2% of individuals had some form of measurable disability principally relating to locomotion, behaviour, continence and intellectual functioning consistent with injury type. A third had an OPCS disability score of 5 or greater and approximately 1 in 12 were in the most severe categories of OPCS scores of 9-10 necessitating dependency on formal or informal carer assistance. Whilst five of the eight sub-scales of the SF36 showed correlation in severity proportion, general health perception and energy/vitality were higher in those with increasing disability as measured by the OPCS scale. Of those between the ages of 16-64 nearly half (49%) were not in paid employment at the time of follow up. CONCLUSION: A high prevalence of severe permanent disability, work disability and occupation handicap has been identified in a cohort of mainly young adult males following major traumatic injury resulting from road traffic accidents. Progress in accident prevention, injury reduction and the management of patients with serious injuries should be measured not only in terms of reduced mortality from such events but also in the long term disability and quality of life sequelea of survivors.

Adolescent↗

Impairments, disabilities and handicap pattern in konzo--a non-progressive spastic para/tetraparesis of acute onset.

PURPOSE: To assess impairments, disabilities and handicap pattern in konzo. METHOD: The study included 17 konzo subjects, of which three were males and 14 females (mean age 21, median 18 years). A detailed neurological examination was performed on all subjects. Subsequently, an assessment of impairments, disabilities and handicap was done with a constructed rating scale partially based on the ICIDH-2 framework. RESULTS: The overall disablement picture in all subjects consisted of motor dysfunction in lower limbs leading to limitations in walking and movement activities, and restrictions in mobility. Hip mobility was severely impaired in most cases (15/17). Although konzo subjects showed normal muscle power in upper limbs (13/17), they had impaired fine motor function (10/17). CONCLUSION: Further studies are needed to assess the effectiveness of the WHO criteria for konzo in defining its forms. The applicability of the ICIDH-2 framework in this study demonstrates the possibility of its use as a common language among researchers in the field of motor disorders. However, a revision is suggested of its taxonomy, and a definition of operational criteria to clarify the content of different qualifiers provided to assess the level of functioning or disability.

Adolescent↗

Two year survival after malignant cerebral glioma: patient and relative reports of handicap, psychiatric symptoms and rehabilitation.

PURPOSE: To describe patient outcomes and contact with rehabilitation services two years after the diagnosis of malignant cerebral glioma. METHODS: A cross-sectional interview study of patients treated two years previously between 1990-1992 at six London hospitals. Twenty-two of 181 treated patients were found alive (12%). Fifteen were well enough to approach and 12 male patients (aged 28-60 years) and ten relatives (9 female, 1 male) could be seen by 1994. Semi-structured home interviews carried out separately with patients and relatives assessed return to previous work or activity, patient and relative reports of handicap, psychiatric symptoms, estimated percentage drop in verbal and non-verbal performance and contact with rehabilitation services. RESULTS: Using accounts of return to work or normal activity two years after treatment, five patients were classed as broadly 'active' and seven as 'inactive'. The 'active' group appeared to have few physical or cognitive problems or were able to adapt their work around these. Disagreement between patients and relatives about handicap, patient and relative psychiatric symptoms and severe neuropsychological deficit appeared to cluster in the 'inactive group'. No patient had been formally referred for rehabilitation. CONCLUSIONS: Patient outcome, in terms of managing work and everyday activities, can be very good for some two-year survivors. For others, patient and relative accounts and neuropsychological testing may disclose a range of problems. Such inquiry might suggest referral for rehabilitation or other support.

Activities of Daily Living↗

Interaural asymmetry of hearing loss, Speech, Spatial and Qualities of Hearing Scale (SSQ) disabilities, and handicap.

A series of comparative analyses is presented between a group with relatively similar degrees of hearing loss in each ear (n = 103: symmetry group) and one with dissimilar losses (n = 50: asymmetry group). Asymmetry was defined as an interaural difference of more than 10dB in hearing levels averaged over 0.5. 1, 2 and 4kHz. Comparison was focused on self-rated disabilities as reflected in responses on the Speech, Spatial and Qualities of Hearing Scale (SSQ). The connections between SSQ ratings and a global self-rating of handicap were also observed. The interrelationships among SSQ items for the two groups were analysed to determine how the SSQ behaves when applied to groups in whom binaural hearing is more (asymmetry) versus less compromised. As expected, spatial hearing is severely disabled in the group with asymmetry; this group is generally more disabled than the symmetry group across all SSQ domains. In the linkages with handicap, spatial hearing, especially in dynamic settings, was strongly represented in the asymmetry group, while all aspects of hearing were moderately to strongly represented in the symmetry group. Item intercorrelations showed that speech hearing is a relatively autonomous function for the symmetry group, whereas it is enmeshed with segregation, clarity and naturalness factors for the asymmetry group. Spatial functions were more independent of others in the asymmetry group. The SSQ shows promise in the assessment of outcomes in the case of bilateral versus unilateral amplification and/or implantation.

Aged↗

Adjustment of siblings of handicapped children: a comparison.

Compared 55 older siblings (ages 7 1/2 to 15 years) of young handicapped children (ages 1-7 years) with 55 matched siblings of nonhandicapped children. Results of standardized children's assessment scales show that siblings of handicapped children are comparable to siblings of nonhandicapped children in self-concept, behavior problems, and social competence. Differences, however, appear along certain psychological dimensions and great variations exist within each group of siblings. Further, demographic and personal attributes are differentially related to measures of adjustment in different groups of siblings. Implications for research and intervention are drawn.

Adaptation, Psychological↗

Object permanence development in infants with motor handicaps.

This study was an investigation of the effects of a motor handicap on the development of object permanence in the young child. Motor abilities were evaluated for 12 infants aged 13 to 29 months. Based on this evaluation, the children were described as manipulators or nonmanipulators in reference to their upper extremity skills. Their stage of object permanence was assessed using traditional and nontraditional assessments. Heart rate and visual tracking were recorded during the nontraditional assessment. Heart rate did not significantly relate to visual fixation or search response. There was, however, a significant difference (p less than .02) between stage achievement with traditional testing and age-appropriate levels. There was no significant difference between the nontraditional assessment and the age-appropriate levels. In addition, there was no significant difference in the development of object permanence between infants described as manipulators and those described as nonmanipulators. The last two findings suggest that infants with motor handicaps may develop object permanence at the expected ages, according to a nontraditional assessment.

Child, Preschool↗

Behavioral and postural changes observed with use of adaptive seating by clients with multiple handicaps.

Adaptive seating devices (ASDs) are used in the treatment of children with multiple handicaps. This longitudinal study evaluated, through direct observation and parent-guardian assessment, the behavioral changes seen with the use of ASDs and programming. Nineteen individuals with multiple handicaps and developmental disabilities, aged 1 to 6 years, participated as subjects. Data were collected by a trained observer from eight on-site evaluations and from parent-guardian responses to a preequipment and postequipment questionnaire. Evaluations were made every six weeks, starting about three months before and ending about six months after receiving the seating devices. The activities observed were head control, controlled sitting posture, visual tracking, reach, and grasp. Rating scale data were analyzed using an analysis of variance and a Friedman's test. Other data were analyzed descriptively for frequencies and central tendencies. Sitting posture, head control, and grasp improved significantly. Parent perceptions of the equipment indicated that the chairs freed parents from the need to provide support for their children's activities of daily living, which enabled them to participate in other activities with the children and around the home.

Adolescent↗

Margaret Holroyd Prize Essay. A patient-centred approach to evaluation and treatment in rheumatoid arthritis: the development of a clinical tool to measure patient-perceived handicap.

Assessment of patient-centered outcomes is of particular importance in a chronic disease such as rheumatoid arthritis (RA), where a major aim of treatment is a reduction of its disabling and handicapping effects. Rheumatology is reasonably well advanced in its deployment of such outcomes. Measurement of the patient's experience of disease has focused on the ability to perform daily living tasks and, latterly, on the more global effect on quality of life. Neither of these approaches is without conceptual and measurement problems. A new measure of patient-centred outcome in RA has been developed (Carr AJ, Br J Rheumatol 1994;33:378-82). This tool, the Disease Repercussion Profile (DRP), attempts to extend the measurement of outcome to incorporate the individual functional, social, psychological, emotional and economic disadvantage resulting from RA, i.e. patient-perceived handicap. It has been designed for use as a clinical tool, to allow patients to specify the problems and needs of most importance to them, and as such represents a new approach. This paper reviews the development of the DRP in the context of existing health status measures and examines its potential role as a routine measure in an out-patient setting.

Arthritis, Rheumatoid↗

A community-based study of childhood handicap in Oman.

This paper reports the findings of a preliminary survey carried out in an Omani community to assess the prevalence of handicap amongst children, and its impact on the family. The sample comprised of 492 children less than 15 years of age. The disabilities identified related to chromosomal abnormality, genetic, perinatal, and infectious factors. The presence of mental retardation, with associated social taboos, confounds the problem in Oman. The study showed that, although some handicapped children may be accepted within the family, there was a sense of shame and rejection vis-à-vis the community. The prevalence of 2 per cent is only the tip of the iceberg. The study defines the sociocultural aspects of the Omani society which are conducive to the perpetuation of this important health and social problem.

Adolescent↗

Comparison of the Community Integration Questionnaire, the Craig Handicap Assessment and Reporting Technique, and the Disability Rating Scale in traumatic brain injury.

OBJECTIVE: To examine the concurrent validity of the Community Integration Questionnaire (CIQ) in assessing outcomes in traumatic brain injury (TBI) by comparing it with two widely used and well-validated measurements of rehabilitation outcome. DESIGN: A retrospective relational study of the concurrent validity of the CIQ, Craig Handicap Assessment and Reporting Technique (CHART), and Disability Rating Scale (DRS). SETTING: A postacute rehabilitation facility. PARTICIPANTS: Seventy patients with a medical diagnosis of TBI admitted between April 1996 and October 1998 participated in the study. RESULTS: CIQ and CHART provide ratings that are similar in several areas to those provided by the DRS. Correlation (r) among total scores and subscales for all three instruments ranged from 0.021 to 0.671 (P <.01). Correlation between CIQ and CHART is stronger than that between CIQ and DRS or between CHART and DRS, and the correlation between CHART and DRS is stronger than that between CIQ and DRS. CONCLUSION: The CIQ appears to be the most appropriate instrument in quantifying rehabilitation outcome in patients with TBI at the participatory (handicap) level. The findings of this study can help clinicians gain a greater understanding of the nature, redundancy, and gaps among functional outcome measures. Monitoring outcomes can also help clinicians better understand the effectiveness of interventions.

Adolescent↗

Training pediatric residents in early intervention with handicapped children.

Pediatric residents gained experience in the management of disabled children in a four-session training component that linked the residency program and a school- and home-based early intervention program. Each resident worked with a disabled child's parents, a special education teacher, therapists, and others. The training emphasized working with parents and special education professionals to solve problems in the management of handicapped children and working with appropriate community agencies. The residents completed a questionnaire before and after the training that measured their perceptions of their knowledge and skill in several areas. At the completion of the rotation, they also rated their satisfaction with the training program. The results of these evaluations suggest that such a program is an effective method for introducing pediatric residents to issues concerning interventions with handicapped infants.

Child↗

"Without handicap": issues of medical schools and physically disabled students.

The Americans with Disabilities Act of 1990 requires that access to education not be denied simply on the basis of disability. The law requires definition of "basic qualifications" required of all applicants, "essential elements" of the curriculum, and whether accommodation would alter the "fundamental nature" of the learning experience or impose "undue burden." Medical schools have a very low proportion of physically disabled students, which the author argues is largely a result of schools' conception of the "undifferentiated graduate" as being capable of performing the history, physical examination, and any medical procedure without an intermediary. But the author maintains that medical students need not be unblemished physically; medical educators' obligation is to educate those students who are qualified to become physicians by virtue of intelligence, professional attitude, and ability to effectively interact and communicate. With respect to clinical training, it is important to consider whether personal, hands-on experience is required for adequate learning to occur. Because most physicians limit the scopes of their practices and do not perform all procedures, because those physicians who develop physical disabilities are not precluded from continuing in some forms of medical practice, and because technologic advances allow for the substitution of imaging and diagnostic testing for the more conventional approach to the physical examination, the requirement for hands-on capability becomes less compelling. Yet not every physically disabled applicant should be admitted to medical school, and those admitted require coaching, guidance, and career advice in order to succeed with their physical limitations. The author suggests that one of the seminal concepts of medical education, "without handicap," should be seen not as referring to the pre-existing physical status of students but instead as the obligation of educators to provide all their students with the broadest possible learning experiences so that they will be without the handicap of inadequate education when they proceed to their chosen fields.

Clinical Clerkship↗

The hearing handicap inventory for the elderly: a new tool.

This report describes the development and standardization of the Hearing Handicap Inventory for the Elderly (HHIE). This self-assessment tool is designed to assess the effects of hearing impairment on the emotional and social adjustment of elderly people. The inventory is comprised of two subscales: a 13-item subscale explores the emotional consequences of hearing impairment; a 12-item subscale explores both social and situational effects. The inventory was administered to 100 elderly subjects (mean age = 75 years) with hearing threshold levels in the better ear ranging from normal to severe. The reliability of the HHIE was evaluated by assessing its internal consistency through the computation of Chronbach's alpha. Alpha values ranged from 0.88 (social/situational subscale) to 0.95 for the entire inventory. Split-half reliabilities were equally high. The validity of the HHIE was not directly evaluated. Certain aspects of the data, however, support the construct validity of the instrument, while analysis of the questions themselves appears to attest to its content validity. Possible uses of the inventory were described and suggestions were made regarding future research on the instrument. The reliability and validity of the HHIE as well as its brevity, simplicity, and ease of administration and interpretation all recommend its use in assessing hearing handicap in the elderly.

Aged↗

Observer bias in the hearing testing of profoundly involved multiply handicapped children.

Observer bias was investigated using 27 profoundly involved multiply handicapped children and behavioral observation audiometry. Two observers were in the room with the child, two others viewed via a video monitor, and each of the four observers had full knowledge of stimulus-type and intensity. Two additional observers viewed a videotape without being provided information about the stimuli. Results showed clear bias effects in 85% of the children. At low intensities, observers aware of stimulus events tended to score fewer responses than those judges unaware of stimulus intensity. At high levels, this trend was reversed. It is recommended that the estimation of hearing threshold in handicapped children be made by observers who do not have access to the sequence of stimulus presentations.

Adolescent↗

Test-retest reliability of the Hearing Handicap Inventory for the Elderly.

The Hearing Handicap Inventory for the Elderly (HHIE) is a self-assessment tool, composed of emotional and social/situational subscales and designed to measure the perceived effects of hearing impairment in the noninstitutionalized elderly. Previous study has indicated that the HHIE has a high internal consistency, as well as high split-half reliability. The present study was undertaken to examine test-retest reliability associated with the HHIE, as the latter information is prerequisite to the application of the HHIE as a measure of change in perception of handicap which may result from audiologic intervention. Forty-seven noninstitutionalized elderly individuals with sensorineural hearing loss were sampled, using two measurement techniques: face-to-face (N = 20) and paper-and-pencil (N = 27) administration. Test-retest reliability was high for both the face-to-face and paper-and-pencil administration, suggesting that the HHIE has potential as a measure of change resulting from rehabilitation.

Aged↗