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U.S. Government statistics on the World Wide Web.

The U.S. Government produces and provides massive amounts of statistics. Government initiatives have made much of the statistical information emanating from its various federal agencies, departments, and offices digitally accessible on the Internet. Assisting users in locating specific statistics can be one of the most challenging duties librarians have. This article provides a guide to government sources that will help librarians locate health statistics for researchers, health professionals, health consumers, and others. Some selected sites may be an endpoint of the search, and others may offer a solid beginning to a complex answer. Links are also provided to gateway Web sites, where a search strategy utilizing some of the tips discovered while compiling this list can be used to help promote successful outcomes. As always, it is recommended to use evaluative criteria to assess information quality as well as integrity of the data.

Humans↗

Knowledge, perceptions, and attitudes of advanced practice nursing students regarding medical genetics.

PURPOSE: To describe the current medical genetic knowledge and perceptions of graduate advanced practice nursing (advanced practice nurse [APN]/nurse practitioner and nurse anesthetist) students using survey data for future integration of genetic topics, principles, and healthcare issues into curriculum. DATA SOURCES: Survey data of APNs' perceived knowledge of genetics and a review of the literature from past research studies of students and current articles from professional journals and organizations. Web sites were those of the National Coalition of Health Professions for Education in Genetics and National Institutes of Health, Human Genome Research Institute; professional organizations; and the authors' professional, clinical, and educational experiences. CONCLUSIONS: Most APN students perceived they had minimum knowledge and prior training regarding medical genetics. There is a need to integrate genetic concepts, principles, and medical conditions into advanced practice nursing curriculum and to provide clinical experiences in genetic conditions across the life span and throughout the health and illness spectrum. APN students have positive attitudes toward integrating genetics into graduate curricula. Potential methods for program integration include readings, small group discussion, standardized patients, and role-play as measures to increase information. IMPLICATIONS FOR PRACTICE: The National Coalition for Health Profession Education in Genetics, the American Nursing Association, and the American College of Nursing Education have recommended integration of genetics knowledge and skills into routine health care to provide effective interventions for individuals and families. However, previous research and data from this study have revealed that many nurses have minimal training in genetics. Advanced practice nurses must be knowledgeable on genetic principles, topics, and the ethical, legal, and social implications related to medical genetics to increase the ability to diagnose, prevent, and treat diseases and to provide effective care for individuals and families.

Adult↗

[The importance of physical activity in the modern health concept].

Physical activity has increasingly become an integrated part of both the prevention and treatment of many diseases. This approach is based on data from large studies linking either physical activity or physical capacity to the incidence of disease. Furthermore, regular physical activity can influence health indirectly, since people who become physically active also tend to change other health-related habits in a positive direction. The author outlines some specific effects of exercise on certain diseases, and discusses the data indicating how much training is necessary to obtain the desired effects on health.

Exercise↗

The diffusion of information technology among health maintenance organizations.

This article examines the information technology functions, staffing and cost, services provided, and advanced technologies among health maintenance organizations (HMOs) using a national sample of HMOs from mid-1995. HMOs have a well-developed capability to use data from administrative functions, such as claims processing. Nationally affiliated HMOs and HMOs in markets with greater HMO penetration support more IT functions. Relatively little work has been completed integrating clinical with administrative systems.

Data Collection↗

Improving patient outcomes of home health care: findings from two demonstration trials of outcome-based quality improvement.

OBJECTIVES: To evaluate effects on patient outcomes of Outcome-Based Quality Improvement (OBQI), a continuous quality improvement methodology for home health care (HHC). DESIGN: A quasi-experimental design with prospective pre/post and study/control components within two multiyear demonstration trials (occurring from 1995 to 2000) in which 73 home health agencies implemented OBQI, receiving several annual cycles of outcome reports to evaluate and enhance patient outcomes. SETTING: New York and 27 other states. PARTICIPANTS: The study involved 157,548 predominantly older adult patients admitted over 3 years to 54 OBQI agencies from 27 states in the National Demonstration Trial, 105,917 patients admitted over 4 years to 19 OBQI agencies in the New York State Trial, and 248,621 patients admitted over 3 years to non-OBQI control agencies in the 27 demonstration states. INTERVENTION: As a clinical management and administrative intervention, OBQI involves collecting, encoding, and transmitting patient-level health status data to a central source that provides each OBQI agency with a risk-adjusted outcome report comparing the agency's patient outcomes with those from a reference population and with its own outcomes from the prior period. Target outcomes are selected and focused plans of action implemented to change care behaviors. Outcome changes are evaluated through the next report cycle. MEASUREMENTS: Outcome measures include hospitalization rates and improvement and stabilization outcome rates in functional, physiological, emotional/behavioral, and cognitive health. RESULTS: For the National and New York State Demonstration Trials, the risk-adjusted relative rates of decline in hospitalization of 22% and 26%, respectively, for OBQI patients over the 3-year and 4-year demonstration periods were significant (P <.001) and unparalleled by considerably smaller rates of decline for the non-OBQI patients in the 27 states. The risk-adjusted rates of improvement in OBQI target outcome measures of health status averaged 5% to 7% per year in both demonstration trials and were significantly greater (P <.05) than analogous improvement rates for nontarget comparison outcomes, which averaged about 1% per year. CONCLUSION: It is feasible to integrate the programmatic, data collection, data transmission, and outcome enhancement components of OBQI into the day-to-day operations of home health agencies. The aggregate findings and the agency-level evidence available from site-specific communications suggest that OBQI had a pervasive effect on outcome improvement for home health patients. OBQI appears to warrant expansion and refinement in HHC and experimentation in other healthcare settings.

Aged↗

KG-Microbe: Building modular and scalable knowledge graphs for microbiome and microbial sciences.

BACKGROUND: The integration of many disparate forms of data is essential for understanding the microbial world and its interaction with the environment and human health. Doing so is particularly challenging in the context of microbe-host and microbe-microbe interactions that contribute to health or environmental outcomes. There are thousands of relevant microbial species, and millions of interactions among those microbes and with their environment or host. Integrated information (e.g., about host and microbial physiology, genetics, and metabolism) facilitates deeper understanding of complex mechanisms and helps interpret correlative results. RESULTS: The KG-Microbe construction framework is a novel approach to harmonizing bacterial and archaeal data in the form of a findable, accessible, interoperable, reusable and AI-ready knowledge graph (KG). Starting from a core KG with organismal traits, environments, and growth preferences and the integration of established ontologies, the framework generates a hierarchy of related KGs targeting specific use cases, including the human microbiome in the context of disease, or environmental microbiomes. The framework supports customizable taxa subsets representing communities or clades of interest. Evaluations of the KG-Microbe KGs through a series of competency questions demonstrate the accuracy and effectiveness of the data harmonization, and the utility of the resulting KGs in studies of inflammatory bowel disease and Parkinson's disease. Finally, the predictive and environmental capabilities of the KGs are demonstrated by predicting growth preferences using graph features. CONCLUSIONS: The KG-Microbe framework unifies microbial contexts in a single resource to support integrative analyses across biomedical, host, and environmental domains. KG-Microbe is a flexible, modular enabling technology for humans and machine learning methods to uncover candidate mechanistic explanations of microbial associations.

Microbiota↗

Geographic information systems: a new tool for environmental health assessments.

OBJECTIVES: (1) To develop tools for health care professionals and communities to assess environmental exposures and (2) to evaluate the utility of integrating patient-reported environmental health information with geographic information systems (GIS) mapping of environmental data in a pilot study. METHODS: A survey was used to collect self-reported environmental exposure and health data from a convenience sample of people at an urban community health center (N=101). Environmental exposure and census information were obtained from federal agencies. Analysis was performed using descriptive statistics and GIS. RESULTS: Frequent environmental health risk factors were reported, such as older housing (93%) and household smoking (78%). Health problems including asthma (54%) and lead poisoning (14%) were reported. Odds ratios indicated a statistically significant relationship between mold/mildew and reporting asthma. GIS was found to be a useful tool in displaying environmental risk factors and potentially associated health effects. CONCLUSIONS: Given the important role that environmental health risks can play in public health, it is critical that community/public health nurses begin to integrate environmental health assessment skills into their professional practices. Simple community surveys can be an effective means to raise awareness about environmental health risk factors and utilizing GIS can further enhance the accessibility of the combined exposure and health information.

Adolescent↗

Health care use and at-work productivity among employees with mental disorders.

This study examines the differential medical care use and work productivity of employees with and without anxiety and with other mental disorders at a large national firm. A unique aspect of this study is that we integrate medical claims and employer-provided, objective productivity data for the same employees. We find extensive mental health comorbidities among anxious employees. Although medical care use differs considerably among employees having no, one, or several treated mental disorders, in most cases their annual average absenteeism and average at-work productivity performance do not differ. Differences among subgroups are observed for job tenure and maternity claims. We discuss these long-term average productivity findings in relation to other literature encompassing shorter time periods.

Absenteeism↗

Software for health care analysts: a modular approach.

The many concerns about the cost and quality of health care suggest the need to facilitate planners' using existing data bases for utilization review, program evaluation, and technology assessment. Despite both the availability of relevant data and widespread improvements in computing power, integrated computer software to permit analyses by nonspecialists has not previously been developed. This paper discusses the features of a health policy information system which aids working with hospital discharge abstracts, medical claims, cancer registries, and vital statistics files. Analyses of small area utilization, length of stay, in-hospital mortality, and readmissions are facilitated by this package. This information system, named the Health Applications System, includes an analysis module, three information management modules, and a set of record linkage modules. The modules were developed using the macroprocessor in the fourth-generation SAS system. Features of the software and their implications for data analysis are discussed.

Data Interpretation, Statistical↗

Engaging Quad/Graphics employees in the improvement of their health and healthcare.

In an era when rising healthcare costs threaten the competitiveness of American businesses in an increasingly global marketplace, we describe Quad/Graphics on-site primary care (QuadMed) clinics tightly integrated with wellness, fitness, rehabilitation, and occupational medicine. We further describe the Lean You wellness program recently put in place to stem the rising burden of obesity. The Lean You program illustrates how an integrated employer and health provider system can become even more engaged in collaborative care with its employees. Financial and clinical data suggests that at Quad/Graphics-QuadMed, these full-service health service approaches are effective.

Adult↗

Human service reorganization and its effects: a preliminary assessment of Florida's services integration 'experiment.'.

The present discussion reports on some of the first statewide data gathering and analysis to assess the consequences of the 1975 reorganization of the Florida Department of Health and Rehabilitative Services. Two major concepts guiding the reorganization were: (1) integration of services in order to cover more adequately the needs of clients, including "multi-problem" clients, and (2) decentralization of administrative authority of all programs under a single, district-wide management structure. Despite widespread interest in the Florida system, and two previous studies, no systematic, detailed study of the impact of reorganization at the service delivery level has been conducted until now. The results of this study indicate that departmental employees perceive substantial decentralization of authority and progress toward integration of services since the 1975 reorganization. Perceived improvement in client services is also indicated. Major factors cited as influential in the change are the move toward collocation of services, the establishment of administratively interlinked service networks, and to a lesser extent, the development of generalist managers.

Florida↗

Detection and prevention of cardiac risk factors: health risk assessment and targeted follow-up in a managed care population.

Health risk assessment, developed as a clinical tool for the practice of prospective medicine, has been used primarily in worksite health promotion programs to identify cardiac and other risk factors and to plan preventive actions. This article describes the application of a brief health risk assessment with targeted follow-up to a managed care population, randomized by primary care physicians into usual care and special intervention groups. Study design, methods, and preliminary baseline data on participants are presented, and key learnings about administration of this type of program in an integrated health care system are discussed.

Cardiovascular Diseases↗

IDS proves benefits with report card.

Everyone says integrated delivery reduces costs while improving quality, but The Health Alliance of Greater Cincinnati sets out to prove it. Its data-filled report for payers takes seriously the new trend in report card marketing.

Delivery of Health Care, Integrated↗

[Approach to the reality of life and health at "Recanto de Alegria" community: understanding and defining the strategy of intervention].

This article presents a process of investigation that was developed to identify life and health conditions of a community in order to propose changing strategies to the situation. It took place in Distrito do Grajaú (SP)--Brazil. All families were interviewed through the application of a survey in order to find personal/life conditions, and a health disease process profile. Data reveal a determined profile that was presented to the people to implement integrated actions to solve the main problems/issues at the community.

Adolescent↗

Work and mental illness. I. Toward an integration of the rehabilitation process.

For centuries, philosophers and physicians have noted the beneficial impact of work for the restoration and maintenance of mental health. This paper reports the findings from a survey in which all the principal components (both providers and consumers in one catchment area) contributed data about the degree to which vocational rehabilitation was integrated into systems of care for the mentally ill. The major repetitive themes found at the interface of each participating sector were: rigidity, isolation, compensatory ad hoc operations, and narrow frames of reference. Vocational and other forms of rehabilitation were accomplished by persistent, energetic personnel inventing ingenious solutions to the roadblocks set up at system interfaces. Their problem-solving techniques pointed to ingredients that might help to integrate treatment and rehabilitation efforts. These key elements were flexibility, collaboration, data-based training, and a unified theoretical framework.

Adolescent↗

Development and use of online mental health services in Greece.

E-mental health refers to the use of telecommunication and information technology in mental health services. In Greece, ordinary telephone communications have been used to provide mental health services, such as a psychiatric crisis intervention line (METB). E-psychiatry is a relatively new approach to delivering psychiatric services through the Internet. We have developed an e-psychiatry Website, Glaucopis-net. The main objective is to provide information on a broad range of psychiatric conditions, such as dementia, depression and anxiety. Email mental health services will be offered as an alternative way of accessing help. Confidentiality issues concerning patient records and personal data will be treated in accordance with Greek legislation. Glaucopis-net will integrate new telecommunication and information services with classical mental health services.

Greece↗

Personal health records: definitions, benefits, and strategies for overcoming barriers to adoption.

Recently there has been a remarkable upsurge in activity surrounding the adoption of personal health record (PHR) systems for patients and consumers. The biomedical literature does not yet adequately describe the potential capabilities and utility of PHR systems. In addition, the lack of a proven business case for widespread deployment hinders PHR adoption. In a 2005 working symposium, the American Medical Informatics Association's College of Medical Informatics discussed the issues surrounding personal health record systems and developed recommendations for PHR-promoting activities. Personal health record systems are more than just static repositories for patient data; they combine data, knowledge, and software tools, which help patients to become active participants in their own care. When PHRs are integrated with electronic health record systems, they provide greater benefits than would stand-alone systems for consumers. This paper summarizes the College Symposium discussions on PHR systems and provides definitions, system characteristics, technical architectures, benefits, barriers to adoption, and strategies for increasing adoption.

Attitude to Computers↗

Report from the NOAA workshops to standardize protocols for monitoring toxic Pfiesteria species and associated environmental conditions.

Long-term monitoring of water quality, fish health, and plankton communities in susceptible bodies of water is crucial to identify the environmental factors that contribute to outbreaks of toxic Pfiesteria complex (TPC) species. In the aftermath of the 1997 toxic Pfiesteria outbreaks in North Carolina and Maryland, federal and several state agencies agreed that there was a need to standardize monitoring protocols. The National Oceanic & Atmospheric Administration convened two workshops that brought together state, federal, and academic resource managers and scientific experts to a) seek consensus on responding to and monitoring potential toxic Pfiesteria outbreaks; b) recommend standard parameters and protocols to characterize water quality, fish health, and plankton at historical event sites and potentially susceptible sites; and c) discuss options for integrating monitoring data sets from different states into regional and national assessments. Workshop recommendations included the development of a three-tiered TPC monitoring strategy: Tier 1, rapid event response; Tier 2, comprehensive assessment; and Tier 3, routine monitoring. These tiers correspond to varying levels of water quality, fish health, and plankton monitoring frequency and intensity. Under the strategy, sites are prioritized, depending upon their history and susceptibility to TPC events, and assigned an appropriate level of monitoring activity. Participants also agreed upon a suite of water quality parameters that should be monitored. These recommendations provide guidance to state and federal agencies conducting rapid-response and assessment activities at sites of suspected toxic Pfiesteria outbreaks, as well as to states that are developing such monitoring programs for the first time.

Animals↗