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At least 73 records · Page 4Linked to original sources

Actigraphy assessment of sleep disturbance in patients with atopic dermatitis: an objective life quality measure.

BACKGROUND: Patients with atopic dermatitis (AD) frequently report compromised quality of life because of disturbed sleep and daytime fatigue secondary to their skin disease, but few studies provide objective measurement of sleep change in this population. OBJECTIVE: The purpose of this investigation was to contrast subjective and objective measures of sleep quality in patients with AD. METHODS: Fourteen adult patients with AD and 14 adult control subjects with no skin disease wore actigraphs for 1 week and completed questionnaires about sleep, itch, and quality of life. RESULTS: As measured by self-report and actigraphy, the AD group slept more poorly and reported more daytime fatigue than the control group. Actigraphy alone was correlated with itch and quality of life and was able to discriminate movement during sleep, number of awakenings, minutes asleep, and minutes awake. CONCLUSIONS: Results from this study demonstrate that sleep is significantly compromised in patients with AD. Patients' perception of their sleep provides less detail and accuracy than actigraphy. The actigraph is an objective, unobtrusive measure of sleep at home in patients with skin disease and can provide an important outcome measure in clinical trials.

Adult↗

Nutritional and life-quality consequences of aboral pouch construction after total gastrectomy: a randomized, controlled study.

AIMS: The aboral pouch, a new type of gastric substitute, has been introduced after total gastrectomy and compared to simple Roux-en-Y reconstruction in a prospective, randomized study. Anthropometric data, serum nutritional parameters, small intestinal passage, lipid and carbohydrate absorption and quality of life were measured 6 and 12 months after total gastrectomy. PATIENTS AND METHODS: Between September 1997 and April 2000 46 patients entered the study, 24 to the aboral pouch group and 22 to the control, simple Roux-en-Y group. RESULTS: Interim analysis of the data revealed significantly higher serum cholesterol levels, better lipid absorption and quality of life in patients who underwent aboral pouch construction. CONCLUSION: Aboral pouch construction is a feasible reconstruction method after total gastrectomy providing better lipid absorption and quality of life for patients after total gastrectomy.

Adult↗

[Intrathecal opioids in chronic non-malignant pain: relief and life quality].

The use of opioids for treatment of non-malignant pain is controversial. The evaluation of pain relief and of the quality of life of 11 severely incapacitated chronic non-cancer pain patients treated with long term intrathecal infusion of opioids trought implantable pumps was performed. The mean duration of pain complaints was 5.3 years. The mean pain intensity was 8.6. In 7 patients, pain episodes lasted at least 6 hours daily. The mean duration of the therapy was 19.6 months. After the treatment the mean pain score became 3.9. In only 1 patient, the duration of pain episodes was still longer than 6 hours. Quality of life improved in 36.36% of the cases. The long term spinal opioids through implantable pumps for non-malignant pains results in pain relief but not necessarily improves the quality of life.

Adult↗

Reliability and validity of the sexual life quality questionnaire (SLQQ).

The sexual life quality questionnaire (SLQQ) was developed to evaluate sexual quality of life (QOL) and satisfaction with treatments for erectile dysfunction among patients and their sexual partners. This paper describes the development of the instrument and reports its psychometric properties as observed in two studies involving patients under treatment for erectile dysfunction. The instrument consists of 16 items, 10 of which deal with dimensions of sexual QOL that can be summed to a sexual QOL scale measure. The remaining six items comprise a scale measuring satisfaction with treatment dimensions. The composite sexual QOL and treatment satisfaction scales met established psychometric goals overall and within select subgroups (length of time quartiles, patient/partner). A significant correlation between the treatment satisfaction scale score and the patients' responses to a question asking their likelihood of selecting the method for continued treatment (r: 0.89) showed the measure to be a good indicator of treatment preference. Finally, there were significant differences in sexual QOL scale scores between screening and first treatment, indicating the instrument was responsive and able to detect changes in sexual QOL.

Erectile Dysfunction↗

Impact of oral health on the life quality of periodontal patients.

OBJECTIVES: To assess the impact of oral health on the life quality of a periodontal patient group. MATERIALS AND METHODS: Two hundred and five patients attending a private periodontal clinic completed a questionnaire incorporating the 16-item UK oral health-related quality-of-life measure (OHQoL-UK), a check list of questions about their periodontal health over the past year and a comprehensive periodontal examination. RESULTS: The effect of oral health on quality of life was considerable, with many individuals experiencing negative impacts across a broad range of physical, social and psychological aspects of life quality. OHQoL-UK(Copyright ) scores was associated with patient's self-reported periodontal health in the past year: experiences of "swollen gums" (p<0.01), "sore gums" (p<0.01), "receding gums" (p<0.01), "loose teeth" (p<0.01), "drifting teeth" (p<0.01), "bad breath" (p<0.01) and "toothache" (p<0.01). In addition, OHQoL-UK scores were correlated with the number of teeth with pocket depths of 5 mm or more (r(s)-0.42, p<0.01). New patients had poorer oral health-related quality of life compared with the treated maintenance group (p<0.01). CONCLUSIONS: Periodontal status impacts on life quality. This has implications in understanding the consequences of periodontal health and in the use of patient-centred outcomes in periodontal research.

Affect↗

Measuring the impact of oral health on life quality in two national surveys - functionalist versus hermeneutic approaches.

OBJECTIVES: This study compares a functionalist (quantitative) versus a hermeneutic (qualitative) approach to assessing the impact of oral health on life quality in two United Kingdom national surveys. METHODS: The vehicles for this study were two Office for National Statistics' Omnibus Surveys completed in 1998 and 1999. In both studies a random probability sample of 3000 household addresses was selected from the British Postcode Address File (PAF). The data were collected by face-to-face interviews with respondents in their homes about how their oral health status affected their quality of life employing a qualitative, hermeneutic approach (1998) and a functionalist, quantitative approach using a battery of questions (1999). RESULTS: Irrespective of study design, in both studies it was apparent that the majority of the public perceived their oral health as affecting their life quality (P > 0.05). Likewise, both approaches identified that oral health affected life quality most frequently through physical aspects of oral health rather than social or psychological. However, using the hermeneutic approach, respondents were less likely to cite that their oral health affected specific aspects of their oral health compared to when a battery of questions were used (P < 0.01). Furthermore, socio-demographic variations in oral health-related quality of life were more apparent when a battery of questions were employed compared to an open-ended approach. CONCLUSIONS: Different approaches to assessing oral health-related quality of life yield similar findings in terms of prevalence of oral health's impact and affected ways (domains). However, the different methods influenced the ability to identify socio-demographic disparities.

Adolescent↗

Ethnicity and life quality of recently discharged inpatients with schizophrenia.

Three months after inpatient discharge, quality of life was examined in 259 individuals with schizophrenia. As in findings by Lehman, Rachuba, and Postrado (1995), Black participants reported a higher quality than Whites after controlling for gender, degree of psychopathology, functioning level, substance abuse, and baseline life quality. Implications are discussed.

Adolescent↗

Aging and life quality: an otorhinolaryngological review.

The increase in the number of people over the age of 65 and the current rise in the proportion of old people represents an important change in the demographic patterns in the world. Since some structural and physiological changes generally occur in elderly patients, maintaining function is surely an important goal. The most devastating disabilities affecting elderly patients are those that diminish the capacity to function independently and those that have a serious impact on the quality of life. Otolaryngologists play a major role within the braod field of geriatrics. Our involvement in caring for the elderly requires us to know how to improve their quality of life. This article provides an overview of many problems that arise within our specialties.

Aged↗

Life: quality, value and justice.

The claim is questioned that QALYs (quality adjusted life years) provide an effective measure of beneficial health care and of cost-effective and or efficient health care and allow for a morally defensible way of distributing scarce health resources. It is argued the QALYs: (1) fallaciously value time lived instead of individual lives; (2) take an excessively narrow view of what quality of life might be; and finally and perhaps most importantly (3) they are unjust.

Economics↗

Parent gender and assessment of infant life quality.

OBJECTIVES: The primary objective was to examine the influence of parents' gender on the assessment of quality of life among infants with atopic dermatitis. The secondary objective was to examine the psychological factors affecting the assessment. METHODS: Questionnaires were completed by 28 couples, as a basis for gender comparison. Data were gathered on disease severity, confidence of treatment, Major Depression Index (MDI), Spielberger Trait Anxiety Inventory (STAI) and the Infants' Dermatitis Quality of Life Index (IDQOL). RESULTS: The mothers' scores were higher than those of fathers for all assessments, although differences were not statistically significant. Significant correlations were found between MDI and severity assessment for mothers only and between MDI and STAI for both genders. Multiple linear regression analysis suggested gender differences in the proposed model, where only depression was appearing statistically significant (P = 0.029). CONCLUSION: Our data presented suggest that no significant gender-dependent differences occur in parents' overall severity assessment of the eczema in their children, but the influence of the different factors studied is not equal in the two sexes. Future instruments aimed at surrogate assessment of disease severity in children by their parents should take this into account and provide explicit testing of possible gender differences.

Adult↗

[Mensuration of life quality in the evaluation of the effectiveness of the cataract surgery].

Quality of life (QOL), a kind of mensuration which reflect all sorts of actions and capabilities of the patients, cover with many aspects such as the human body function, psychology, psychosis status and social activities, therefore QOL is become an important parameter in the evaluation the results of clinical treatment. The effect of the cataract surgery should be materialized not only in the aspects of visual acuity and the visual function, but also in the improvement of the QOL, fundamentally. Here, the author make a summary include mensuration and questionnaire of the cataract related Quality of life, result of the QOL and it's affect factor after the cataract surgery, the relationship between the QOL and other visual test, and the attentions while using the QOL measure, etc.

Cataract↗

[Potentialities of life quality evaluation for gastroenterological patients].

Quality of life (QL) was studied in 112 patients with gastroenterological diseases: 29 cases of gastric ulcer (GU), 53 cases of duodenal ulcer (DU) and 30 cases of chronic pancreatitis (CP). QL was judged according to the test of the Cardiological Research Center of the RAMS. QL in the above gastroenterological diseases was related to restrictions in the diet, emotional and muscular load, long-term treatment. The integral quantitative indices of QL were worse in CP and GU than in DU, and deteriorated with the disease duration and severity. A close correlation was found between QL and subjective symptoms of the disease, especially pain syndrome. The proposed approach to qualitative and quantitative assessment of gastroenterological patients's quality of life adequately reflects this complex phenomenon and closely correlated with clinical evidence.

Adult↗

Quantifying subjective assessment of sleep and life-quality in antidepressant-treated depressed patients.

This study sought to establish a method of quantifying subjective perceptions of sleep against perceptions of life-quality and mood, using amended versions of the Pittsburgh sleep diary (PghSD) and quality of life of insomniacs (QOLI) questionnaire. Diaries and questionnaires were self-completed in participants' homes. Outpatients with a DSM-IV diagnosis of major depressive disorder were compared with a healthy control group (with no history, or family history, of depression). Poorer sleepers, as determined by the sleep diary, were significantly more likely to report poorer life-quality and mood perceptions on the subsequent questionnaire. Furthermore, the depressed group reported significantly poorer perceptions of sleep quality and poorer perceptions of life-quality and mood than the control group, even though estimates of sleep disturbance were similar. This may indicate that depressed individuals experience more 'sleep distress' than healthy individuals. These results confirm the extent of subjectively reported sleep disruption in depression and demonstrate the merit of combining the amended PghSD and QOLI to quantify sleep perceptions.

Adult↗

Level of nursing care vs life quality of patients in the terminal stage of a disease.

A patient whose treatment has been unsuccessful and a disease still develops enters a terminal stage of the disease which inevitably leads to death. In nursing the evaluation of care quality and measuring its influence on the quality of patients' life have become enormous challenges and are placed among the most crucial issues. The aim of the research is to evaluate the relationship between the quality of nursing services and the life quality of patients in the terminal stage of a disease. The research activities were carried out in five centres of palliative care, 57 nurses and 99 patients in the terminal stage of a disease were involved. The BOHIPSZO method was used to analyse the quality of care, life quality of the patients was measured by means of RSCL--The Rotterdam Symptom Checklist. The material was subject to statistical analysis. The research results show that high level of hospice nursing care positively affects the quality of life in its physical and psychological spheres.

Hospice Care↗

Life quality in non-pharmacological therapy of hypertension.

Measurements of life quality have recently been included in drug trials on hypertension. In literature, not one single reference was found on life quality in non-pharmacological therapy of hypertension. More or less a tacit understanding is, however, that the life quality is unchanged, or at least not impaired, during non-pharmacological therapy. Experiences from a study of 400 patients with the aim to reduce or withdraw antihypertensive drugs, at the same time as non-pharmacological methods were introduced, show the difficulties to evaluate changes of life quality in a non-pharmacological study.

Antihypertensive Agents↗

[Assessment on the reliability and validity of the Dermatology Life Quality Index in Chinese version].

OBJECTIVE: Since the dermatology life quality index (DLQI), a self-administered general dermatology quality of life instrument, was originally developed and published in a dermatology clinic at University hospital of Wales, our goal was to popularize the disease-specific scale used in measuring the quality of life of patients with skin diseases and to assess the reliability and validity of its Chinese version. METHODS: We administered the DLQI to 236 out-patients attending our dermatology clinic and results that had been found by those who originated the DLQI, were examined. The reliability and validity of DLQI were assessed by means of reliability analysis and factor analysis. RESULTS: Overall, the DLQI seemed easy to administer and could be completed within 3 minutes. The internal consistency coefficient rates of this unidimensional measure were 0.87 (Cronbach's alpha) and 0.85 (Spearman-brown, s) with high inter-correlations found between the dimensions with a correlation coefficient ranging from 0.4024 - 0.6569. Factor analysis resulted in a unidimensional pattern, which supported the use of a total DLQI-C score. CONCLUSION: DLQI was an easy and efficient instrument for assessing the quality of life in patients with dermatological problems and with better reliability and validity. Thus, it could be used in both research and clinical settings in China.

Eczema↗

Self-help and life quality in persons with HIV disease.

This study examined factors contributing to life quality in persons with HIV disease. Selected concepts and statements in a model designed to explain self-help and life quality in persons with chronic conditions were tested. Eighty-three persons with a diagnosis of HIV disease (58% with AIDS) completed a demographic profile and four instruments to measure dependence for help with daily living, enabling skills, self-help and life quality. The instruments had been used by researchers testing the Self-Help Model on persons with other chronic diseases. Direction and magnitude of the relationships, revealed through causal modelling procedures, were consistent with previous tests of the model. Diagnosis of AIDS explained 29% of the variance in dependency, but had no explanatory value for enabling skill. Enabling skill (beta = 0.32) and dependency (beta = -0.49) explained 33% of the variance in self-help. Self-help (beta = 0.59) explained 34% of the variance in life quality. Results suggest that self-help is influenced negatively by dependency and positively by enabling skill. Enabling skill appears to mediate the negative effect of dependency on self-help and can be a target of interventions to improve quality of life in persons with HIV disease.

Activities of Daily Living↗

A questionnaire study of the quality of life and quality of family life of individuals complaining of tinnitus pre- and post-attendance at a tinnitus clinic.

Tinnitus is a condition that is difficult to treat, and treatment outcomes are difficult to measure The majority of people who experience tinnitus are not troubled by it; however, the troubled minority are referred by an otorhinolaryngologist for specialist clinic help. The aim of this study was to investigate how the impact of tinnitus changes following attendance at a tinnitus clinic and to find out how acceptable the questionnaires used were for measuring recovery. Fifty-seven tinnitus sufferers completed three questionnaires covering the characteristics of tinnitus, and its effect on daily life, quality of life, and quality of family life, before and after treatment at the Nottingham Tinnitus Clinic. Questionnaires were answered at patients' homes while they were on the waiting list to attend the clinic, and again I year after their first attendance. Measures of functional and social handicap were significantly reduced following attendance at the clinic (mean change in functional handicap = 13%, p<0.01, and mean change in social handicap = 8%, p<0.01). Quality of life was significantly better after treatment at the clinic (mean visual analog scale difference = 6.5%, p = 0.01). We conclude that attendance at the Nottingham Tinnitus Clinic had a positive effect on the impact of tinnitus on patients and their families, and that the questionnaires gave an accurate measure of patient distress.

Family↗