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PubMed1991

Spiritual well-being, social desirability and reasons for living: is there a connection?

In order to explore the relationship between spirituality, social desirability, and reasons for living, 100 individuals completed the Reasons for Living Inventory (RFL), the Spiritual Well-being Scale (SWBS) and the Marlowe-Crowne Social Desirability Scale (MCSDS). Positive correlations were found between religious well-being and the total RFL score and Moral Objections subscale and between existential well-being and several RFL scales. Results indicate that the RFL Moral Objections subscale taps the same type of beliefs as does the SWBS religious well-being subscale. There also appears to be a strong relationship between the adaptive cognitive beliefs which people report as reasons for not considering suicide and their existential beliefs. This emphasises the need for careful assessment of individual needs and beliefs when dealing with suicidal individuals. Areas of concern to the therapist who is working with a suicidal client were not affected by high SD scores.

Adult↗
PubMed1995

The McGill Quality of Life Questionnaire: a measure of quality of life appropriate for people with advanced disease. A preliminary study of validity and acceptability.

This is the first report on the McGill Quality of Life Questionnaire (MQOL), a questionnaire relevant to all phases of the disease trajectory for people with a life-threatening illness. This questionnaire differs from most others in three ways: the existential domain is measured; the physical domain is important but not predominant; positive contributions to quality of life are measured. This study was conducted in a palliative care setting. Principal components analysis suggests four subscales: physical symptoms, psychological symptoms, outlook on life, and meaningful existence. Construct validity of the subscales is demonstrated through the pattern of correlations with the items from the Spitzer Quality of Life Index. The importance of measuring the existential domain is highlighted by the finding that, of all the MQOL subscales and Spitzer items, only the meaningful existence subscale correlated significantly with a single item scale rating overall quality of life.

Adult↗
PubMed2005

Mood and narrative entwinement: some implications for educational practice.

Moods are one way of existentially reading the authenticity of people and are entwined within any narrative. Attunement between narrative and its mood is crucial for understanding the implicit message of the narrator. Sometimes, a master narrative is interrupted by counternarratives, so that narrative recognition becomes problematic. People can disguise their existential state when narrating, but the mood discloses it nonetheless. The authors explore the relationship between mood and narrative, and how the two are connected with how a person acts authentically or inauthentically. They provide selected empirical examples of narratives from medical students to support their argument. The educational relevance of their discussion comprises the final section. Educators in any educational program must first reflect on, then make explicit the manner in which narrative and mood are used to communicate knowledge.

Affect↗
PubMed2005

The role of spirituality in holistic weight management.

This descriptive, feasibility study was designed to determine how weight management patients defined spirituality and its connection with weight management. Relationships among spirituality assessment, spiritual well-being, self-esteem, and quality of life were explored. This study arose from clinical observations of possible relationships among patients' weight management failures, negative beliefs about self, and spiritual distress. Participants were 34 of 104 adult potential participants from a holistic weight management clinical practice. Survey data were analyzed using qualitative content analysis and quantitative linear regression analyses. Participants readily defined spirituality; significant linear relationships were found: Total spiritual well-being explained approximately 47% of the variance for self-esteem and existential spiritual well-being accounted for approximately 68% of the variance for self-esteem. Similarly, existential spiritual well-being explained approximately 35% of the variance of quality of life. For this convenience sample, spiritual well-being was significantly related to self-esteem and quality of life.

Body Weight↗
PubMed2005

Programmatic staff care in an outpatient setting.

Traditionally, chaplains have provided care for staff through consultation, informal conversation, grief work, and more formal counsel and ritual. This article discusses four programmatic approaches to staff care created in response to particular assessed needs: "Finding Soul" addresses staff care needs to find meaning and joy in their work and to contribute to the "soul" of the institution. "Existential Expedition" helps staff both deal with their accumulated grief and provide better direct care around existential issues being faced by their patients. "After Book" provides a way for staff to have closure with parents/families and to provide holistic care to families after discharge from the system. "The Labyrinth Program" provides staff with an opportunity to de-stress and to attend to their emotional and spiritual well-being. Focused upon staff care, these programs also secondarily benefit both patients/families and the vision and mission of the institution.

Ambulatory Care↗
PubMed2006

Meaning-making and psychological adjustment to cancer: development of an intervention and pilot results.

PURPOSE/OBJECTIVES: To develop an intervention that uniquely addresses the existential impact of cancer through meaning-making coping strategies and to explore the intervention's impact on psychological adjustment. DESIGN: Descriptive, qualitative approach to develop the intervention; one-group pre- and post-test design to pilot test the intervention. SETTING: Patients' homes or ambulatory oncology clinics affiliated with a university health center in eastern Canada. SAMPLE: 18 participants who were newly diagnosed in the past three months (n = 14), had completed treatment (n = 1), or were facing recurrence (n = 3) of breast (n = 10) or colorectal (n = 8) cancer. METHODS: Data were collected during interviews using a prototype intervention for trauma patients, and content was analyzed on an ongoing basis to fit the needs of the cancer population. Pretest and post-test questionnaires were administered to determine the intervention's effect. MAIN RESEARCH VARIABLES: Meaning-making intervention (MMI), patients' background variables, disease- or treatment-related symptoms, and psychological adjustment. FINDINGS: The MMI for patients with cancer consisted of as many as four two-hour, individualized sessions and involved the acknowledgment of losses and life threat, the examination of critical past challenges, and plans to stay committed to life goals. At post-test, participants significantly improved in self-esteem and reported a greater sense of security in facing the uncertainty of cancer. CONCLUSIONS: Findings suggest that meaning-making coping can be facilitated and lead to positive psychological outcomes following a cancer diagnosis. IMPLICATIONS FOR NURSING: The MMI offers a potentially effective and structured approach to address and monitor cancer-related existential issues. Findings are useful for designing future randomized, controlled trials.

Adaptation, Psychological↗
PubMed2001

Changes in quality of life following admission to palliative care units.

The primary goal of palliative care is to improve the quality of life (QOL) of people with a terminal illness. Previous studies of the impact of hospice/palliative care have documented improvement in physical and psychological symptoms, but not in overall QOL, due in part to the difficulties of measuring QOL. The McGill Quality of Life Questionnaire (MQOL) was developed to assess QOL in persons with advanced illness. MQOL scores were determined on admission and 7-8 days later for sequential eligible and willing patients admitted to five palliative care units. These 88 patients represented 8% of those admitted to the units during the study period. Following the final MQOL completion, patients were interviewed and asked to describe the nature of the changes in QOL they had experienced since admission. Significant improvements were found in the MQOL total score and subscale scores reflecting physical, psychological and existential well-being. In the interviews patients indicated that they had experienced changes in physical, emotional and interpersonal status, in spiritual outlook, and in their preparation for death. They also described the impact of the palliative care unit environment. This is the first study to demonstrate that hospice/palliative care can improve existential well-being in addition to psychological and physical symptoms. It provides evidence in the patients' own words that improvements in QOL go beyond symptom control following admission to a palliative care unit. However, the study results are generalizable only to those few patients admitted who are well enough to complete a questionnaire 1 week after admission.

Adult↗
PubMed2001

Cross-cultural validation of the McGill Quality of Life questionnaire in Hong Kong Chinese.

The main focus of palliative care services is to improve patients' quality of life (QOL). The potential value of assessment of QOL in palliative care is being increasingly recognized. The McGill Quality of Life questionnaire (MQOL) is designed specifically for palliative care patients, but its cross-cultural validity needs to be determined before it can be applied in populations of different cultures and ethnic groups. The cross-cultural validity of MQOL was investigated using a translated and modified version in Chinese--the MQOL-HK--in 462 palliative care patients in Hong Kong. Results show that the MQOL-HK is acceptable, valid and reliable. There is good acceptability, construct validity, convergent and divergent validity, test-retest and inter-rater reliability. Our study confirms that QOL does have cross-culturally robust constructs. Principal components analysis shows that the domains of physical, psychological, existential and support are all relevant and applicable in Chinese culture. Multiple regression analysis reveals that existential domain is the most important domain in predicting overall QOL. 'Face', eating and sex are additional facets of QOL that also need to be considered. The worst physical symptom on admission is the item of QOL with the lowest score, which need more care and attention by palliative care workers. A cross-culturally validated QOL instrument cannot just help ensure an accurate evaluation of profile, determinants, and changes of QOL, but is also a valuable asset for future comparison and evaluation of palliative care services and interventions across the world.

Adolescent↗
PubMed2005

Validation of the McGill Quality of Life Questionnaire in home hospice settings in Israel.

Given that the meaning and significance of 'quality of life' can differ among language and cultural groups, it is incumbent upon researchers to assess whether the tool they have chosen is appropriate to the population under study. This study aimed to test the reliability and validity of the McGill Quality of Life Questionnaire (MQOL) translated into Hebrew for use with palliative care patients in Israel. In this, as in previous studies, the 16 questions of the tool clustered into four domains (physical, psychological, existential well-being and support), although the distribution of items among them differed somewhat. The existential well-being and psychological domains had an independent effect on the overall quality of life of patients in Israel, as in other countries. It seems that this tool produces similar responses in metastatic cancer patients around the world, and hence can be used to compare palliative care services in different countries.

Aged↗
PubMed2005

Attitudes of Danish doctors and nurses to palliative and terminal care.

BACKGROUND: The WHO definitions of palliative care have been adopted in Denmark and implemented in The National Guidelines from 1999, but service developments have been very slow and not according to the recommendations. Attitudes to palliative care of Danish doctors and nurses may in part account for this. OBJECTIVE: To assess the attitudes to issues related to palliative care of doctors and nurses in a Danish county hospital and the related primary care services. DESIGN: Cross-sectional survey using a mailed, self-administered questionnaire answered anonymously. PARTICIPANTS: Nurses and doctors employed in a county hospital in Denmark, homecare nurses and general practitioners from the related primary care services. OUTCOME MEASURES: The responses from the groups were compared by chi2 statistics (where ordinal variables with chi2 for trend). Data were analysed using SPSS 10.0. RESULTS: 347 responded, response rate 76%. Eighty-one per cent of all respondents were currently caring for terminally ill patient(s), 94% had done so within the last six months. Hospital doctors see more terminally ill patients than GPs (P = 0.002). Comparison of doctors (both hospital and GPs) with nurses showed that nurses were more likely to definitely agree that palliative/terminal care was a rewarding part of their work (61% 'definitely agree' versus 30%), and they were less likely to prefer to leave care of these patients to others (4% 'definitely/probably agree' versus 9%). Nurses reflected more on existential matters (80% 'definitely/probably agree' versus 63%) and were more likely to agree that dealing with a dying patient made them aware of their own feelings regarding death (97% 'definitely/probably agree' versus 80%). Only 7% of all respondents reported 'being an active member of a religious community'. Ninety-two per cent of all respondents agreed that doctors play a key role in reducing the suffering of dying patients, but 59% of nurses versus 9% of doctors 'definitely/probably agree' that 'it is primarily the task of nurses to deal with patients reactions to death'. There were significant differences between hospital doctors and GPs, with the former less likely to agree that palliative and terminal illness is rewarding, more likely to leave care of dying patients to others, and more likely to 'probably' or 'definitely agree' that it is more satisfying to work with patients who will improve. Home care nurses reflected more on existential matters than their hospital colleagues, and were more likely to 'definitely agree' that palliative/terminal care is rewarding. Differences between groups seemed to be due to profession (doctor versus nurse) and setting (hospital versus community) rather than age or gender. CONCLUSION: These findings suggest that in Denmark nurses demonstrate more positive attitudes to the care of palliative/terminally ill patients than doctors, and that attitudes amongst doctors and nurses working in the community are more positive than those of the colleagues in hospitals. There is currently little education in the principles and practice of palliative care in Denmark. These findings will inform the development of appropriate palliative care education for doctors and nurses working both in the hospital and in the community in Denmark. They also raise the possibility that part of the inertia in the development of palliative care in Denmark is related to the lack of education and, in particular, to the need of support for doctors and nurses providing terminal care so they are enabled to be more reflective on the care they currently provide. There is evidence that education in palliative care can change health professionals' attitudes to palliative and terminal care, and this now needs to be investigated in Denmark.

Adult↗
PubMed1991

Group therapeutic factors on an alcohol in-patient unit.

Seventy consecutive patients admitted to an alcohol unit were given a modified version of Yalom's therapeutic factor questionnaire at various points during the therapeutic programme. This programme consists of a two-week introductory programme, followed by a treatment programme, which includes psychodynamic groups, life-history reviews and intensive cognitive-therapy sessions. Internal agreement of ranking order of therapeutic factors was high among all patients and was independent of time spent in group therapy. Patients valued most an existential factor (which embraces concepts of personal responsibility and isolation), self-understanding and cohesiveness; they least valued guidance and identification. Therapists also completed the questionnaire: their ranking of therapeutic factors correlated highly with that of patients, but they ranked an existential factor much lower.

Adaptation, Psychological↗
PubMed2005

Dignity therapy: a novel psychotherapeutic intervention for patients near the end of life.

PURPOSE: This study examined a novel intervention, dignity therapy, designed to address psychosocial and existential distress among terminally ill patients. Dignity therapy invites patients to discuss issues that matter most or that they would most want remembered. Sessions are transcribed and edited, with a returned final version that they can bequeath to a friend or family member. The objective of this study was to establish the feasibility of dignity therapy and determine its impact on various measures of psychosocial and existential distress. PATIENTS AND METHODS: Terminally ill inpatients and those receiving home-based palliative care services in Winnipeg, Canada, and Perth, Australia, were asked to complete pre- and post-intervention measures of sense of dignity, depression, suffering, and hopelessness; sense of purpose, sense of meaning, desire for death, will to live, and suicidality; and a post-intervention satisfaction survey. RESULTS: Ninety-one percent of participants reported being satisfied with dignity therapy; 76% reported a heightened sense of dignity; 68% reported an increased sense of purpose; 67% reported a heightened sense of meaning; 47% reported an increased will to live; and 81% reported that it had been or would be of help to their family. Post-intervention measures of suffering showed significant improvement (P = .023) and reduced depressive symptoms (P = .05). Finding dignity therapy helpful to their family correlated with life feeling more meaningful (r = 0.480; P = .000) and having a sense of purpose (r = 0.562; P = .000), accompanied by a lessened sense of suffering (r = 0.327; P = .001) and increased will to live (r = 0.387; P = .000). CONCLUSION: Dignity therapy shows promise as a novel therapeutic intervention for suffering and distress at the end of life.

Adaptation, Psychological↗
PubMed2000

Quality of life in ALS depends on factors other than strength and physical function.

OBJECTIVES: To study patients with ALS to determine the following: 1) the relationship between physical function and quality of life (QOL); 2) the instruments that best reflect patients' own ratings of QOL; and 3) whether spiritual/religious factors play a role in determining QOL. METHODS: The authors prospectively studied 96 patients with ALS using several instruments, including the McGill Quality of Life (MQOL) instrument, the Idler Index of Religiosity, the Sickness Impact Profile (SIP)/ALS-19, and several measures of strength and physical function. RESULTS: QOL as assessed by patients (MQOL single item score) did not correlate with measures of physical function and strength, but correlated with the total MQOL score (p < 0.0005), the psychological and existential subscores of MQOL (p < 0. 0005), the support subscore of MQOL (p = 0.001), and the total Idler score (p = 0.001). In contrast, correlations between SIP/ALS-19 and these measures were not significant, although SIP/ALS-19 correlated with measures of physical function and strength. CONCLUSIONS: QOL, as assessed by the patient with ALS, does not correlate with measures of strength and physical function, but appears to depend on psychological and existential factors, and thus may be measured well by the MQOL scale. Spiritual factors and support systems appear to play roles as well. SIP/ALS-19 is a good measure of physical function, but not of overall QOL.

Activities of Daily Living↗
PubMed2005

The experience of loneliness of battered old women.

The present article is part of a larger study examining the life stories of battered old women (Buchbinder & Winterstein, 2003; Winterstein, 2002). It is based on long in-depth interviews with twenty-one aging women who lived with violence for a significant portion of their lives. While the larger study examines a broad range of their experience, including loneliness, regret, expectations of the future, and an attempt to build a monument to their suffering, the present study focuses on loneliness, which appears to constitute the central theme of their existential experience. Content analysis of the interviews shows that loneliness is experienced on all ecological levels, including the self, the family of origin, the violent partner, the children, and the extended family. It also permeates the social relationships of the women and becomes the predominant motif of their social interactions. The combination of loneliness, violence, and old age creates suffering that colors everyday life and becomes not only the constant background against which life unfolds but also the governing variable in their experience. Their cognitive maps, emotional world, and overall sense of self, as well as their sense of existential continuity in the world are all affected by loneliness.

Aged↗
PubMed2003

[Rethinking the challenges of Ulysses and Faust: health, the individual and history].

Concentrating on two historical synecdoches, Ulysses and Faust, this article takes up the etymology of the Latin term salute as a unit lying somewhere between "existential needs" and "especially human needs", leading to the challenge of satisfying the need for "conservation of life" and at the same time to "surpass it, go beyond it". Both meanings are present in Ulysses attitude of not succumbing to the siren s melody and in Faust s desire to rise above everyday life. Some aspects of the Marxist conception of the philosophy of history and Althusser s Structuralist Marxism are criticized. Also, in light of Marxist-Hellerian theory, the article analyzes the hypothesis that the target of the final reports of the VIII National Health Conference was "particular man" and not the individual, since health is treated only as "an existential need", and does not envisage the generic human. As a theoretical challenge, the text, in search of the unfolding individual, finally recommends the construction of "epistemological sutures" between nature and society, everyday life and universality, and the young and old Marx.

English Abstract↗
PubMed1995

Correlates of reminiscence activity among elderly individuals.

The purpose of this study was to examine several psychological characteristics and life experiences that may be related to aspects of reminiscence activity among elderly individuals. Seventy elderly individuals completed a reminiscence questionnaire assessing 1) the extent to which reminiscence is motivated by a desire to enhance self understanding, 2) reminiscence affect, and 3) the preferred social modality of reminiscence. The respondents also completed questionnaires assessing existential vacuum, extraversion, and the recent experience of various life events. Existential vacuum was positively associated with a tendency to engage in reminiscence in an effort to enhance self understanding as well as a negative bias in reminiscence affect. Extra-version was found to be positively related to a preference for interpersonal reminiscence. Specific life experiences (e.g., death of a spouse, retirement) were also related to reminiscence activity. The present results provide support for the notion that aspects of reminiscence activity are associated with individual differences in specific psychological and situational variables.

Adaptation, Psychological↗
PubMed1990

Homelessness among the institutionalized elderly.

Home is the experience of a dynamic relationship between the individual and the environment. It can be viewed as a lived experience that possesses deep existential meaning for the individual. Homelessness is the experience of the negation of home; the relationship between the individual and the environment loses its intimacy and becomes severely damaged. This painful experience brings about deep existential despair. The data supports the strong probability that the institutionalized elderly are homeless and that the elder's attempts to cope with this unendurable pain results in behaviors that are often misinterpreted as indicating acceptance or adjustment to the nursing home setting. Nursing must recognize the possibility that to be institutionalized is to be homeless. This intolerable state must be alleviated either through significant modification of nursing home psychosocial environments or the identification of alternative settings for the care of chronically ill and debilitated elderly persons.

Aged↗
PubMed1991

Therapeutic factors in occupational therapy groups.

A survey was administered to patients and their therapists in an attempt to assess which therapeutic factors were perceived as helpful in occupational therapy groups. The patients' responses were compared to their therapists' for similarities and differences. Both groups highly valued factors of group cohesiveness, instillation of hope, and interpersonal learning. The therapists also valued guidance and identification, which the patients did not. Least valued by the patients were guidance, existential factors, and identification; least valued by the therapists were self-understanding, family reenactment, and existential factors.

Adult↗