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The health of the elderly and the extent of family mutual aid.

By 1986, Canadian life expectancy at birth for men had risen to 73 years; for women, it was almost 80 years. Life expectancy without disability, on the other hand, was 61.3 years for men and 64.9 years for women. Although many Canadians aged 65 and over suffer from health problems and restrictions in their activities, most consider themselves to be in good, or even excellent, health. However, elderly women are slightly more likely to rate their health status as fair or poor than are elderly men. Circulatory system diseases and cancer are responsible for most cases of hospitalization and death in elderly Canadians. The elderly often exchange services with relatives, and this arrangement seems generally to correspond to their needs.

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Medicaid program; coverage of personal care services--HCFA. Final rule.

This final rule specifies the revised requirements for Medicaid coverage of personal care services furnished in a home or other location as an optional benefit, effective for services furnished on or after October 1, 1994. In particular, this final rule specifies that personal care services may be furnished in a home or other location by any individual who is qualified to do so. This rule conforms the Medicaid regulations to the provisions of section 13601(a)(5) of the Omnibus Budget Reconciliation Act of 1993, which added section 1905(a)(24) to the Social Security Act. Additionally, we are making two minor changes to the Medicaid regulations concerning home health services.

Activities of Daily Living↗

The small group home: needed option for the poor elderly.

This paper covers the possibilities of organizing community services and obtaining funding to make small group homes available to the poor. Statistics show that many frail elderly in nursing homes could function well in less protected environments if transition options for housing and services were available, such as the small group home, which fosters self-direction and "mainstreaming" of older persons in an age-integrated community. It fills a major gap in the continuum of health services at about 2/3 the cost of nursing home care. Only a few states are experimenting with alternative Medicaid regulations which permit payment for health related services, maintenance, homemaking and ADL assistance. None are known to be testing the small group home concept. Thus many older persons requiring some services must be institutionalized, although there may be no need for intensive nursing care or 24-hour supervision. The poor older person's choice, in particular, is restricted by Medicaid regulations. Demonstration small group homes are proving both cost and care effective. Home Care Research in Frederick, Maryland has several such homes. Such alternative "family style" living, with health related services, should be made available to all persons who qualify, regardless of income.

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Final results of the Nashville Comprehensive Emergency Services project.

This demonstration program was originally described in CHILD WELFARE's March 1974 issue. This summary of its results in coordinating the wide variety of services provided for neglected and abused children in a metropolitan area indicates that objectives were met, at a substantial reduction in costs.

Child↗

Working caregivers. A growing market.

By searching for ways to make themselves more valuable, home care agencies often build bridges to their communities through identifying new services to offer. Agencies that begin to develop work-family balance programs will find themselves ahead of the curve. They make themselves invaluable to companies by providing services that make employees happier and healthier.

Absenteeism↗

The church family and kin: an older rural black woman's support network and preferences for care providers.

Although kin and church are considered premier support sources for rural elders, few scholars have undertaken descriptive studies to explore the nature of rural Black elders' support networks and their preferences for in-home service providers. In the case study described in this article, methods of support network analysis and descriptive phenomenology were used to analyze data from five lengthy, open-ended interviews with a 94-year-old rural Black woman. The various groups and individuals of her network are labeled in her words, the network's supportive functions are described, and preferences for providers are noted. In addition, the varying structures of her home care experience with the support network members are described. Her attempts to voice and exercise her preferences for in-home service providers are explained in terms of two contrasting processes: preference uptake and preference suppression. Based on these findings, implications for appraising the appropriateness of rural elders' in-home services are discussed.

Black or African American↗

Rationing home care resources: how discharged seniors cope.

Rationing home care services has become a common strategy used by state/provincial governments to control escalating health care costs, particularly at a time when very little new funding has been re-directed to the home care sector. Across British Columbia, Regional Health Authorities had implemented service reforms that call for the discharge of higher functioning clients from home support service. This paper describes the coping strategies of 137 senior clients who were discharged from home support services and from the Continuing Care Program in the Simon Fraser Health Region located in British Columbia, Canada. Personal interviews were conducted by experienced case managers to gain an understanding of how seniors were coping 19 to 21 months after their discharge. Of the 137 clients, 34.3% are characterized as being "home alone and suffering in silence," 29.2% reported receiving assistance from informal sources or reported paying out-of-pocket for private care, and 28.4% reported that they can do the work better themselves. The remaining 8.0% of participants reported mixed feelings about the impact of their discharge from home support service. The effectiveness of discharge targeted to a senior population is discussed and it is suggested that functional status together with age are important criteria when rationing home care services.

Activities of Daily Living↗

Unmet and undermet need for activities of daily living and instrumental activities of daily living assistance among adults with disabilities: estimates from the 1994 and 1995 disability follow-back surveys.

BACKGROUND: Accurate assessments of need for disability assistance are essential for effective planning of disability support services, but there is little national data on type and acuity of need. OBJECTIVE: To more fully delineate the type and magnitude of disability assistance needs across the US population, focusing on factors associated with perceived gaps in assistance. RESEARCH DESIGN: Secondary analysis of national household survey. SUBJECTS: Twenty-five thousand eight hundred five adults identified as disabled in the 1994 and 1995 National Health Interview Surveys. MEASURES: Self-reported assistance deficits with activities of daily living (ADLs) and instrumental activities of daily living (IADLs). RESULTS: An estimated 3.2 million adults with disabilities have at least one assistance deficit, usually involving IADLs like housework. However, approximately 970 thousand adults report one or more assistance deficits with basic ADLs. Compared to adults with met ADL needs, people with ADL assistance deficits are more likely to live alone, to be in poor health, to be a member of a racial or ethnic minority, and to need help with multiple activities. DISCUSSION: These analyses suggest a relatively high rate of unmet and undermet need for disability assistance in the general population. However, only a small number of these adults report assistance deficits with basic ADLs. This group is a logical target for expanded state or federal personal assistance services programming.

Activities of Daily Living↗

Management of respite and personal assistance services in a consumer-directed family support programme.

BACKGROUND: The present study explores the management of respite and personal assistance services by families with relatives with developmental disability (DD). It focuses on the control of families over recruiting, hiring, training, scheduling, directing and negotiating wages of the staff they hire to provide services. METHODS: Surveys from 97 families using paid respite or personal assistance services were used to test associations between: 1) level of control of services and outcome variables; 2) hiring relatives to provide services and outcome variables. RESULTS: More control by families in the management of their respite/personal assistance services was associated with increased service satisfaction, increased community involvement of individuals with DD and increased employment of mothers. Families tended to hire friends, neighbours, and to a great extent, other family members. Hiring of other relatives to provide services was associated with the increased community involvement of individuals with DD. CONCLUSIONS: The present study supports the idea that there are benefits for both caregivers and individuals with DD with increased control of respite and personal assistance services. The study also supports benefits associated with hiring relatives and recommends additional research in this area to guide policies.

Adult↗

Using supportive services to manage cost while improving quality.

Supportive services have traditionally been viewed as secondary to the skilled services in home care. Yet increasingly these supportive services can be more important to clients than many organizations recognize--and more important in managing costs as well.

Activities of Daily Living↗

The ethics of PAS: morally relevant relationships between personal assistance services and physician-assisted suicide.

Although personal assistance services would appear to have no direct connection to the national debate over legalization of physician-assisted suicide, arguments relating to personal assistance have been raised in the debate. Independent living opponents of a right to assisted suicide contend that people with disabilities who do not have access to the basic personal assistance services they need are inherently oppressed, and a society that provides a right to assisted suicide is essentially an accomplice in coercing such individuals to end their lives. Independent living proponents of the right argue that people with disabilities should have control over the assistance they need to achieve all their goals, and access to desired assistance in seeking death may allow some to decide to forgo or postpone what would otherwise be a desperate act. Both sides would agree that personal assistance services are extremely important to people with disabilities, and that universal access to such services will eliminate a major area of contention in the right-to-die debate in the United States.

Activities of Daily Living↗

Home health care workers' attitudes toward the elderly.

This study examined home health care workers' attitudes toward the elderly and their elderly clients. Data were collected from a convenience sample of 106 home health care workers in South Central Florida in October 1994, using the Attitudes Toward the Elderly Questionnaire (ATE). Estimated internal consistency reliability of the scale was .60, using Cronbach's alpha. Findings suggest that home health care workers have positive attitudes toward the elderly, their elderly clients, and provide a reasonable level of service for them. Also, findings suggest that overall the attitudes and perceptions among urban and rural home health care workers are similar.

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Networking the rural community.

A branch network of affiliate hospitals has been providing home care services to rural North Dakota residents successfully for a decade. Here's how this effective system meets the special challenges that a rural environment poses for hiring, training, scheduling, and supporting home care aides.

Allied Health Personnel↗