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Federal health information clearinghouses.

This is an overview of the Federal government's support of health information clearinghouses--why they were initiated, their purpose, problems, and impact. Federal clearinghouses emerged in the 1960s to identify, organize, and provide access to a substantive body of information. As a support service to their sponsoring agencies, and often the only source for "fugitive" information, they constantly change to meet program priorities and facilitate the flow of information to multilevel audiences. In addition, the increasing complexity and quantity of information has intensified the need for organizing resources into coherent, manageable form. As a primary source for unbiased health information, clearinghouses strive to present a balanced view of research issues and treatment modalities. They provide inexpensive access to reliable health information, especially publicly funded research and information for the public good, and play an important role in meeting the nation's health objectives.

Government↗

The Mutual Assistance Programme of the IUATLD. Development, contribution and significance.

The Mutual Assistance Programme of the IUATLD is aimed at trying to compensate for the neglect into which tuberculosis had fallen from the part of governments, teaching institutions and international agencies, and represents an innovative approach to promote solidarity between governments and voluntary organizations of low tuberculosis prevalence countries and those of high prevalence countries. The main objective has been to develop a system of delivery of treatment and diagnosis of tuberculosis that would be efficacious even under the difficult conditions of high prevalence of tuberculosis, low resources and/or socio-political disturbances. The system turned out not only to be efficacious in terms of cure rates and epidemiological impact but also to be efficient in terms of cost/benefit. The National Tuberculosis Programme's approach includes the application of short-course chemotherapy, the regular provision of drugs and products, a system of registers, forms and periodic reports, the assessment of the yield of case-finding and, most important of all, the analysis of the therapeutic results in successive cohorts of patients. Cure rates repeatedly reach around 85% in new cases and approximately 80% in retreatment cases, nationwide, in the countries where such programmes have been successively implemented. Each national programme has an important role of training and of capacity building. While serving the populations, the national programmes also provide the framework for relatively inexpensive operational research and, finally, the careful collection of data represents a basis--unique of its kind in the world--for the study of the clinical and epidemiological relationships between tuberculosis and HIV. The method has been endorsed by the WHO and has the support of the World Bank, the United Nations Development Plan and the main government Agencies for Development Cooperation. It is part of the new Global Strategy against Tuberculosis which is presently being developed under the WHO TB Unit. The other aspects of Mutual Assistance concern courses, consultation to programmes not directly sponsored by the IUATLD and publications.

Charities↗

Do contraceptive prices affect demand?

Government-sponsored family planning services in developing countries have traditionally provided free contraceptives to couples who choose to contracept. The advisability of and need for such extensive subsidization is brought into question in this article, based on studies that have compared free and fee-for-service family planning programs. Little difference in demand exists between free and moderately priced services. The importance of price in determining family planning demand is also explored through studies of demand shifts in response to changes in contraceptive prices. Contraceptive price increases in established programs have generally had a minimal effect on utilization. Price reductions in established programs, however, have led to increases in contraceptive demand. These findings suggest that moderate fees can be imposed for family planning services without affecting demand; however, full cost recovery may pose a deterrent to low- and moderate-income couples.

Contraception↗

Charting the NCIC's future: stakeholder support for identified options.

The National Cancer Institute of Canada (NCIC) conducted a survey of representatives of its stakeholder populations (members of the cancer research and control communities, past and present NCIC grantees, senior administrators in academic institutions, NCIC governing committee representatives and major partners) to get input on proposals to restructure the NCIC's research programs. The survey results demonstrate support for changes that are likely to significantly alter how the NCIC operates as well as the programs it sponsors. The results suggest support for increasing the percentage of NCIC funds allocated to the Individual Operating Grants area and for changing the NCIC's programs and operating procedures. While there was widespread support for an NCIC-sponsored regional development initiative, many issues remain unresolved, such as what type of cancer research to develop within the provinces.

Academies and Institutes↗

The health effects of ionizing radiation: a survey of local health officials in New England and New York.

The purpose of the study is to determine the educational needs of public health officials concerning their knowledge, attitude, beliefs, and practices with specific reference to ionizing radiation. The public health directors or designates, working in health departments whose jurisdictions fall within a 60-mile radius of the 14 operating nuclear power plants in the New York-New England region, were studied. A review of the literature indicates that historically there appears to have been a limited effort to conduct such a needs assessment in the United States. A questionnaire was developed to measure the public health directors' knowledge, attitudes, and practice. The instrument was mailed in the summer of 1992 to all public officials listed in the National Directory of Local Health Departments. Knowledge, attitude, and practice questions were analyzed in terms of frequency of correct, incorrect, and don't know responses. The data presented convey the message that there should be public input into the risk assessment of nuclear plants and that local health departments should inform the public about the health risks posed by nuclear plants in their locality. The authors recommend that an appropriate Federal agency sponsor a national survey and that States should establish a training program on the health effects of ionizing radiation for local public health officials.

Government Agencies↗

Clinical research units for the treatment of patients with HIV disease: operational issues and components needed to conduct clinical trials.

Clinical trials are of paramount importance for the development and evaluation of new therapies for patients with human immunodeficiency virus (HIV) disease. The objective of an HIV clinical research unit is to conduct high quality clinical research with patients who have HIV disease. The conduct of these research studies requires accurate and complete data collection. Coordination of the patients' primary care must be complemented by a working knowledge of the relevant ethical issues. In addition, technical, managerial, and clinical expertise is needed for conducting the trials and collecting data. To accurately plan the research, personnel and resource allocation should be periodically assessed. Clinicians, particularly those who have not previously conducted clinical trials or who are considering the incorporation of a research program into a primary care setting, must be familiar with these issues in order to create and supervise this type of clinical research unit. A smoothly running clinic observing a defined cohort of patients is attractive to government agencies and pharmaceutical sponsors for funding of clinical trials and research projects.

Clinical Protocols↗

The public sector and mental health parity: time for inclusion.

BACKGROUND: In the United States, there is an uneasy division of responsibility for financing mental health care. For most illnesses, employer-sponsored health insurance and the large federal health insurance programs (Medicare, Medicaid) cover the costs of care. However, most employer-sponsored plans and Medicare provide only limited coverage for treatment of mental illness. A possible cause and result of this limited coverage in mental health is that states, and in some cases local (county) governments, finance a separate system of mental health care. This separate "public mental health system" provides a "safety net" of care for indigent individuals needing mental health care. However, there are potential negative consequences of maintaining separate systems. Continuity of treatment between systems may be impaired, and costs may be higher due to duplicate administrative costs. Maintaining a separate system managed by government may exacerbate the stigma associated with mental illness treatment. Most significantly, since eligibility for care may be linked to poverty status, and since having a serious mental illness may preclude regaining private coverage, maintaining a separate system may contribute to the poverty rate among persons with mental illnesses. AIMS OF THE PAPER: These potential problems have not been widely considered, perhaps because other problems and controversies in mental health care have captured our attention. In particular, controversies over deinstitutionalization in mental health have dominated the policy debate, especially when linked to related problems. These have included conflicts over authority and financial responsibility among federal, state and local governments, sensationalized media coverage of incidents involving people with mental illness, problems with siting community facilities, concern about mental illness among prisoners and the like. However, with the substantial reform of public mental health care in some states and localities, it is now possible to consider the implications of public and private integration. This paper considers such an approach. METHODS: This paper addresses the question of public and private integration, considering the state of Ohio as a case study. Ohio is a large state (population 11.2 million) and shares demographic, cultural and political characteristics with many other states. Ohio's successful experience implementing community mental health reform makes it a good candidate to use in evaluating issues in the potential integration of insurance-paid and public mental health care. RESULTS: The analysis indicates that the resources now used in Ohio's public system may be sufficient to support insurance financing of inpatient and ambulatory mental health treatment (the types of health care usually paid by insurance) while maintaining supportive services (e.g. housing, crisis care) as a residual safety net. DISCUSSION: At the current time, these resources are in state and local mental health budgets, and in the Medicaid program that finances health care for low income and disabled individuals. The analysis indicates that the aggregate level of resources expended on inpatient and ambulatory mental health treatment are substantially greater than expenditures for such care in an insurance plan for Ohio State employees. A substantial limitation of the analysis is that it is not possible to compare the need for care in a relatively healthy employed population versus a poor and disabled population. CONCLUSION: The paper concludes that there are substantial structural, economic and social problems associated with the "two-tiered" system of commercial/employer-paid insurance and public mental health care in the United States. Examining data from one state's public system, the paper further concludes that it might be feasible to finance a single system of acute and ambulatory mental health benefits, if public resources were redeployed and private contributions were continued. IMPLICATIONS FOR POLICY AND RESEARCH: Given the substantial problems associated with the two-tiered American approach to mental health care, further consideration and analyses of the feasibility of public and private integration are suggested. Given the complexity of this effort, much more sophisticated analysis is needed. However, given the possibility that sufficient resources may now be available to accomplish integration, further work is suggested.

Journal Article↗

Research programs of the National Heart, Lung, and Blood Institute. Bethesda, Maryland, U.S.A.

While the NHLBI is authorized and funded by the United States government, the Institute recognizes that advances in the science related to the prevention, diagnosis, and treatment of cardiovascular, lung, and blood diseases and to the management and development of blood resources can be achieved most effectively through active participation in the international research enterprise. Through its policy of encouraging rapid publication and dissemination of the results of the research it sponsors and conducts, the Institute manifests its commitment to insuring that the associated public health benefits are shared as widely as possible. In addition to numerous informal contacts and exchanges of information the NHLBI actively pursues and participates in an extensive international network of collaborative arrangements. The Institute has established formal cooperative programs with 15 nations that span 5 continents, and participates in cooperative activities with another six. The benefits of such efforts are clear to the NHLBI and we hope to its partners as well. It is not just that international cooperation enables us to identify those aspects of the development of cardiovascular, lung, and blood diseases that are influenced by diet and culture and those that are not. Through continued international cooperation duplicative efforts can be avoided thereby effectively expanding the resources available to support the research that will reduce the international burden imposed by diseases of the heart, blood vessels, lung, and blood.

Acquired Immunodeficiency Syndrome↗

Agency-Community Partnership in Landcare: Lessons for State-Sponsored Citizen Resource Management

/ With over 2500 Australian Landcare groups, 65,000 volunteer members, and considerable evidence of program impact, Landcare is an important example of state-sponsored rural development in a developed nation. The agency-community partnership is a fundamental element of Landcare and getting the partnership right is vital to long-term program success. After reviewing the emergence of Landcare in the state of Victoria, the author reports research from a 1995 survey of Victorian Landcare groups. Survey information highlighted the extent of agency-group contact, the important roles agency staff played in many Landcare groups, and the positive impact of agency contact and government funding upon group activity. Large majorities of groups reported they were satisfied with their relationship with agency staff. However, a majority of groups reported money or materials provided to manage land and water degradation was inadequate. Recently proposed changes to the Landcare program will provide government funding of work on private property and may address this concern. A majority of groups also reported support for leadership and management training was inadequate and respondents emphasized the need to revise program guidelines that limit funding for group coordinators. This information highlighted the importance of articulating a practical model of community participation in Australia and adopting a systematic approach to providing agency support for Landcare groups. Reflecting upon the Landcare experience, the author suggests some of the key elements of a practical model of state-sponsored citizen resource management contributing to rural development.KEY WORDS: Landcare; Australia; Community participation; Rural development; Citizen resource management; Sustainable agriculture

Journal Article↗

Shining lights: studies that have most influenced the understanding of health promotion's financial impact.

PURPOSE: To examine the literature from the past 20 years and identify those studies that support the economic merit of health promotion. DATA SOURCE: A panel of experts was used to identify the top studies supporting the purpose of this article. STUDY INCLUSION AND EXCLUSION CRITERIA: Studies were chosen based on the following criteria: the study (1) examined the relationship between health risks and financial outcomes, or health promotion programs and financial outcomes; (2) provided strong and compelling financial data supporting the worth of health promotion; (3) had a high-quality methodology; (4) answered an important question or replicated important findings with superior methodology; and (5) represented U.S.-based initiatives published since 1980. After initially nominating a group of studies for consideration, panelists rated each on a scale from 1 to 3 representing their opinion of importance. Studies rating the highest were included for this discussion. DATA EXTRACTION METHODS: Studies were analyzed by population characteristics, design, statistical tests, limitations, and results. This information was summarized for each identified article. MAJOR CONCLUSIONS: A relationship between modifiable health risk factors and health care costs is supported by research. Health promotion interventions appear to provide positive financial returns, most notably for health care costs and absenteeism reduction. Private sector initiatives seem to be driving economic-based research. Overall, health promotion shows promising results for providing financial advantages for its sponsors; however, if this discipline is to show its true worth, considerable funding is needed from government or philanthropic sources to cover the substantial costs of quality research.

Cost-Benefit Analysis↗

[Infrastructure of cancer clinical trial cooperative groups in western countries].

Efforts for international harmonization have made it clear that Japan is far behind in Western countries in all aspects of infrastructure for clinical trials. The introduction of ICH-GCP, 1998, has promoted the rapid growth of infrastructure for investigational new drug (IND) trials; however, the infrastructure for academic cancer trials has shown no remarkable progress. There is still no governmental regulation, no agency for quality control, and no quality assurance audit system even in government-sponsored trials. The author introduces the quality control systems in cooperative groups in Western countries, such as the Southwest Oncology Group (SWOG), National Surgical Adjuvant Breast and Bowel Project (NSABP) and European Organization for Research and Treatment of Cancer (EORTC), and the quality assurance systems by the National Cancer Institute-Cancer Therapy Evaluation Program (NCI-CTEP). Key activities for quality control in cooperative groups are in-house monitoring, site visit audits, institutional performance evaluations and case report form review by study coordinators. NCI-CTEP oversees cooperative group activities through protocol review, supervision of site visit audits and a monitoring committee. Cancer cooperative groups in Western countries have taken the initiatives in advancement of trial methodology and establishment of clinical trial infrastructure. In order to improve the quality of clinical trials, there is need to invest cancer cooperative groups, thus strengthening the activities for overall clinical trials.

Clinical Trials as Topic↗

Crash of the immunization program: consequences of a totalitarian approach.

India's Universal Immunization Program, which was to cover a population of more than 90 million pregnant mothers and 83 million infants living in more than 575,000 villages during 1986-90, has failed dismally. The coverage has been less than one-fifth of the requirement in more than half of the population. The situation in most third world countries, which have even weaker political clout and weaker health service infrastructures, is even more catastrophic. From a purely public health standpoint, the disaster was inevitable. No efforts were made even to define the problem of the six immunizable diseases; there was no question of understanding their natural history; the efficacy of the vaccines used was not well-known; the cold chain, which is meant to retain the potency of the vaccines at the time of inoculation, frequently broke down; there was confusion about the dosage; and even where the program is most successful, ecological conditions will erode much of the benefits from immunization. That such a technocentric program was imposed on the peoples of the third world by their governments was bad enough; even more frightening is that these countries were persuaded to follow the line developed in affluent countries by influential agencies such as UNICEF, WHO, the World Bank, the Rockefeller Foundation, and Rotary International. This is an awe-inspiring manifestation of the power of the affluent countries to impose their will on the weak and helpless peoples of the world. It is a bitter irony that UNICEF and WHO, which sponsored the famous global conference at Alma-Ata, should have lent their weight to a program that is the very antithesis of the Declaration. To embark on such a venture, the exponents had to ignore weighty scientific evidence that raised serious doubts about the program. They had to stoop to suppression of information, disinformation, and distortion of information. What is even worse, efforts will be made to erase this experience from memory, and similar efforts will again be made to launch such ill-conceived programs in the name of the welfare of the oppressed peoples of the world. Scholars who have concern for the oppressed must remain vigilant.

Female↗

A genome-wide linkage analysis investigating the determinants of blood pressure in whites and African Americans.

Evidence for genomic regions influencing systolic and diastolic blood pressure (BP) were assessed in a whole genome linkage analysis in 211 African American and 160 white families as part of the GenNet network of the National Heart, Lung and Blood Institute-sponsored Family Blood Pressure Program. Multipoint regression and variance components linkage methods were used to analyze 372 polymorphic markers. Statistically compelling evidence for linkage (P values .0057 and .00023, respectively) was found on chromosome 1. Our results support the idea that BP regulation is most likely governed by multiple genetic loci, each with a relatively weak effect on BP in the population at large.

Adult↗

Universal healthcare: a bold proposal.

One problem with the American health-care system today is not that it's too expensive but that it's too wasteful. The amount spent on health-care in the United States is sufficient to take care of the medical needs of every citizen. The reason that it does not is that the money is far too often is misspent. America already is spending 14% of the gross domestic product and yet we have health-care chaos and 44 million uninsured. Another problem is the lack of trust between payors, insurance carriers, regulators, employers, employees, providers, and patients. Although the financing aspect of health-care is tremendously important, it is even more important to design a plan to spend the money wisely, align the incentives of insurers, payors, patients, and providers, and restore trust between parties. Otherwise we shall continue to be in chaos regardless of how much money we spend on health-care. In this article, we outline our proposal for an ideal comprehensive national health-care plan that will guarantee that we spend our health-care dollars wisely. Our plan would cover all Americans, including the 44 million uninsured, and it would do so at less than the cost of the current system. Because insurance companies are not equipped to oversee medical practice, our plan would place the day-to-day management of the health-care system in the hands of physicians and local physician-run, physician-owned "provider groups." The physicians in these provider groups would be charged with two primary responsibilities: 1) clinically, they would be responsible for providing total quality cradle-to-grave health-care for every patient in their group and 2) economically, they would be responsible for the budget and to spend it wisely. Physicians will be compensated fee-for-service plus an incentive for efficiency, patient satisfaction, and outcome in a broad sense. Physicians would enjoy wide latitude in clinical decision-making without being second-guessed by distant third parties. Our plan places the fiscal responsibility on physicians while at the same time establishing a system of checks and balances to ensure that patients are protected and well cared for. Unlike outwardly similar plans, under this proposal the physicians are owners of the provider groups and the incentives between payors, insurers, providers, and patients are better aligned. It will eliminate the debate about giving patients the right to sue health plans and employers. It would empower large legally organized physician groups to negotiate with insurers. Our plan is a model for spending money wisely. We believe it would benefit, and therefore be embraced, by all parties--physicians, other healthcare providers, employers, insurance companies, the government, and above all the American public.

Budgets↗

Citizen participation and health care: problems of government induced participation.

In this paper we trace the implications of some common contradictions in government-inspired efforts to increase citizen participation in health care delivery. We cover general problems of generating citizen participation, specific difficulties in community organization resulting when issues of health are the organizing focus, and the benefits that were thought to result from efforts to increase citizen participation in social programs in the 1960's. When programs focused on increased citizen participation were initiated program administrators attempted to maximize citizen involvement quickly by: projecting an image of maximal social impact; minimizing or ignoring questions of long-term fiscal uncertainty; projecting an image of maximal control by citizens; and projecting images of institutional solidarity and of experimentation and innovation. They tended to recruit to the staff social activists taken to be representative of the community (although they might not be), promising opportunities for upward mobility. They also tended to adopt conciliatory administrative styles in keeping with their experimental non-elitist orientations. These tendencies characteristic of the initiation phase of projects conflicted with the demands placed upon programs in later phases of program implementation. These demands resulted from later perceived needs to: evaluate programs; limit spending; counter internal organizational opposition; and respond to sponsors' shifting interests. Paraprofessionals recruited to the staff tended to lose their "community" orientation, and administrative style tended to focus considerably more on program accountability. These shifting program demands substantially account for what otherwise appears to be the failure of efforts to increase citizens' participation in health delivery programs, and, by extension, in other areas where the impetus for increased citizen participation comes from government initiatives.

Community Health Services↗

Student healthcare delivery and financing programs: adapting to healthcare reform.

College health professionals want to assure the unique healthcare and health education needs of college students will continue to be met under national and state healthcare reform. This may be an "all or nothing" proposition. Either colleges and universities will have exclusive control of healthcare delivery for the college student population or else college health will not be a major force in healthcare reform. If college health is to play a meaningful role in future government-controlled health insurance programs, it must first demonstrate that current health services and insurance financing programs meet minimum quality standards. This proposal calls for expanding existing federal laws to create qualified student health plans and integrating the college health model into a reform package based on employer-sponsored health insurance. The concept of qualified student health plans allows for a high degree of flexibility that can be integrated into the majority of state and federal healthcare reform proposals, including the plan proposed by President Clinton, that are not based on a single-payer system. Ultimately, the authors suggest, their proposed plan would eliminate the current situation, in which large numbers of college students are uninsured or underinsured.

Adolescent↗

Medicare and state health care programs; fraud and abuse: OIG civil money penalties under the Medicare prescription drug discount card program. Interim final rule with comment period.

In accordance with section 1860D-31 of the Social Security Act, this rule sets forth the OIG's new authority for imposing civil money penalties (CMPs) against endorsed sponsors under the Medicare prescription drug discount card program that knowingly engage in false or misleading marketing practices; overcharge program enrollees; or misuse transitional assistance funds.

Centers for Medicare and Medicaid Services, U.S.↗

The Food and Agriculture Organization food-composition initiative.

The 1992 International Conference on Nutrition, new legislation in developing countries, and international trade agreements have renewed interest in food-composition data. Because of the costs involved in gathering such information and the need for it to be uniform, collaborative efforts are required. The production of new food-composition data must be viewed with respect to value gained for money spent, the need for more precise information, and the opportunity to use new analytic methods while not depending too heavily on high-technology systems. The Food and Agriculture Organization and the United Nations University have agreed to collaborate in stimulating the development of new food-composition programs. Their efforts will be directed toward promoting national, regional, and international activities in the food-composition field and will include strengthening existing laboratory facilities and programs, publishing technical manuals and documents, assisting countries to disseminate data, training workers, and sponsoring regional workshops. The Food and Agriculture Organization is well positioned to fulfill this coordinating role because of its past work in food composition, international mandates regarding its activities, its established communication system with national governments, and its ability to provide open forums for discussion of food-composition issues.

Food Analysis↗