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Why a system awarded as "MIE '99 Best Paper" failed to be used and hence to affect patient's health?

OBJECTIVE: The failure of a promising system is described with the aim of identifying the errors and the unfavourable conditions that led to such a result. METHODS: The system, based on the AHCPR guideline for pressure ulcers prevention and integrated into the already existing clinical information system, is aimed at supporting nurse's activities for: the risk assessment of the inpatient at the beginning of the hospitalization; the prevention plan, customized to each specific patient; the work plan for each day for all the patients; the report of the non-compliances to the GL and of the workload of the nurses. RESULTS: The system was abandoned after a short period. The reported reasons for the abandonment were: too strict constraints in the work-plan and the mandatory updating of the tasks at the end of each shift (both executed and not); the double writing activity, on paper first and afterward on the workstation. The first complaint was almost unrecoverable and not related to the system from the implementation point of view. Portable notebooks and wireless connections to the LAN could have been a solution for the second problem. Simultaneously a portable device at the bed side could have benefited many other features of the clinical information system. We proposed to quantify the added value, if any, due to making the information system available as close as possible to the points on the wards where information are both generated and used. The proposal was rejected. CONCLUSIONS: In our experience in a hospital setting, closing the gap among the medical informatics minority, the health professionals and the hospital management, through their collaborative responsibilities and participation in the decision-making process, can make the difference between the success and the failure of a good computer-based solution.

Awards and Prizes↗

Issues in the design of medical ontologies used for knowledge sharing.

Recent work in Medical Informatics is exploring the development and the use of formal ontologies as a way of specifying content-specific agreements for the sharing and reuse of knowledge among several computer systems. We describe the role of ontologies in supporting knowledge sharing activities in medicine Principles for the design of ontologies have been proposed, mainly in other domains: these principles include parsimony, clarity, representation of categories versus terms, and coherence. We analyze how and why these principles can or cannot be applied from case studies from medical systems. Regarding the fact that most of medical concepts are empirical, selected design decisions are discussed. An alternative representation choice consists in mapping principled general core ontologies and domain ontologies.

Computer Systems↗

Formal descriptions and adaptive mechanisms for changes in controlled medical vocabularies.

Standard controlled medical vocabularies are typically based on a coding scheme, while medical informatics applications tend to have a more formal conceptual foundation. When such applications attempt to use data coded with standard vocabularies, problems can arise when the standard vocabulary changes over time. A formal taxonomy is presented for describing the semantic changes which can occur in a vocabulary, such as simple addition, refinement, precoordination, disambiguation, redundancy, obsolescence, discovered redundancy, major name changes, minor name changes, code reuse, and changed codes. The taxonomy is described that used to effect change in one concept-based vocabulary (the Medical Entities Dictionary), and the utility of the approach is demonstrated by applying it to the changes appearing in the 1994 release of the International Classification of Diseases, Ninth Edition, with Clinical Modifications (ICD-9-CM).

Classification↗

Coordinating care across diseases, settings, and clinicians: a key role for the generalist in practice.

Coordinated care is a defining principle of primary care, but it is becoming increasingly difficult to provide as the health care delivery system in the United States becomes more complex. To guide recommendations for research and practice, the evidence about implementation of coordinated care and its benefits must be considered. On the basis of review of the published literature this article makes recommendations concerning needs for a better-developed evidence base to substantiate the value of care coordination, generalist practices to be the hub of care coordination for most patients, improved communication among clinicians, a team approach to achieve coordination, integration of patients and families as partners, and incorporation of medical informatics. Although coordination of care is central to generalist practice, it requires far more effort than physicians alone can deliver. To make policy recommendations, further work is needed to identify essential elements of care coordination and prove its effectiveness at improving health outcomes.

Interprofessional Relations↗

Developing an interaction-centered evaluation tool for distance education.

Web-based distance instruction is growing in popularity. As more courses and programs go online, instructional methods and technologies are changing to meet new demands. These courses and instructional methods need be evaluated to determine their quality and to aid in their development. An instrument that measures the quality of student interaction within courses could play a useful role in this evaluation. The objective of this project was to produce an interaction-centered evaluation tool for distance education. We developed items for the evaluation tool based on a review of the literature and interviews with distance education faculty. We then conducted a measurement study to determine the instrument's validity and reliability. Fifty-five students in seven medical informatics courses participated in this study. Questionnaire items were included or rejected based on their fit with underlying theoretical constructs. In conclusion, the Web-based evaluation tool developed in this project measures student perception of quality of course interactions with demonstrated validity and reliability.

Computer-Assisted Instruction↗

Telemedicine in the context of different medical specialities. The Polish perspective.

UNLABELLED: Two types of telemedicine are considered in the paper: pre-recorded and real-time. The advantages and disadvantages of each type are described.The choice of telemedicine type depends on medical speciality. The separate branch of telemedicine--teleprevention of civilization diseases is discussed and examples of relevant WWW services in Poland are given. The own work examples of the Dept. of Medical Informatics, MUW, namely Onco-service of 200 protocols used in hematology and oncology and Cardio.net--a distributed teleinformation system for cardiology, are presented. IN CONCLUSION: the barriers of the development of telemedicine in Poland are caused by the organization of health service--Patients Funds using different software, no messaging standards and different reimbursement systems.

Humans↗

The decline and fall of Esperanto: lessons for standards committees.

In 1887, Polish physician Ludovic Zamenhof introduced Esperanto, a simple, easy-to-learn planned language. His goal was to erase communication barriers between ethnic groups by providing them with a politically neutral, culturally free standard language. His ideas received both praise and condemnation from the leaders of his time. Interest in Esperanto peaked in the 1970s but has since faded somewhat. Despite the logical concept and intellectual appeal of a standard language, Esperanto has not evolved into a dominant worldwide language. Instead, English, with all its idiosyncrasies, is closest to an international lingua franca. Like Zamenhof, standards committees in medical informatics have recognized communication chaos and have tried to establish working models, with mixed results. In some cases, previously shunned proprietary systems have become the standard. A proposed standard, no matter how simple, logical, and well designed, may have difficulty displacing an imperfect but functional "real life" system.

History, 19th Century↗

Use of patient education and monitoring software in community pharmacies.

OBJECTIVE: To determine the level of use of health education and monitoring software programs in independent community pharmacies in rural locales. DESIGN: The use of seven software programs that deliver patient education and provide blood pressure monitoring was assessed at five sites of the Nebraska Drug Information Network (NDIN) for one month. Direct Access, a Windows-based software program, documented which programs were accessed and for what time period. RESULTS: During a one-month period, 326 accesses were logged representing 44 hours of computer time. Extrapolated to all 30 sites of NDIN, this represents 264 hours and 1,956 accesses monthly. On average, each pharmacy logged 8.8 hours within 65 accesses each month. Each access averaged 8 minutes. DynaPulse (167 accesses; 16.4 hours) was the most frequently used product, followed by Home Medical Advisor Pro (54 accesses; 8.9 hours) and Mayo Clinic The Family Pharmacist (35 accesses; 8.3 hours). The least amount of time was spent with BodyWorks (0.6 hours) but Wellness Checkpoint had fewest accesses (7 accesses). CONCLUSION: Applied medical informatics is assuming a larger role in daily clinical practice as pharmacy practitioners strive to better inform their patients. This is congruent with the finding that a better informed public can be a healthier public. This study demonstrates that computer systems are readily used by patients and pharmacists in rural communities.

Adult↗

Then and now and when.

Since the 1970s, it has been clear that the health community needs to develop a health care system that matches a person's needs with the expertise and technology to address those needs. The logical solution is a multi-tiered system. In such a system, physicians would provide second- and third-tier services and other health professionals would provide first- and second-tier services. Medical informatics should take on the challenge of supporting the decision to triage patients from one tier of service to another. Triage decisions are different from other decisions in health sciences because they take place early in the life of a problem, when little information is available, and can be made safely if adjusted to tolerate erring on the side of referral.

Delivery of Health Care↗

Communication and information needs and barriers: an international collaboration model.

This future vision paper describes the emerging issue of multicultural medical informatics teams. In an increasingly networked healthcare environment, the rise of global teams has come to the forefront, calling for an increased understanding of various cultural norms. Team members may reside in other countries and be known to others only virtually. Concomitantly, the team dynamics of physically present members may be impacted by international factors such as culture of origin.

Communication↗

Evolution of a cardiovascular information system.

The competitive nature of our evolving health care system mandates a concomitant increase in the level of sophistication of the cardiovascular information system. The new paradigms in health care also mandate a re-engineering of the process of data collection and analysis. This paper deals with a variety of hardware, software, and human issues encountered at our institution. Topics covered include implementation of service line management, utilization of an interdisciplinary medical informatics model, database conversion, and application development. Special attention will be paid to the development of a system which is a comprehensive information system for clinical and financial management of the cardiovascular patient, not just a quality-of-care database.

Cardiology Service, Hospital↗

A prognostic model for temporal courses that combines temporal abstraction and case-based reasoning.

Since clinical management of patients and clinical research are essentially time-oriented endeavours, reasoning about time has recently become a hot topic in medical informatics. Here we present a method for prognosis of temporal courses, which combines temporal abstractions with Case-based Reasoning. We have applied our method in two programs. The first one deals with multiparametric time course prognosis of the kidney function. The intention of the second program is to compute early warnings against approaching infectious diseases like influenza.

Disease Progression↗

Automatic diagnosis classification of patient discharge letters.

CAIRN (Computer Assisted Medical Information Resource Navigation) is a prototyping System that allows flexible medical data storage and retrieval supporting medical informatics research. In this paper methods that automate the selection of ICD-9 diagnosis (International Classification of Diseases and Diagnoses, 9th Revision) are investigated. We present the Text Data Mining module extension of CAIRN and its application in order to organize in a systematic way uncontrolled terms, to propose relationships between uncontrolled terms and finally aid the diagnosis classification.

Disease↗

Open-source toolkit for simple XML annotation.

Use of Extensible Markup Language (XML) is increasingly prevalent among medical informatics projects. Many of these projects involve, at some point, the interaction between a researcher and specialized XML documents for the purpose of annotating the XML data. We offer a simple toolkit to assist these researchers. Our solution is a simple, yet fully functional, annotation system that can easily be adapted to the needs of the researcher. All of the materials for this toolkit are freely available.

Algorithms↗

Context-based ontology building support in clinical domains using formal concept analysis.

OBJECTIVE: Ontology in clinical domains is becoming a core research field in the realm of medical informatics. The objective of this study is to explore the potential role of formal concept analysis (FCA) in a context-based ontology building support in a clinical domain (e.g. cardiovascular medicine here). METHODOLOGY: We developed an ontology building support system that integrated an FCA module with a natural language processing (NLP) module. The user interface of the system was developed as a Protégé-2000 JAVA tab plug-in. A collection of 368 textual discharge summaries and a standard dictionary of Japanese diagnostic terms (MEDIS ver2.0) were used as the main knowledge sources. A preliminary evaluation was taken to show the usefulness of the system. RESULTS: Stability was shown on the MEDIS-based medical concept extraction with high precision. 73+/-14% (mean+/-S.D.) of the compound medical phrases extracted were sufficiently meaningful to form a medical concept from a clinical perspective. Also, 57.7% of attribute implication pairs (i.e. medical concept pairs) extracted were identified as positive from a clinical perspective. CONCLUSION: Under the framework of our ontology building support system using FCA, the clinical experts could reach a mass of both linguistic information and context-based knowledge that was demonstrated as useful to support their ontology building tasks.

Decision Support Systems, Clinical↗

On parts and holes: the spatial structure of the human body.

Spatial representation and reasoning is a central component of medical informatics. The spatial concepts most often used in medicine are not the quantitative, point-based concepts of classical geometry, but rather qualitative relations among extended objects such as body parts. A mereotopology is a formal theory of qualitative spatial relations, such as parthood and connection. This paper considers how an extension of mereotopology which includes also location relations can be used to represent and reason about the spatial structure of the human body.

Anatomy↗

Future programs at the National Library of Medicine.

The future of the National Library of Medicine will be shaped by a number of scientific, technical, and social influences. Among these are the continuing rapid development of computer technology and storage systems. Artificial intelligence techniques, factual databases, the emergence of medical informatics as a formal discipline, and the development of Integrated Academic Information Management Systems (IAIMS) are also important influences on the direction of the library. Public policy issues will influence the future of NLM--among them, sharing of scientific information between nations and the role of federal agencies in dissemination of information domestically. The formal, long-range plan now being prepared for the library by panels of expert advisers will be a guide for future programs and goals.

Artificial Intelligence↗