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The need for a coherent curriculum and supported infrastructure in health informatics education--the HEALNet experience. Health Evidence Application and Linkage Network.

The Canadian National Centres of Excellence Network, Health Evidence Application and Linkage Network (HEALNet) is a network linking universities, the private sector and other public sector organisations in supporting research and fostering commercial opportunities. Its aim is to develop high quality health care decision support methodologies and tools that support the transfer of research evidence into practice. The HEALNet education program aims to support the training of highly qualified personnel as well as the development of educational approaches so that health personnel can better exploit such methodologies and decision support tools given the new opportunities of information technology. There is a need to draw from the different types of expertise within HEALNet to provide an integrated curriculum. At the same time, there is a concern regarding the lack of a coherent infrastructure in health informatics in many Canadian medical schools.

Canada↗

Organizational issues in health informatics: a model approach.

In this paper, we present a model that describes the stages of the implementation of an information system in a health care organization. The model offers no explanation of the implementation process but rather describes in a cyclic order the domains that are relevant when implementing a system. The model offers thus an opportunity to identify gaps in our knowledge and understanding of implementation processes and provides also the conceptual basis for a higher education course of health informatics that is focusing on organizational change and the pivotal role of information and communication technology.

Delivery of Health Care↗

Health informatics as a tool to improve quality in non-acute care--new opportunities and a matching need for a new evaluation paradigm.

Whilst most health care is delivered to people living at home, the focus of innovation in health informatics concepts has been largely on acute hospitals. However, delivery of services in community settings, and often related to long-term conditions, is complex, and involves multiple professions and agencies, delivery of care in several locations including home settings, and individually tailored care for episodes lasting over long periods of time. This challenge is poorly supported by current information systems. However, computer-based record systems have a major potential to improve quality of care by enabling integrated care delivery through multi-professional electronic patient records, whilst also providing quality assurance processes. In turn, though, this requires a new evaluation paradigm. Firstly, the multi-disciplinary and holistic ideal of integrated care requires an as yet inadequately developed framework to give structure to assessment of the value and utility of the data recorded and the way in which they are processed and presented, mapped to clinical processes and to the views of consumers as prime stakeholders. Secondly, a deeper and longer-term evaluation philosophy is needed which does not stop after the initial confirmation of system functioning, but continues on with a deepening into the effects on the individual clinical services, and then on the host user organisation. This paper maps out the new paradigm, and suggests specific issues which merit practical research to reset evaluation and assessment tools to this new setting and viewpoints.

Ambulatory Care↗

Establishing a tumour bank: banking, informatics and ethics.

The six divisions of the Cooperative Human Tissue Network in the USA bank and distribute tens of thousands of tissue specimens to researchers annually. Major operational concerns include: maintaining tissue integrity, managing informatics, and protecting patient confidentiality. Increasing molecular genetics testing is also resulting in an increased demand for high-quality nucleic acids.

Confidentiality↗

An operational view of the role of health librarians in informatics.

The National Library of Medicine is currently funding the Pilot Connections project to promote and support use of the INTERNET in community health care settings. With previous networking applications of this kind largely confined to academic and research environments, the health librarian has emerged as the agent with the unique knowledge and skills to participate in and manage organizational change. An experiment in applied informatics, the Pilot Connections project shows how health librarians should be aware of the expanding opportunities that exist for them to help their organizations cope more effectively with the external trends and forces currently affecting the role and value of information.

Computer Communication Networks↗

The role of health informatics in clinical audit: part of the problem or key to the solution?

The concepts of quality assurance (for which clinical audit is an essential part), evaluation and clinical governance each depend on the ability to derive and record measurements that describe clinical performance. Rapid IT developments have raised many new possibilities for managing health care. They have allowed for easier collection and processing of data in greater quantities. These developments have encouraged the growth of quality assurance as a key feature of health care delivery. In the past most of the emphasis has been on hospital information systems designed predominantly for the administration of patients and the management of financial performance. Large, hi-tech information system capacity does not guarantee quality information. The task of producing information that can be confidently used to monitor the quality of clinical care requires attention to key aspects of the design and operation of the audit. The Myocardial Infarction National Audit Project (MINAP) utilizes an IT-based system to collect and process data on large numbers of patients and make them readily available to contributing hospitals. The project shows that IT systems that employ rigorous health informatics methodologies can do much to improve the monitoring and provision of health care.

Data Collection↗

The potential of consumer health informatics.

OBJECTIVES: To describe the rapidly evolving field of consumer health informatics (CHI), which is empowering the patient and the public. DATA SOURCES: Published articles, research studies, and government reports pertaining to interactive health communication and CHI. CONCLUSIONS: Application of CHI can provide information to patients and the public, promote self-care, enable informed decision-making, promote healthy behaviors, and promote peer information exchange and social support. Quality, research methodology, and accessibility must all be increased to ensure that CHI achieves its potential to improve the nation's health. IMPLICATIONS FOR NURSING PRACTICE: With the advent of the internet, the profusion of consumer health-related web sites, online support groups, and electronic patient-centered communications present new challenges for clinical practice. Health care providers have important roles in helping their patients as well as the public locate, assess, and interpret health information.

Consumer Product Safety↗

The Cancer Informatics Infrastructure: a new initiative of the National Cancer Institute.

OBJECTIVES: To inform oncology nurses about the National Cancer Institute (NCI) Cancer Informatics Infrastructure initiative that will transform cancer care through more effective and efficient information exchanges among all involved in cancer research. DATA SOURCES: Published articles and reports from the NCI pertaining to the initiative. CONCLUSIONS: Clinical trials represent the primary mechanism for evaluating promising new strategies to prevent, diagnose, and treat cancer. Advances in information technology and the exponential increase in the use of the internet are providing unprecedented opportunities to streamline the operation and administration of the clinical trials the NCI supports. IMPLICATIONS FOR NURSING PRACTICE: The revitalized system will be more flexible and inclusive and will facilitate input from oncology nurses and others with a commitment to improving cancer care.

Clinical Trials as Topic↗

[Establishment of a uniform common data set for pediatric oncology. Applied Informatics Study Group of the GPOH (Society of Pediatric Oncology and Hematology)].

Large multicenter trials have made a major contribution to the improvement of treatment results in childhood malignancies. Coordination and central documentation ensure the quality of treatment and permit clinical and scientific investigations. This kind of cooperation requires a vast amount of documentation, which by itself has become a critical factor in answering important medical questions. The problems result from non-standardized documentation systems in different studies, from insufficient integration of clinical work and documentation and from a lack of application of modern computer based data management systems. The working group "Applied Informatics" of the German "Gesellschaft für Pädiatrische Onkologie und Hämatologie (GPOH)" has started a project to create an uniform basic data set for the German pediatric oncology group. Relevant initial diagnostic data, information about planned and realized treatment as well as data concerning negative event had to be standardized. A minimal common data set with a substantially reduced documentation, which is applicable for all patients and trials, would have failed to fulfil the clinical as well as the research needs. The data set presented here is a detailed information structure introduced as a basic tool for the improvement of data management in the German pediatric oncology group. This first version of the basic data set will need further development, since some of the problems still need to be resolved and the requirements for such data pools are changing. Based on this data set new computer software and clinical information systems have to be developed to enable documentation and processing of all clinical and study related data.

Child↗

Informatics-assisted protein profiling in a transgenic mouse model of amyotrophic lateral sclerosis.

One of the causes of amyotrophic lateral sclerosis (ALS) is due to mutations in Cu,Zn-superoxide dismutase (SOD1). The mutant protein exhibits a toxic gain of function that adversely affects the function of neurons in the spinal cord, brain stem, and motor cortex. A proteomic analysis of protein expression in a widely used mouse model of ALS was undertaken to identify differences in protein expression in the spinal cords of mice expressing a mutant protein with the G93A mutation found in human ALS. Protein profiling was done on soluble and particulate fractions of spinal cord extracts using high throughput two-dimensional liquid chromatography coupled to tandem mass spectrometry. An integrated proteomics-informatics platform was used to identify relevant differences in protein expression based upon the abundance of peptides identified by database searching of mass spectrometry data. Changes in the expression of proteins associated with mitochondria were particularly prevalent in spinal cord proteins from both mutant G93A-SOD1 and wild-type SOD1 transgenic mice. G93A-SOD1 mouse spinal cord also exhibited differences in proteins associated with metabolism, protein kinase regulation, antioxidant activity, and lysosomes. Using gene ontology analysis, we found an overlap of changes in mRNA expression in presymptomatic mice (from microarray analysis) in three different gene categories. These included selected protein kinase signaling systems, ATP-driven ion transport, and neurotransmission. Therefore, alterations in selected cellular processes are detectable before symptomatic onset in ALS mouse models. However, in late stage disease, mRNA expression analysis did not reveal significant changes in mitochondrial gene expression but did reveal concordant changes in lipid metabolism, lysosomes, and the regulation of neurotransmission. Thus, concordance of proteomic and mRNA expression data within multiple categories validates the use of gene ontology analysis to compare different types of "omic" data.

Amyotrophic Lateral Sclerosis↗

Global Infectious Diseases and Epidemiology Network (GIDEON): a world wide Web-based program for diagnosis and informatics in infectious diseases.

The Global Infectious Diseases and Epidemiology Network (GIDEON) (http://www.gideononline.com) consists of 4 modules. The first is designed to generate a ranked differential diagnosis list for any infectious diseases scenario in any of 220 countries. The second follows the country-specific epidemiology of 337 individual diseases. The third presents a comprehensive encyclopedia of 308 generic anti-infective drugs and vaccines, including a listing of >9500 trade names. The fourth generates a ranked identification list based on the phenotype of bacteria, mycobacteria, and yeasts. The program performs well and serves as a useful paradigm for World Wide Web-based informatics. GIDEON is an eclectic program that can serve the needs of clinicians, epidemiologists, and microbiologists working in the fields of infectious diseases and geographic medicine.

Communicable Diseases↗

Social work informatics: a new specialty.

The use of technology in social work practice has risen dramatically over the past 10 years. Clinical interventions such as psychotherapy using telephones, interactive video, and the Internet are gaining in popularity. For a discipline traditionally tied to face-to-face interaction, many concerns about moving to technology-based practices have been raised. The National Association of SocialWorkers recently embraced a new initiative to address the challenges associated with technology in practice.The authors propose social work informatics as a new specialty for the profession to assist in meeting those challenges.

Humans↗

Applied informatics for quality assessment and improvement.

In our hospital, transition planning for order entry and clinical documentation has presented an opportunity for process changes and the ability to capture quality initiatives into data warehouses, where they can be utilized for building evidence-based practice. For example, the order entry and clinical documentation system allows for data retrieval of performance measures set by organizations including the Joint Commission on Accreditation of Healthcare Organizations, Centers for Medicare & Medicaid Services, and National Quality Forum. These data will reside in one system where they can be mined and extracted for reporting. Details of this magnitude are crucial when developing a CPR that will serve as the primary data source of clinical information. As we continue to seek IT solutions to improve patient safety and provide quality care, the use of informatics as a foundation in quality programs will provide the structure and database needed to support evidence-based practice at the point-of-care and reduce potential for error.

Academic Medical Centers↗

Variables influencing career choices of graduates of informatics programs funded by the National Library of Medicine.

Graduates of the National Library of Medicine-supported Medical Informatics (MI) training programs were studied to determine the variables influencing their choices of an academic or nonacademic career. More than 60% of the available population of trainees (171 of 272) were studied in 1986 and four of the nine variables measured by means of a questionnaire were significant in differentiating the choices the students made. The training programs located in a private institution, with the majority of the faculty from the medical school and with a small number of trainees who already had the M.D. or Ph.D. degree, generated the highest proportion of graduates seeking academic careers. Discriminant analysis was done to determine whether a combination of variables would discriminate between those who chose academic careers and those who did not. It indicated that the status of the institution (public or private); the entry degree of the trainee; and the productivity of the training program faculty were sufficient to correctly classify 75.3% (67 of 89) of the students who chose academics and 71.9% (59 of 82) of those who did not. There is now a baseline of data that can be used in future studies.

Career Choice↗

Nursing informatics: could this new specialty be for you?

The greatest challenge facing home care today is the need to provide the highest standards of care at a time when funds are cut and outcomes must be closely measured. From this challenge has emerged a specialty that integrates information science and computer technology with nursing science: nursing informatics. This article discusses the basics of the field and how home care nurses can best step into the role.

Career Choice↗

The roles of biomedical maintenance branch, automation management & informatics departments throughout a clinical information systems's life cycle.

The introduction of new technology, such as a Clinical Information System (CIS), requires hospitals to re-evaluate the roles of the Biomedical Maintenance Branch, Automation Management, and Informatics departments. This paper describes the process a 400-bed hospital underwent to resolve role ambiguity among the three activities. The institution's goal was to reach an optimal solution to using the resources offered by each activity through redrawing lines of responsibilities. This experience demonstrated that relationships among departments are dynamic and vary depending on the stage of the CIS life cycle.

Biomedical Engineering↗

Nursing informatics in Korea.

The use of computers in the Korean healthcare system began in the late 1970s to expedite insurance reimbursements when the national health insurance system was introduced. Their application in nursing came much later because the insurance fee schedule does not include nursing services. This article explores the history and activities of nursing informatics in Korea in professional organization, education, research, clinical practice, and professional outreach. Suggestions are given on meeting the challenges of information technology for nursing in Korea.

Education, Nursing↗

The design, marketing, and implementation of online continuing education about computers and nursing informatics.

Asynchronous online tutorials using PowerPoint slides with accompanying audio to teach practicing nurses about computers and nursing informatics were designed for this project, which awarded free continuing education units to completers. Participants had control over the advancement of slides, with the ability to repeat when desired. Graphics were kept to a minimum; thus, the program ran smoothly on computers using dial-up modems. The tutorials were marketed in live meetings and through e-mail messages on nursing listservs. Findings include that the enrollment process must be automated and instantaneous, the program must work from every type of computer and Internet connection, marketing should be live and electronic, and workshops should be offered to familiarize nurses with the online learning system.

Computer-Assisted Instruction↗