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[Handicap and quality of life assessment in amyotrophic lateral sclerosis].

Measures of handicap progression alone are insufficient for assessing what a patient experiences. Handicap results from the interaction between a person's disabilities and the social, familial and environmental factors which determine his or her living conditions. Other factors condition quality of life: of these, psychological and existential factors and an individual's ability to adapt play a fundamental role. Measuring handicap and quality of life must provide medical care providers with comprehensive knowledge of the way in which an individual experiences the disease, his or her handicap and the side effects and constraints of treatments within his or her own life context.

Amyotrophic Lateral Sclerosis↗

Prevention of mental handicaps in children in primary health care.

Some 5-15% of children aged 3 to 15 years in both developing and developed countries suffer from mental handicaps. There may be as many as 10-30 million severely and about 60-80 million mildly or moderately mentally retarded children in the world. The conditions causing mental handicaps are largely preventable through primary health care measures in developing countries. Birth asphyxia and birth trauma are the leading causes of mental handicaps in developing countries where over 1.2 million newborns die each year from moderate or severe asphyxia and an equal number survive with severe morbidity due to brain damage. The other preventable or manageable conditions are: infections such as tuberculous and pyogenic meningitides and encephalopathies associated with measles and whooping cough; severe malnutrition in infancy; hyperbilirubinaemia in the newborn; iodine deficiency; and iron deficiency anaemia in infancy and early childhood. In addition, recent demographic and socioeconomic changes and an increase in the number of working mothers tend to deprive both infants and young children of stimulation for normal development. To improve this situation, the primary health care approach involving families and communities and instilling the spirit of self-care and self-help is indispensable. Mothers and other family members, traditional birth attendants, community health workers, as well as nurse midwives and physicians should be involved in prevention and intervention activities, for which they should be trained and given knowledge and skills about appropriate technologies such as the risk approach, home-based maternal record, partograph, mobilogram (kick count), home-risk card, icterometer, and mouth-to-mask or bag and mask resuscitation of the newborn. Most of these have been field-tested by WHO and can be used in the home, the health centre or day care centres to detect and prevent the above-mentioned conditions which can cause mental handicap.

Adolescent↗

Families of young children with handicaps: parental stress and family functioning.

The association of the presence of a child with handicaps and parental stress and family dysfunctioning was examined. Fifty-five families with young children with handicaps were compared with a matched group of families of children without handicaps on the variables of parental stress and family functioning. Results of family psychological measures suggest that families may be resilient in adapting to the demands of raising a child with handicaps. Although families of such children appeared to have high degrees of stress, they differed only minimally from other families in their family functioning. These results reinforce the need for family intervention to alleviate parental stress and for individualized programs emphasizing family strengths and idiosyncratic attributes.

Adaptation, Psychological↗

Dental caries experience and periodontal status of handicapped institutionalised black high school pupils in Soshanguve, Pretoria.

This study compares the oral health status, as reflected by caries experience and periodontal status, of 3 cohorts of institutionalised handicapped pupils. The 3 groups of impairments studied were physical, visual and aural disability. 267 institutionalised handicapped high school pupils were examined. 163 (61 per cent) were physically, 84 (31.5 per cent) visually, and 20 (7.5 per cent) aurally handicapped. 34 per cent of the study population was caries-free with a mean DMFT of 2.63. There was no statistically significant difference (p greater than 0.05) between the caries experience of the three handicapped groups. Similarly no significant difference (p greater than 0.05) was observed between males and females. More than half of the calculus accumulation occurred among the physically disabled. At the 90 per cent confidence interval there was no significant difference in bleeding and shallow pocketing among the three groups. However, there was a significant difference for the presence of calculus. The physically disabled pupils consistently indicated the highest proportion of bleeding, calculus accumulation and shallow pocketing.

Adolescent↗

Perceptions of mental handicap: a comparison of Australian and Irish school children.

Australian secondary school children (N = 955) were surveyed concerning their perceptions of persons with mental handicap. Data collected related to reactions to meeting a person with disability, helping the handicapped person, responses to specific statements about handicapping conditions, causes of disability and the need for further information about handicaps. Results showed some parallels between Australian and Irish school children with both groups reflecting the positive impact.

Attitude↗

[Study of the etiologic factors of bucco-dental pathology in handicapped children and adolescents].

Periodontal diseases and dental caries are extremely frequent in children and adolescents with sensori-motor handicaps. This study was undertaken to identify etiological factors of these affections in order to define preventive measures. During a 3-year-period, a survey was performed among 994 handicapped children and adolescents from 14 institutional centres of the Rhône-Alpes Region. Factors appearing significantly involved in the etiology of periodontal diseases and dental caries among this population were insufficient brushing, lack of motivation towards oral hygiene of the institution, is staff the severity of the motor handicap, and long-term treatments with psychopharmaceutical agents. The authors suggest that preventive measures should be taken in order to eliminate these disabling dental diseases in handicapped children, mainly a reduction in sugar intake, a motivation of the staff to enforce oral hygiene and a limitation of psychopharmoceutical treatments.

Adolescent↗

Hearing handicap as a function of central auditory abilities in the elderly.

The relationship between central auditory nervous system dysfunction and hearing handicap was investigated in 30 older adults with mild losses of hearing sensitivity. Self-perceived hearing handicap was assessed with the Hearing Handicap Inventory for the Elderly. The degree of central auditory nervous system involvement was determined based on the magnitude of the discrepancy between the maximum scores obtained for PB-50 word lists and the Synthetic Sentence Identification test. Significant correlations were observed between self-perceived hearing handicap and central auditory nervous system status. These relationships were significant even while controlling for auditory sensitivity and age.

Aged↗

Impact of central auditory processing disorder and cognitive deficit on the self-assessment of hearing handicap in the elderly.

We studied the impact of central auditory processing disorder (CAPD) and cognitive deficit (CD) on the self-assessment of hearing handicap in 122 elderly subjects. Self-assessment was quantified by means of the Hearing Handicap Inventory for the Elderly (HHIE). Results showed that cognitive impairment exerted no significant effect on the self-assessment of hearing handicap. Subjects with CAPD, however, rated themselves as significantly more handicapped than non-CAPD subjects. Furthermore this difference did not interact with degree of loss. It was present even in subjects without significant peripheral sensitivity loss. These results support the conclusion that CAPD status is a relevant dimension in the evaluation of the elderly subject with or without peripheral hearing loss.

Aged↗

[The oral health status and the tasks of pediatric dental care for mentally handicapped children and adolescents].

1,018 cerebrally handicapped children were examined and the results were compared with the data of a study of 22,112 children. The caries prevalence (DMF/T and DMF/S), the oral hygiene (OHI-S) and the periodontal treatment needs (CPITN) were recorded. The caries prevalence of the retarded is nearly the same in children without handicap, but the caries prevalence is less in imbeciles and idiots. The degree of treated teeth is lower in the group of handicapped children. The periodontal status is more too bad but there are found no series periodontal diseases. Summarizing it must be demanded an early cooperation between the "dispensary of handicapped children" and the dentist for children and a realization of an intensive preventive care.

Adolescent↗

Dental health of handicapped children; results of a questionnaire to parents.

A questionnaire survey of parents of handicapped children, to complement a clinical examination, was carried out in 25 special schools in Newcastle and Northumberland. From the data collected a number of important issues are raised. Some parents have to travel greater distances than are necessary given the availability of dental services locally, either because it is more convenient or because their child requires special care. As a result perhaps the frequency of attendance of children with handicaps is poorer than that of normal children. With exceptions, most children were assessed as being amenable to routine dental care, and over one third of wheelchair bound patients claimed to be regular attenders, yet a smaller minority of handicapped child patients were seen routinely in general dental practice, compared with the usual child population. The need for greater efforts on the part of parents, dentists and other health care providers in improving the dental health of handicapped children is underlined.

Adolescent↗

Dental health status of mentally and physically handicapped children and adults in the Galway Community Care Area of the Western Health Board.

An epidemiological survey was carried out to assess the treatment needs on the mentally and physically handicapped in the Galway Community Care Area. The survey was conducted by both questionnaire and clinical examination. The results of the survey indicate that the pattern of dental caries for the mentally and physically handicapped children is similar to that for the rest of the child population in Ireland. The results also show that extraction has been the treatment of choice for the mentally and physically handicapped. The periodontal assessment of the handicapped adult population found that moderate pocketing accounted for the bulk of periodontal disease present.

Adolescent↗

Isolation and the mastering of anxiety in physically handicapped children and adolescents.

The detailed exploration of 50 physically handicapped children and adolescents and the evaluation of the results with the help of biography-near rating procedures according to Thomae have produced numerous significant connections. A central theme of the living world of these children can be seen in the social isolation, the dismay about a restriction in the social life circle. The children and adolescents react predominantly to such an isolation with resistance strategies. Whereas in normal everyday life the attribution of responsibility to others, aggression and depression determine the attitude, in the school area playing down and illusion formation, distraction and rationalization are predominant. In the family, depressive-resignative reactions determine the physically handicapped child's responses, just as in leisure time. Finally, in the area of the handicap, if it is perceived in connection with the reaction of social isolation, the most depressive-resignative, attributing responsibility to others, psychophysical and rationalizing ways of reaction occur. In all, an adequate mastering of the handicap is greatly impaired by social isolation.

Adaptation, Psychological↗

[Survey of childhood handicaps in the Unità Sanitaria Locale No. 22 "Valtiberina"].

An epidemiological research about the infantile handicaps has been carried out to make a quantitative and etiological valuation of the existing cases in the social, economic and cultural sphere of U.S.L. number 22 "Valtiberina". Considering an infantile population of 5,063 subjects, 55 cases, corresponding to 1.08% have been examined; 32 of them are male children and 23 are female children. The research which has been carried out shows that there are more cases of psychological handicaps (35 cases out of 55) rather than of organic handicaps. It seems that it is possible to find a connection between this high percentage and the social, economic and cultural situation of the territory. At the same time an efficacious work has been carried out by the Social and Medical Services of U.S.L. and by the school to recognise, to point out, to diagnose and to study these pathologies. Such a study can result useful if we want to plan a campaign to prevent and to treat as soon as possible the infantile handicaps.

Adolescent↗

Oral function in the physically handicapped with or without severe mental retardation.

Neuromotor handicaps and mental retardation have been associated with various types of dental malocclusions and oral dysfunction. In this study the specific role of mental status on oral functions was examined. For this, oral function capacity was compared between two groups of physically handicapped children and young adults, one with a physical handicap alone, the other with mental retardation. The latter were found not only to be significantly more motor-impaired in general, but also were found to have significantly more deficient oral functions (speech, swallowing and chewing). Mentally retarded also showed significantly more frequent involvement with regard to some other characteristics of oral function and oral conditions, such as lip seal, tongue posture and drooling. As oral dysfunction may cause dental malocclusion, it seems likely that the deviating or immature oral functions in the mentally retarded group may explain earlier observations of a higher prevalence and often more severe malocclusion in these individuals, compared to those who are handicapped.

Adolescent↗

Are dietitians prepared to work with handicapped infants? PL 99-457 offers new opportunities.

PL 99-457 mandates nutrition as one of eight disciplines to be included on the team providing services to handicapped infants (up to age 3) and their families. A case-managed range of services is required to enable the child to benefit from early interventions. Findings from a survey of a sample of entry-level Plan IV/V Programs, Coordinated Programs in Dietetics, and dietetic internships randomly selected from The American Dietetic Association's 1988 Directory of Dietetic Programs indicate that the growth and development of handicapped infants and their nutrition care are underexposed in most didactic and experiential components of the education of entry-level dietitians. A working group of nine nutritionists with expertise in both dietetic education and nutrition care of handicapped children met at a national conference and recommended competencies that they thought would enable entry-level registered dietitians to join interdisciplinary teams working with handicapped infants and their families. Registered dietitians on the team that prepares the Individualized Family Service Plan (IFSP) can strive to ensure that infants are well nourished and therefore more responsive to the other therapies proposed in the plan.

Child, Exceptional↗

[Caries and gingivitis prevention in handicapped children and youth. Part 3. Five-year results].

In schools for handicapped children in Göttingen 104 mentally and physically handicapped and 150 learning disabled pupils participated in an intensive care preventive program. Their teeth were examined before beginning the prevention, after 6 months, and subsequently at annual intervals. The examinations consisted of caries diagnosis and assessment of periodontal health. Five years after the onset of the prevention program the incidence of caries in the various age groups and institutions was 23% to 64% lower than 1982. Results were best in mentally and physically handicapped children aged 9 to 11 years (mean DMF-S 1987: 2.4 versus 1982: 6.6). In the same period of observation the degree of oral health in mentally and physically handicapped children improved from 43% to 73%, in learning disabled from 32% to 63%. Mean SBI values were reduced by 60%.

Adolescent↗

Gynecologic surgery and surgical morbidity in mentally handicapped women.

A multidisciplinary clinic recognizing the reproductive health concerns of mentally handicapped women was organized in 1985. Thirty-three of the 300 women seen in the clinic required surgery. Thirty-seven operations, including 13 major abdominal and two major vaginal operations, were performed. Uterine leiomyoma and ovarian neoplasm were the most common gynecologic conditions requiring major surgery. No complications developed in women undergoing minor procedures; however, six patients undergoing major abdominal procedures developed significant postoperative complications. Because thorough and complete pelvic examinations are often difficult to accomplish in mentally handicapped women, these patients may have increased risk for the delayed diagnosis of gynecologic conditions that require major abdominal or vaginal surgery. Mentally handicapped women with significant physical handicaps are at increased risk of developing postoperative complications, and the postoperative stay may be prolonged.

Adult↗

Malocclusions in physically and/or mentally handicapped children.

The purpose of this work was to study the morphological characteristics of dental occlusion in groups of physically and/or mentally handicapped children, taking into consideration the need of a detailed classification of medical diagnosis and degree of mental capacity. The material consisted of physically handicapped children with normal intelligence, including the subgroups Cerebral palsy and Others (other medical diagnoses), and severely mentally retarded children with or without a physical handicap, including the subgroups Down's syndrome, Cerebral palsy and Others. Totally 115 children (3-17 years) were studied with respect to occlusion, space conditions, hypodontia and received orthodontic treatment, and compared to matched control groups of healthy children. The severely mentally retarded children in all of the handicap groups had the highest prevalence of, and often the most severe, malocclusions compared to their controls. The results indicate that the mental status is more important for the orthodontic status than the medical diagnosis.

Adolescent↗