The case for a national health program.
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Explore the source record for details and available documents.
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A comprehensive audit of the Health Program Guidelines in Canada was undertaken between January and September 1992. This review examined the strategic effectiveness and operational efficiency of the guidelines developed under the auspices of the Federal, Provincial and Territorial Advisory Committee on Institutional and Medical Services (ACIMS). To assess the perceived management utility of the guidelines, over 185 structured mail questionnaires were sent to a random representative sample of health care managers stratified by type of health-related organization and Canadian province and territory. With a response rate of over 80.5%, a profile of management perceptions of the need for the current Program Guidelines was created. In tandem an internal review of the efficiency and effectiveness of the design and development of the Guidelines was conducted using over 45 structured interviews with key informants. Both components of the comprehensive audit provided the basis of report recommendations that are relevant to the Canadian health system community.
Families of children with rare disorders have many experiences in common, as well as special problems related to the specific disorder. This paper presents Frambu Health Centre and the family-focused services offered to patients with bladder exstrophy during the first information and treatment course arranged for this group at the Centre. Main areas of concern as reported by the families are presented.