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At least 829 records · Page 46Linked to original sources
PubMed2005

The accuracy and completeness of data collected by prospective and retrospective methods.

OBJECTIVES: To describe and test a model that compares the accuracy of data gathered prospectively versus retrospectively among adult emergency department patients admitted with chest pain. METHODS: The authors developed a model of information flow from subject to medical record to the clinical study case report form, based on a literature review. To test this model, a bidirectional (prospective and retrospective) study was conducted, enrolling all eligible adult patients who were admitted with a chief complaint of chest pain. The authors interviewed patients in the emergency department to determine their chest pain history and established a prospective database; this was considered the criterion standard. Then, patient medical records were reviewed to determine the accuracy and completeness of the information available through a retrospective medical record review. RESULTS: The model described applies the concepts of reliability and validity to information passed on by the study subject, the clinician, and the medical record abstractor. This study was comprised of 104 subjects, of which 63% were men and the median age was 63 years. Subjects were uncertain of responses for 0-8% of questions and responded differently upon reinterview for subsets of questions 0-30% of the time. The sensitivity of the medical record for risk factors for coronary artery disease was 0.77 to 0.93. Among the 88 subjects (85%) who indicated that their chest pain was substernal or left chest, the medical record described this location in 44%. Timing of the chest pain was the most difficult item to accurately capture from the medical record. CONCLUSIONS: Information obtained retrospectively from the abstraction of medical records is measurably less accurate than information obtained prospectively from research subjects. For certain items, more than half of the information is not available. This loss of information is related to the data types included in the study and by the assumptions that a researcher performing a retrospective study makes about implied versus explicitly stated responses. A model of information flow that incorporates the concepts of reliability and validity can be used to measure some of the loss of information that occurs at each step along the way from subject to clinician to medical record abstractor.

Adult↗
PubMed1987

Suicide and the Italian psychiatric reform: an appraisal of two data collection systems.

The reliability of Italian suicide data derived from returns made by the Police and Carabinieri was examined by comparing regional suicide data from that source with those based on medically certified cause of death for the years 1973-1980. Rates of medically certified suicide were found to be higher than those derived from the Police/Carabinieri returns, a difference which increased steadily over the years of study. The between-region within-year correlations (between the suicide rates derived from the two sources) were very high, but tended to decrease with time. The between-year within-region correlations were +0.700 or above for 12 of the 19 Italian regions and between +0.500 and +0.700 for a further 3. The correlation between the rates of suicide derived from the two sources was poor for the remaining 4 regions. A previous analysis of the influence on suicide of the Italian psychiatric reform used Police/Carabinieri data (Williams et al. 1986): this was repeated excluding data from these 4 regions, and the previous results were confirmed. Indeed, the negative correlation between suicide and the provision of general hospital psychiatric beds was stronger than that previously reported.

Community Mental Health Services↗
PubMed1994

A computerized data collection system for a cancer centre.

A data system has been designed for a cancer centre and, with the close collaboration of staff, has been brought into use. Data are continuously gathered by doctors, nurses, radiographers and cancer registration staff for the contracting process, cancer registration, audit, research and development.

Cancer Care Facilities↗
PubMed1985

Methodological issues in collecting data from traditional birth attendants.

Information on the activities, practices and social context of pregnancy and delivery care provided by traditional birth attendants (TBA) is a critical requirement in planning, monitoring and evaluating maternal health programs in many countries. As a result of experimental studies in which such information was obtained by a variety of methods, and a review of alternative methodologies, a set of guidelines has been developed for the collection of such information. High-lighted are the need for good background knowledge on the local situation, involving TBAs themselves in design and collecting methods, a system of supervision to ensure adequate training and careful monitoring, and finally sharing the findings with the TBAs as well as with health officials.

Brazil↗
PubMed1977

Adequacy of survey data collected from substitute respondents.

This study examined interview data on personal habits (smoking, drinking and dietary histories) when collected from two sources. A sample of 300 pairs of subjects (mostly husbands and wives) was obtained from an ongoing health survey in Hawaii, and both members of each pair were interviewed separately about the habits of the husband. Care was taken that the members of each pair had no opportunity to communicate with each other between the start and completion of both interviews. The results showed remarkably good agreement in overall mean values between the two groups of respondents. In general, approximately 75% of the pairs agreed within acceptable limits on most items. There was no clear association of the degree of agreement within pairs with a variety of characteristics of the surrogate group, including age, race, level of education, family income, and duration of residence of proportion of meals eaten together with the subject. These findings are encouraging for the use of surrogate respondents in studies of personal habits where direct interviews are not always feasible, or where the use of such substitutes can improve the reppresentativeness and size of the sample.

Adolescent↗
PubMed2006

The reliability of data collection periods of personal costs associated with vision impairment.

PURPOSE: To determine the reliability of vision-related personal costs collected over 1, 3 and 6 months (extrapolated to 12 months) compared to one-year data. METHODS: Participants of any age, with a presenting visual acuity of < 20/40 in the better eye and an ability to converse in English, were recruited. Monthly cost diaries, in large print and electronic copies with instructions available in audio and Braille, were used prospectively to collect personal costs. The personal expenses were grouped under four categories, namely: (a) medicines, products and equipment, (b) health and community services, (c) informal care and support and (d) other expenses. Sociodemographic and clinical data were also collected. RESULTS: 104 participants (59 females) with a mean age of 64 years completed the 12-months diaries. Almost 40% of the participants had severe visual impairment (< 20/200) in the better eye and the most common cause of vision loss was AMD (n=40; 38%). The mean total personal costs collected from the 12-months diaries were 3,330+/-2,887 AUS dollars. There were no significant differences between the 12-months data and extrapolated 1, 3 and 6-months diaries (t-tests; p=0.17, 0.89 and 0.73, respectively). However, the 1-month variation was substantially larger (SD+/-5,860) compared to the 3-month and 6-month variances (SD+/-3,037 and 3,030, respectively) for total costs. Also, compared to the 12-months diaries, the 1-month data consistently recorded the weakest correlation coefficients for all cost categories compared to the other time intervals. CONCLUSIONS: Given that diary completion can be particularly challenging for individuals with impaired vision, a minimum 3-months data collection period can provide reliable estimates of annual costs associated with vision impairment.

Cost of Illness↗