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[Are new data collection systems needed to achieve public health and research goals for the prevention of suicide?].

Evaluation of suicide prevention programs, both on the local and national level, is a methodological challenge. In September 2000, France initiated a nation program for suicide prevention. But, as was noted in the Prémutan report and more recently the FNORS report, very few of the hundreds of preventive measures taken annually are evaluated. In addition to this assessment challenge, new data, particularly concerning the different phases of the suicide process, are needed to design new programs, define their objectives with precision, and assure their implementation. For example, if the objective is to improve prevention in men aged 25-54 years who suffer from a state of depression, alcohol abuse, impulsive personality disorders, and life events implicating loss, the necessary information is currently unavailable or sparse. The lack of data and research in this domain can be grouped into several categories: lack of proper definition and quantification of the objectives; insufficient study of the mechanisms by which prevention measures are effective: lack of monitoring tools providing information on the rate of implementation of planned actions. These arguments demonstrate the need for collecting new information to develop a dynamic prevention program. Such data collection should be synchronized, conducted by a wide range of actors, and concern multiple actions. Without a coherent information system, it is doubtful the current impetus for the prevention of suicide can be sustained.

Adult↗

[Data protection and data access (II): Physician's responsibility for confidentiality, federal statistics law and data collection by authorization with reference to implementing occupational medicine epidemiologic studies in Germany].

The additional legal rulings governing access to personal data for epidemiological research are the medical professional secrecy regulators and the federal statistics law. These permit access to personal data only if the individual has given his or her informed constant. Beyond this, both laws contain clauses governing the transfer of anonymous data for research and science. Thus anonymized data may be transferred on request to authorized persons or institutions, such as a physician or the regional statistics office. Finally, a custodian model is presented which provides further possibilities for research in occupational medicine and epidemiology within this very restrictive legal framework.

Cause of Death↗

Data collection and retrieval to document the outcomes of cardiopulmonary resuscitation.

In this presentation from the Wolf Creek IV Conference, the panel reviewed data requirements for documenting the processes and outcomes associated with the treatment of out-of-hospital cardiac arrest. It was recognized that this was a multifaceted task and that at least three areas warrant consideration: a) emergency medical services system management, b) monitoring and improving the quality of care, and c) the establishment of databases for research. There was complete agreement that the desired outcome is the victim's survival with intact neurologic function. However, the means of improving outcome, short of speedy initiation of treatment, were less clear. It was suggested that the Utstein guidelines, modified for practicability, can serve as a framework to characterize the arrest and to describe the temporal aspect of interventions. However, it was recognized that there were major deficits in understanding the importance of specific interventions, including their timing. Additionally, means to evaluate the quality of care delivered on the scene are usually wanting. The availability of recording electrocardiograms with accompanying voice was regarded as a major opportunity to better monitor the care that was delivered at the scene. Some of the problems incurred with cardiopulmonary resuscitation research in animals were discussed.

Animals↗

Exposure to injury in major college football. A preliminary report of data collection to determine injury exposure rates and activity risk factors.

Five football teams from major colleges in the nation were surveyed during practices and games in the 1976 season. Data were collected on three packages of information designed as a computer program for tabulation, analysis, and storage of data. Investigators, with a thorough knowledge of football and trained in the use of the program, obtained the data from a given team during every drill, practice, and game of the season. Injury exposure rate was calculated as a ratio of injuries to minutes of exposure in 14 categories (12 specific drills, practice games, and other activities). Agility drills produced the fewest number of injuries for the amount of exposure time (exposure rate, 47,138; risk ractor, 1) and, therefore, it served as a base from which risk factors for all other categories would be calculated. No injuries were recorded in calisthenics. Practice games had the lowest injury exposure rate (1,009) and the highest risk factor (47). Analysis of data is incomplete at this time. The ultimate intent of the study is to help identify and eliminate harmful factors, establish norms, and provide a service to other schools that may desire exposure rate/risk factor data analyzed at a reasonable cost.

Athletic Injuries↗

Health status of a population of infants born before 26 weeks gestation derived from routine data collected between 21 and 27 months post-delivery.

UNLABELLED: This retrospective study was designed: (a) to determine the extent to which routine data sources in the UK can provide data relating to the later health status of selected groups of infants; and (b) to use such an approach to describe the outcome of a geographically defined population of infants born before 26 weeks gestation. All infants of less than 26 weeks gestation admitted for neonatal intensive care during the period 1/1/91 and 31/12/93 whose mother's address at the time of birth was within the boundaries of the Trent Health Region were included. Health status was assessed against a previously described simple scheme and using information from existing sources only. During the 3-year period 249 infants of less than 26 weeks gestation were admitted for intensive care. Of these 66 (26.5%) survived to be discharged from the neonatal service. A further seven infants died before the age of 2 years. Of the remaining 59 four were lost to follow up (three could not be traced; one was living abroad). Of the 55 infants reviewed, 36 demonstrated no features, pre-defined in the classification scheme, of severe disability. However, only 30 children appeared to be considered entirely normal. CONCLUSION: Infants born before 26 weeks gestation and admitted for neonatal intensive care had, approximately, a 12% chance of normal survival to 2 years. A slightly smaller proportion of infants survived with significant disability. Existing routine data sources could be adapted to provide useful public health information about the outcome of 'high risk' groups of infants.

Cerebral Palsy↗