Search PubMed⌕ Search

SEARCH · Search PubMed

Results for “Respite Care”

Search indexed PubMed citations on genomics, clinical trials, systematic reviews and public health. Explore titles, authors and supplied subject terms, then open the PubMed record.

Quote a phrase for an exact phrase match. Source license links do not imply unrestricted reuse.

At least 55 records · Page 3Linked to original sources
PubMed2006

[Critical social theory perspective on respite care service in Taiwan].

The temporary rest provided by respite care both benefits caregiver well-being and allows care receivers to continue living in the community, effectively reducing rates of institutional placement. The necessity and effectiveness of respite care are well documented in the literature. However, only a few care providers take advantage of such services. Previous research, which has focused largely on personal factors contributing to low utilization rates, limits our understanding of the situation and of the constraints not related to personal factors. This paper attempts to move beyond the individual perspective by framing research in critical social theory in order to understand the current social, political and economical factors that limit caregiver utilization of respite services. Critical social theory, a reflection theory, emphasizes empowerment and conscious-raising in order to promote control of oppressed subjects. In applying critical theory, this paper encourages nurses to raise caregivers' consciousness of their constraining circumstances in order to empower them to access respite services on their own volition.

Caregivers↗
PubMed1997

Respite-care needs--met and unmet: assessment of needs for children with disability.

The study aimed to ascertain the current use of respite-care services by families with children with a learning and/or a physical disability in a South London, UK, health authority, to estimate the type and extent of the unmet need, and to set standards for the provision of such services. Over 1200 families were sent an 11-page questionnaire. The results indicated that the child's level of dependency and the presence of behaviour and communication problems led to significantly higher levels of experienced stress among carers. This was also associated with a significantly greater use of respite care except by families of children with behavioural problems. The results showed that respite care was generally perceived as an inadequate service, though 88% of respondents had no knowledge of the existence of respite-care services. Recommendations are made in relation to information provision, choice, and flexibility for carers and for quality standards in general.

Adolescent↗
PubMedDate not supplied

Determining the contribution of residential respite care to the quality of life of children with severe learning difficulties.

This paper investigates factors which may be influential in determining the impact of residential respite services on residents' quality of life. Residents are all aged 19 or under and have severe learning difficulties. The objective of respite care is to ameliorate some of the burdens which carers associate with caring but to do so without adversely affecting those being cared for, while preferably improving residents' quality of life. The usual focus of evaluations of respite care, however, tends to be directed at how well carers' needs are supported. Only when it is possible to determine the impact of respite care on the quality of lives of both carer and cared for will researchers be in a position to complete a full evaluation. Until then a better understanding of all recipients' responses to respite care is needed. This paper, therefore, takes as its focus the often 'forgotten' recipients, the children with severe learning difficulties themselves. The analysis is somewhat preliminary but this is inevitable reflecting as it does the current state of research work in this area.

Adolescent↗
PubMed1991

Video-based training of respite care providers: an interactional analysis of presentation format.

We conducted two studies to evaluate a video-based instructional package for training respite care providers and the role of presentation format (viewing the videotapes alone, with a partner, and with structured group training) as a contextual variable. In Study 1, the results of a within-subjects Latin square design nested within a multiple baseline showed that performance during simulated (role-played) respite care situations improved in five of the six skill areas for the 12 trainees following presentation of the videotape, with no differences between presentation formats. Correct responding generalized to respite care situations involving a developmentally disabled child, and in most cases, acquired skills were maintained for up to 6 months. In Study 2, we conducted a clinical replication of Study 1 under conditions more closely approximating those in which the training program would be implemented by respite care agencies. Results of the between-groups analysis were consistent with the findings of Study 1.

Adult↗
PubMed1999

Respite care for frail older people and their family carers: concept analysis and user focus group findings of a pan-European nursing research project.

This paper provides a concept analysis of respite care for frail older people and their family carers. The authors re-examine the broader conceptualization of respite care delineated by Nolan & Grant, namely, users' needs for information, education and support about respite care, based on a review of recent literature and on a user focus group study. This work was undertaken by the Sheffield arm of the ACTION Project research team. ACTION is a 36-month project (1997-1999), involving Northern Ireland, The Republic of Ireland, Portugal, Sweden and England and is the largest nurse-led project to have received funding from the European Union TIDE sector (DGXIII Telematics Applications Programme, Disabled and Elderly). The authors discuss the key elements of respite and, more specifically, how they can be successfully used so that the potential of respite may be realized fully by family carers. Recommendations within the context of the ACTION research project are put forward to enable family carers and the persons they care for to make informed choices about respite care.

Adaptation, Psychological↗
PubMed2006

'Give me a break' - respite care for older carers of mentally ill persons.

BACKGROUND: The concept of respite care has been widely accepted and used throughout most developed countries, although primarily in connection with frail elderly, people with dementia, people with developmental disability or children. This paper aims at exploring older family carers' needs for, access to and use of respite services when caring for people with a mental illness (excluding dementia) in the community. METHOD: Data were collected through: semi-structured interviews with 26 mental health professionals, 21 family carers aged over 55 years and 25 respite service providers; demographic questionnaires; field notes; and local area, state and national documents relating to respite care services. Demographic data were analysed using descriptive statistics. All 72 interviews, field notes and other documents were analysed using content analysis. RESULTS: Current respite services are not adequate to meet the needs of mentally ill patients and older carers. The unique aspects of respite care for older carers of persons with mental illness are poorly understood. CONCLUSION: Bringing these issues to light creates the potential to address the unmet needs of older carers, improve provision of respite services, enhance quality of life of those who can benefit from respite services, and assist mental health professionals to work better with carers.

Aged↗
PubMed2005

The impact of residential respite care on the behavior of older people.

BACKGROUND: The aim of this study was to examine the impact of residential respite care on disruptive behavior displayed by older people, particularly those with dementia. METHODS: A quasi-experimental, repeated-measures, single-group design was used. The participants were a consecutive series of 100 older people with a mean age of 81.8 years (range 66-96 years) who had been booked for a respite admission to one of several residential aged care facilities in a provincial Australian city. A diagnosis of dementia was reported for 29% of the sample. Disruptive behaviors were rated before and after the period of respite by home caregivers (N = 100) and during the period of respite by nurses (N = 25) using the Dementia Behavior Disturbance Scale (DBDS). RESULTS: Age, male gender and the presence of dementia were all significantly related to the frequency of reported disruptive behaviors. Residential respite care was associated with a significant reduction in the frequency of reported disruptive behaviors in older people (Wald chi2 = 28.28, p < 0.0001). However, this improvement in behavior did not persist into the post-respite period. The deteriorating behavioral trajectory that was evident prior to respite care continued following the period of respite care. CONCLUSIONS: Residential respite care was associated with a temporary diminution in the frequency of reported disruptive behaviors in older people. This finding should be reassuring both for family carers considering placing a relative in residential respite care and for health workers considering whether to recommend such a course of action.

Aged↗
PubMed1999

Respite care--volunteers as providers.

1. Although many studies examine the impact of respite care on caregivers, few studies have examined the impact of such programs on the volunteer respite provider. Results of such formative evaluation studies must be antecedent to the question of whether respite care "works." 2. Fear of persons with Alzheimer's Disease (AD) was a consistent theme verbalized in this study. Educational programs must therefore include more exposure to actual persons with AD. 3. Caregivers with some past experience composed the majority of volunteers in this group (n = 78%). Recruiting former caregivers of deceased persons with AD may be fruitful future areas of study.

Adult↗
PubMed2006

[The analysis and recommendation of the institutional respite care policy in Taiwan].

As the functionally impaired disabled elderly and the long-term care population has grown, concern about the physical, psychological and social demands facing primary caregivers has increased. An institutional respite care policy was adopted in Taiwan in 1998, but the rate of utilization of institutional care remains low. This article investigates the formative background, related circumstances and problems of respite care policy. The three dimensions of structure, process and outcome form the main framework for policy analysis. "Structure," includes demand and resources. "Process," includes health policy planning procedure, health administration and service delivery processes. "Outcome," covers service utilization, satisfaction, caregiver's well-being and care-receiver's institutionalization rate. In accordance with the results of the analysis the researchers propose recommendations about policy, practice, education and research, in the hope that these will be considered in relation to future modification and execution of respite care policy, in order to provide respite for suffering caregivers, and to carry out the ideal of aging in place.

Health Policy↗
PubMed2006

The effects of respite care for homeless patients: a cohort study.

OBJECTIVES: Homeless individuals experience high rates of physical and mental illness, increased mortality, and frequent hospitalizations. Respite care provides homeless individuals with housing and services allowing more complete recovery from illnesses and stabilization of chronic conditions. METHODS: We investigated respite care's impact on 225 hospitalized homeless adults consecutively referred from an urban public hospital during a 26-month period. The cohort was separated into 2 groups: (1) patients referred and accepted into the respite center and (2) patients referred but denied admission because beds were unavailable. All patients met the center's predefined eligibility criteria. Main outcome measures were inpatient days, emergency department visits, and outpatient clinic visits. RESULTS: The 2 groups had similar demographic characteristics, admitting diagnoses, and patterns of medical care use at baseline. During 12 months of follow-up, the respite care group required fewer hospital days than the usual care group (3.7 vs 8.3 days; P=.002), with no differences in emergency department or outpatient clinic visits. Individuals with HIV/AIDS experienced the greatest reduction in hospital days. CONCLUSIONS: Respite care after hospital discharge reduces homeless patients' future hospitalizations.

Adult↗
PubMed1999

Economic consequences and lack of respite care.

The study examined the influence of a lack of availability of respite care on the careers of 574 parents having children with disabilities. Among these parents, there was a relationship between age of child, severity of disability, and parents missing hours of work or passing up occupational opportunities. These findings have implications for advocating more available and accessible respite services and more in-depth study of the cost effectiveness of respite care on parental income and career progression.

Adolescent↗
PubMed1986

Respite care on a children's ward.

In March 1984 a short term respite care facility for handicapped children was opened in a children's ward catering primarily for acute medical and surgical problems. The facility was based on a four bedded room designed so that if beds became short in the main ward it could revert immediately to the care of acutely sick children. Three nurses were appointed specifically to staff the facility, the nursing budget for the rest of the ward being reduced proportionately. Conversions were funded by charities and some of the conversion work done by volunteers. The main users were totally dependent children aged under 5 with severe mental and physical handicaps. Parents found the service invaluable, and in addition to planned admissions it was usually possible to accept a child at short notice--for example, when some domestic crisis occurred. Only very rarely was admission impossible because of the needs of acutely ill children. A short term respite care facility not only helps parents cope and may provide beneficial experience for a handicapped child but is also a useful training ground for medical students and junior staff.

Child↗
PubMed2002

Paediatric respite care: a literature review from New Zealand.

This paper reviews relevant international and New Zealand literature, policy documents and reports on respite provision for children who are dying and their families. The literature describes why respite care for children is necessary, and evaluates present respite services in accord with recent reports and literature. The service provisions needed for dying children and their families are explored, including suggestions for the improvement of services and future research. The literature reveals that, although respite care for terminally ill children and their families is necessary, service provisions are uncoordinated, not always culturally sensitive and very limited for children and their families. Improvement in paediatric respite services is necessary and research needs to be conducted in this area to facilitate the development of more appropriate respite services for children and their families.

Adolescent↗
PubMed1990

Characteristics of users and nonusers of respite care.

Characteristics of users and nonusers of respite care services were investigated in a sample of 105 biological mothers of children evidencing mild/moderate or severe/profound disabilities. Analyses revealed a low level of service use across groups and no significant difference between groups, despite significantly higher levels of reported stress among mothers of children with more severe disabilities. Results also indicated that marital status and the child's level of functioning were related to reported levels of depression, social support, and personal well being. The discrepancy between demonstrated need and service utilization was highlighted in the discussion.

Activities of Daily Living↗
PubMed2001

Respite care users who have children with chronic conditions: are they getting a break?

Caregiving for children with chronic illness and disabilities by family caregivers at home is widely recognized as an optimal choice for the child and family. To promote and maintain the health of the child, primary caregiver, and entire family, respite care has been established as an important caregiving resource. The purpose of this study was to describe primary caregivers' respite service use, perceptions of actual respite, and barriers to respite and respite care. A descriptive design with written survey methods and convenience sampling techniques was used. We found that, despite accessing a variety of respite services, the participants perceived limited actual respite from caregiving. Increased preparation of respite care providers and revision of available services may be means for achieving respite for primary caregivers and their families.

Adolescent↗
PubMed1993

Respite care in a geriatric rehabilitation hospital: a support system for caregivers of disabled elderly.

Respite care is one of a wide range of services designed to help maintain the infirm elderly at home by reducing the burden on the caregiver. The availability and results of respite care may alter decisions to institutionalize an elderly relative. Fliman Hospital, a geriatric rehabilitation hospital in Haifa, provides short-term, inpatient care for bedridden frail or disabled elderly persons living in the community with the support of an informal network.

Aged↗
PubMed1986

An annotated bibliography on respite care for children and families.

With an increasing emphasis on home care, more and more children with severe disabilities and chronic-acute health impairments will be cared for at home. Care of these children places great financial, physical, and emotional strains on families. Adequate support for families is essential to prevent costly rehospitalization, foster placement, or worse. Respite care is a supportive service that is an important part of every effective plan for home care. This bibliography offers annotations on a range of materials directly addressing or closely related to the topic of respite care for children and families. The bibliography will be useful for the reader searching for general material on the topic as well as the reader interested in specific aspects of respite care, including family perceptions, program models, funding issues, and training. Annotations on articles, reports, books, and some government materials are provided. Additionally, a listing of training materials, and where they can be obtained, is provided without annotations after the bibliography.

Bibliographies as Topic↗