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PubMedDate not supplied

Effect of respite care training on the knowledge, attitude, and self-esteem of volunteer providers.

This pilot study explored the effect that respite care training had on volunteers' knowledge about Alzheimer's disease (AD), their attitudes toward the cognitively impaired, and their self-esteem. Volunteer respite providers (n = 52) were recruited and participated in four different day (seven-hour) respite care training programs. The sample was predominantly female (85 percent) and white (90 percent). Knowledge about AD increased significantly after respite training (p < .001), and attitudes toward someone who wanders were also significantly improved (p = .026). Overall, the findings support the immediate effectiveness of the respite training program.

Adult↗
PubMed1985

Respite care and family functioning in families with retarded children.

In an effort to explore the relationship between the use of home-based respite care and family functioning, this study found evidence of the usefulness of respite care in maintaining family stability in certain areas. After reviewing the differences between families that used such care and those that did not, the author discusses implications for social work practice and future research.

Adaptation, Psychological↗
PubMed1988

Respite care for mentally ill patients and their families.

An inpatient psychiatric unit at a Veterans Administration Medical Center offers regularly scheduled psychiatric respite care, an intervention intended to reduce recidivism among chronic patients who live with a family member and to support the family in their caregiving role. Patients and their families have the option of arranging for respite admissions for two to seven days at six- to eight-week intervals. Preliminary one-year data for 14 patients show that with participation in the respite program, subsequent hospital days are significantly decreased. Subjective data indicate that respite care helps stabilize improvements patients made in the hospital, allows staff to work with family systems in a nonadversarial manner, and gives the family needed relief from difficult behaviors.

Adaptation, Psychological↗
PubMed1990

An evaluation of a respite care unit for elderly people with dementia: framework and some results.

This paper offers a comprehensive framework for service evaluation relevant to a new respite care unit, and reports some results of its application. On existing evidence the planning assumption of a preventive effect of respite care, in avoiding admission to institutional care, is argued to be unjustifiable. The results indicate that this unit had a high non-attendance and fall-out rate, and no incentives to co-operate with alternative services or to operate efficiently. Broad estimates of cost parities revealed that attenders at the unit sacrificed considerable amounts of alternative forms of care.

Aged↗
PubMed1997

Temporary institutional respite in dementia cases: who utilizes this form of respite care and what effect does it have?

In the studies on the effects of temporary institutional respite (TIR) published to date, a slight reduction of subjective burden has been established. The hope that this form of respite care might have a positive effect on the activities of daily living or on the health of the care recipients has not yet been confirmed. A considerable deficit in the methodology applied might be a reason for this. There is no denying the fact that there is a clear need for respite services, particularly because every seventh person providing care for a dementia patient requiring personal care belongs to a high-risk group that is characterized by serious reduction in his or her physical health and psychological well-being. TIR is primarily utilized by adult child caregivers (daughters and daughters-in-law) affected by high subjective burden who are providing care for dementia patients with extensive nursing needs.

Adult↗
PubMed1988

Acceptance of hospital-based respite care by families and elders.

Health and social service professionals generally view respite services as a preventive health care measure for both caregiver and recipient. However, many families with dependent elders are reluctant to use formal respite care services. Factors associated with family member perceptions of hospital-based respite care as a viable personal option are examined. The findings suggest that families often fail to recognize the preventive health care functions that respite care may offer and that practitioners should propose respite care as part of overall treatment plans.

Aged↗
PubMed1989

Provision of respite care for children with developmental disabilities: changes in maternal coping and stress over time.

Changes were examined in maternal coping resources and stress over time as a consequence of the provision of respite care for their children with developmental disabilities. Users and nonusers of home-based respite services were matched and compared. Results showed that services were associated with an immediate significant reduction in maternal stress. Even though there were changes over time in coping resources and stress reported by mothers, the respite care group showed overall consistent benefits as compared to those not receiving services. Findings were interpreted with respect to their implications for research and interventions.

Adult↗
PubMed1995

Effects of respite care on patients with dementia and their caregivers.

The purpose of the literature review discussed in this article was to determine the effect of formal respite care on patients with dementia and their caregivers. Three computerized databases were searched for relevant English language articles published from 1975 to 1994, and the bibliographies of retrieved articles were systematically reviewed for additional references. Five studies met the following inclusion criteria: original research; controlled trial of a defined respite intervention; sample including a dementia population; and at least one outcome measure relating to at least one of eight specified caregiver and patient variables. Four studies met validity criteria and were included for the review. There was little evidence that formal respite care has a significant effect on caregivers' burden, psychiatric status, or physical health; or on patients' cognition, function, physical health, or rate of institutionalization. However, given the small number of controlled studies found and their methodological and conceptual limitations, these data should be interpreted with caution.

Caregivers↗
PubMed1992

Geriatric respite care--present practice and the potential for improvement.

A prospective Audit of patients admitted for geriatric respite care was undertaken. Information was obtained from patients, staff and carers for 125 consecutive admissions over a 20 week period. The 87 clients admitted had a mean age of 79.6 years and 83% had a high physical/mental dependency. In contrast to some previous studies mortality was very low (less than 2%). One hundred and nine (87%) admissions were discharged home. Respite admission bed use was classified as shared care (971 days, n = 19), planned respite (937 days, n = 50) and crisis respite (809 days, n = 18). The shared care and planned group did not show significant differences in patient dependency or carer profile. On a population basis, geriatric respite care was required on a bed per 1,000 population aged 75 and over. Patients viewed as inappropriate for geriatric care were most frequent in the crisis respite group, with the Geriatric Unit at times meeting shortfalls in other services. The sharing of key information between families/carers and community/hospital was, at times, deficient. The need for increased publicity about the service and for a carer support group was identified. Most families were satisfied with the care received but specific ways of improving the service were suggested.

Activities of Daily Living↗
PubMedDate not supplied

Effects of respite care for children with developmental disabilities: evaluation of an intervention for at risk families.

Respite child care programs that provide temporary child care, support, and referral services to families of children with developmental disabilities are thought to be a critical component of formal social support interventions deemed necessary to promote healthy family functioning and prevent child maltreatment. This study describes sociodemographic characteristics, parenting stress levels, foster care placement, and founded child maltreatment rates in families of children with developmental disabilities who were using respite care services in a rural Midwestern state. Comparison of matched pre- and post-test Parenting Stress Index scores indicated significant decreases in Total Stress scores (t=3.27, df=86, p=0.0016), Parent Domain scores (t=3.55, df=86, p=0.0006), and Child Domain scores (t=2.2, df=86, p=0.02) following provision of respite care. Through logistic regression, it was determined that life stress, social support, and service level were significantly related to the occurrence of child maltreatment during enrollment ( p < 0.05). The investigator suggests that public health nurses can enhance their case management strategies when working with the parents of children with developmental disabilities by monitoring for caregiver burnout in addition to ensuring that the child is receiving care appropriate for his or her level of need.

Adult↗
PubMed2003

Nursing and respite care services for ventilator-assisted children.

Home care for children requiring life-sustaining technological interventions has become an increasingly common alternative to long-term hospitalization since the 1970s. The Ventilator Assisted Children's Home Program, a state-funded program in the Commonwealth of Pennsylvania, has provided services to more than 600 infants and children requiring mechanical ventilation and their families. Under this program, children have the opportunity to live at home with their families and receive quality medical care. However, over time, parents and nurses have acknowledged that this care can often be stressful and overwhelming. Nursing and respite care services in the home environment can provide these families with extremely valuable supports.

Child↗
PubMed1995

Respite care for HIV-affected families.

Anonymous testing of all newborn infants in 1988 revealed that one of every 61 babies born in New York City was HIV positive (New York City Department of Health, 1988). With the availability of new treatment, HIV positive children are living longer, often into their school years, and most are able to live at home. The majority of children acquire HIV through maternal transmission. Frequently, multiple family members are HIV positive. Parents, or other caregivers, are overwhelmed by depression, anxiety and grief, and urgently need childcare assistance. Finding childcare is difficult since families are often reluctant to disclose the AIDS diagnosis to potential childcare workers. This article describes an innovative in-home respite care program for parents and caretakers of children who are HIV positive. The service is coordinated through a hospital's social work and volunteer departments. This article describes strategies to recruit, train and supervise volunteers to provide respite care for families with HIV positive children.

Child↗
PubMed2006

Respite care for children, young people and families--are their needs addressed?

In recent years there has been an increasing demand for respite care in the community setting, as advances in medicine and technology have enhanced the life expectancy of children and young people with a life-limiting illness. However, the need for flexible respite provision in the home frequently presents a challenge for those health care professionals involved in caring for these children and their families. Following a review of literature this paper will demonstrate how a family-centred approach to respite provision and palliative care can enhance the quality of life for a child nearing the end of life and support the expressed needs of the child's family with accessible respite care.

Child↗
PubMedDate not supplied

Respite care: a new social program for children at risk.

A working definition and general overviews of the concept of respite care are provided, along with the value of such temporary care for the multitudes of children who suffer abuse and neglect (2.2 million in 1988). Existing programs are identified, with the scope of their services and number of clients discussed. The pediatric dentist is advised to become aware of such programs to offer assistance to families dealing with the stresses of caring for children with special needs.

Adolescent↗
PubMed1994

The effect of inpatient respite care on elderly patients and their carers.

Fifty-eight carers and their dependents who received inpatient respite care were studied before and during the admission period. Although there was no observable improvement in the carers' emotional well-being the majority of the patients showed an improvement in functioning, particularly those who were being looked after by highly stressed carers. Many carers expressed a wish for more respite than they were currently offered, and some would have preferred a more flexible type of service.

Activities of Daily Living↗
PubMed1996

AIDS. Providing respite care in a rural environment.

Specialists multidisciplinary teams are an appropriate response to caring for people with HIV/AIDS in urban areas. In rural settings the problems are rather different and alternative approaches must be considered.

HIV Infections↗
PubMed1993

Institutional respite care: benefits and risks for dementia patients and caregivers.

Thirty-seven dementia patients and their caregivers were studied before and after a two-week in-hospital respite stay. Institutional respite care did not alter behavior problems in dementia patients, nor did changes in performance of activities of daily living (ADLs) by Alzheimer's disease (AD) patients exceed those expected from disease progression. Caregivers exhibited an improvement in burden and depression during the respite study, but levels returned to baseline following the patient's return home.

Activities of Daily Living↗