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[Reliability and validity of evaluation data collected by telephone].

OBJECTIVES: Follow-up telephone interviewing is an increasingly popular method of quality assurance and therapy evaluation in child and adolescent psychiatry. However, the reliability and validity of data gathered in telephone interviews has not been investigated sufficiently. The current article examines the quality of the information gathered from the parents of former inpatients of a hospital for child and adolescent psychiatry. METHODS: In a sample of n = 32 cases a telephone interview was carried out, followed by a personal interview two weeks later. Data from both interviews were analyzed for correlations between the ratings by parents and experts. RESULTS: The results from the telephone interviews indicate sufficient, respectively good reliability and underscore the validity of these data. CONCLUSIONS: On the basis of these results, the standardized telephone interview developed in our group and used in the study can be applied as a reliable and valid method of controlling for treatment success in follow-up investigations. As the interview does not entail any great expenditures, it can be used in routine quality assurance.

Adolescent↗

Impact of differential response rates on the quality of data collected in the CTS physician survey.

Survey administrators face trade-offs between expending additional survey resources to maximize response rates versus using fewer resources and accepting lower response rates. Using data from the Community Tracking Study's Physician Survey, we examined how survey estimates and data quality changed as additional respondents completed the survey. Results showed that improvements in response rates over the range examined (i.e., up to 65%) did not change estimates appreciably nor affect data quality. As long as these results are not overstated to imply that extremely low response rates are credible, this study may permit researchers to disseminate interesting results in peer-reviewed journals even when the response rate falls slightly short of current standards. It must also be emphasized, however, that we were unable to measure the nonresponse effect of those who were never interviewed. Achieving a response rate significantly above 65% might have changed the survey results appreciably.

Data Collection↗

Role of the general practitioner in data collection and cross matching.

Dental records used in identification procedures are most often obtained from the offices of general practitioners. The family dentist is required to provide accurate and well documented data to assist in the identification process. The forensic team participating in a mass disaster identification may also utilize the services of general practitioners. They play an active role in the oral autopsy, the oral radiographic procedure, and the identification process itself.

Data Collection↗

[Legal and ethical implications in the protection of data collected from electronic medical records and used for epidemiological statistics and surveillance: a situational analysis].

With the emergence of new information and communication technologies (NICT) in the daily practice of medicine, personal medical data have become exportable. Certainly, they represent an interesting source for epidemiologists who were often lacking complete data sets all the way through to morbidity data; but once these data leave the confines of the structure of a medical office, they must be protected in order to respect the fundamental ethical principles which form the basis of the doctor-patient relationship. Given the fact that medical data are not considered merchandise, there is the need to lead a process of reflection which aims to adapt the existing ethical rules and regulations to norms which conform to this new environment. There is also a need to compile a report on the overall European situation, and more specifically the French case.

Data Collection↗

The wider perinatal significance of the Australian in vitro fertilization data collection program.

The most recent report (1986) from the Australian Register of In Vitro Fertilization pregnancies comprises 2242 in vitro fertilization (IVF) pregnancies and 261 gamete intrafallopian transfer (GIFT) pregnancies. A review of this data base indicated that this population had a relatively high incidence of both obstetric and perinatal morbidity and perinatal mortality. About 58% of the IVF pregnancies resulted in live births and 36.4% of the infants weighted less than 2500 gm at birth. These high rates could be partially accounted for by maternal prepregnancy risk factors, such as age, and by risk factors associated with the infertility management, such as multiple pregnancy (22% of all pregnancies more than 20 weeks), which accounted for approximately 50% of the preterm births (less than 37 weeks). Singleton pregnancies also had a higher incidence of preterm birth (17.8% at gestational age 24 to 36 weeks), low-birthweight babies (15.9% less than 2500 g) and perinatal mortality rates (35.4% per 1000 live births) than the Australian population at large. This warrants these patients being regarded as high risk. It is reassuring that the incidence of major malformations in IVF births (2.2%) is similar to that in the general population (1.4%).

Australia↗