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Genetic testing of children: confluence or collision between parents and professionals?

Nursing has been challenged to lead in all areas of knowledge development in genetics. In addition to participation in genetic counseling and research, the profession must be an advocate for the proper use of new clinical practices in genetic care. One of these areas is the largely unregulated practice of genetic testing of minor children. Psychological and bioethical concerns have been raised about testing children at parental request when no immediate benefit will result. Several professional bodies have urged the adoption of guidelines that would limit parental choice in the testing process. This article argues that little data exists to support the creation of strict regulations, and also notes that analysis of this issue through the use of alternative ethical theory can yield useful directions for nurses attempting to navigate this controversial topic.

Child↗

Finding your way around qualitative methods in nursing research.

The intention of this paper is to assist neophyte and traditionally educated nurse-researchers to navigate the qualitative research literature with understanding. The labelling language describing the central structures of the qualitative paradigm will be discussed as the key element to facilitating insight. The 'trustworthiness' of this research perspective will also be addressed within the context of the nursing research literature.

Humans↗

Navigating the educational system: a practical guide for nurse practitioners.

An education specialist in follow-up clinics for childhood cancer survivors assists these individuals in meeting their complex educational needs. Most survivors present with unique educational profiles as a result of their cancer diagnosis or treatment. Children at risk for neurocognitive late effects are especially in need of ongoing educational consultation. Lack of funding for educators in the clinical setting results in the need for nurse practitioners to take on this role. However, nurse practitioners may feel inadequate in regard to their knowledge of the educational system. This article presents a model for targeting high-risk patients and monitoring their educational needs and gives practical advice in advocating needed services in the school system.

Achievement↗

MindBodySpirit Medicine.

OBJECTIVES: To present an overview of MindBodySpirit medicine including discussions of the efficacy of select self-care approaches. DATA SOURCES: Research and clinical articles on select complementary interventions. The model developed by the Center for Mind Body Medicine. CONCLUSION: Good information, self-care skills, and a supportive environment can assist an individual to achieve a higher level of physical, emotional, and spiritual wellness while navigating the cancer experience. IMPLICATIONS FOR NURSING PRACTICE: Increasing numbers of patients with cancer are becoming active in their health care and are choosing complementary approaches. There is an increasing body of literature supporting these interventions in improving quality of life. Nurses can acquire information to help patients navigate the expanding arena of complementary practices. "What Else Can I Do?" "What Else Can I Do?"

Attitude to Health↗

Teaching for life: integrating aging into the rehabilitation education program.

As the population with spinal cord injury (SCI) steadily ages, nurses find it more and more challenging to prevent secondary complications. SCI, an already complex topic, is made more so with the addition of the aging process. Aging need not be a negative occurrence, but can be viewed as a path in life that requires careful navigation along the way. Nurses need to incorporate the concepts of wellness and disease prevention education into the initial rehabilitation program to better prepare patients for a long and healthy life. This article briefly describes respiratory and genitourinary complications associated with aging with an SCI and some specific teaching strategies for prevention and management of these two complications.

Aging↗

What nurse leaders should know about complex adaptive systems theory.

The purpose of this article is to provide an overview of key concepts in understanding complex adaptive systems theory (CAS) and its application to nursing management. CAS concerns altering management practice and revolutionizing how nurse leaders think, behave, and problem solve. CAS discards former beliefs and embraces the concepts of self-organization and attractors (catalysts that allow new behaviors to emerge spontaneously) that enable order and creativity to emerge. Stressing that the most powerful processes begin at the micro level of an organization with the staff, complexity science offers nursing leadership new strategies for successfully navigating chaotic, complex times in health care management.

Humans↗

A road map for navigating end-of-life care.

As nurses begin to develop the sensitivities and skills necessary to preserve the integrity of clinical care and professional life, they must recognize the legitimacy of their perspectives and the value and consequences they have for the well-being of patient and family care. Nurses have much to contribute to the development of ethical practice environments for patients, families, multidisciplinary team members, and themselves. The frenzied, and at times anesthetized, culture of clinical settings can mitigate against the kind of deliberate reflection that is necessary if nurses are to act with ethical integrity. Knowing the rules of the road for end-of-life care and being attentive to common warning signs and addressing them proactively, enables nurses to provide patients and families with the highest quality care at the end of life.

Ethics, Nursing↗

Evaluating the Beta version of the International Classification for Nursing Practice for domain completeness, applicability of its axial structure and utility in clinical practice: a Norwegian project.

The purpose of this Norwegian project was to evaluate the International Classification for Nursing Practice (ICNP) Beta version for domain completeness, applicability of its axial structure and utility in clinical practice. A subset of terms addressing the areas of circulation and elimination were abstracted from the nursing records of a cardiac intensive care unit and a nursing home. Abstracted terms were mapped to terms in the ICNP. In the ICNP, the same or similar terms were found for 47% of the documented circulation terms and 69% of the documented elimination terms that addressed nursing phenomena. For nursing interventions, 27% of the documented circulation terms and 35% of the documented elimination terms mapped to the ICNP. The research team encountered difficulty in coding terms with the ICNP that expressed patients' perspectives, preferences, behaviours and experiences, and terms that represented signs-and-symptoms. Recommendations for further development of the ICNP include improvement in granularity, precision and conceptual definitions of terms; inclusion of time-related terms for representing nursing phenomena; and an easier method for navigating around the ICNP.

Abstracting and Indexing↗

How the brain recognizes and responds to shock.

The rat that wishes to reach the goal of his learning and attain the reward, his very own mountain of cheese, must be able to navigate through the maze (Figure One). So the nurse, to reach the goal of understanding why the outward manifestations of shock occur must learn to navigate through the physiological maze of the body. After considering some general information on shock, we will embark on a tour through the maze created by the shock syndrome.

Blood Pressure↗

Exploring the heart of ethical nursing practice: implications for ethics education.

The limitations of rational models of ethical decision making and the importance of nurses' human involvement as moral agents is increasingly being emphasized in the nursing literature. However, little is known about how nurses involve themselves in ethical decision making and action or about educational processes that support such practice. A recent study that examined the meaning and enactment of ethical nursing practice for three groups of nurses (nurses in direct care positions, student nurses, and nurses in advanced practice positions) highlighted that humanly involved ethical nursing practice is also simultaneously a personal process and a socially mediated one. Of particular significance was the way in which differing role expectations and contexts shaped the nurses' ethical practice. The study findings pointed to types of educative experiences that may help nurses to develop the knowledge and ability to live in and navigate their way through the complex, ambiguous and shifting terrain of ethical nursing practice.

Canada↗

Nurses' views of using computerized decision support software in NHS Direct.

BACKGROUND: Nurses working in NHS Direct, the 24-hour telephone advice line in England, use computerized decision support software to recommend to callers the most appropriate service to contact, or to advise on self-care. AIMS: To explore nurses' views of their roles and the computerized decision support software in NHS Direct. METHODS: Qualitative analysis of semi-structured interviews with 24 NHS Direct nurses in 12 sites. FINDINGS: Nurses described both the software and themselves as essential to the clinical decision-making process. The software acted as safety net, provider of consistency, and provider of script, and was relied upon more when nurses did not have clinical knowledge relevant to the call. The nurse handled problems not covered by the software, probed patients for the appropriate information to enter into the software, and interpreted software recommendations in the light of contextual information which the software was unable to use. Nurses described a dual process of decision-making, with the nurse as active decision maker looking for consensus with the software recommendation and ready to override recommendations made by the software if necessary. However, nurses' accounts of the software as a guide, prompt or support did not fully acknowledge the power of the software, which they are required to use, and the recommendation of which they are required to follow under some management policies. Over time, the influence of nurse and software merges as nurses internalize the software script as their own knowledge, and navigate the software to produce recommendations that they feel are most appropriate. CONCLUSIONS: The nurse and the software have distinct roles in NHS Direct, although the effect of each on the clinical decision-making process may be difficult to determine in practice.

Attitude of Health Personnel↗

Am I still ethical? The socially-mediated process of nurses' moral identity.

In a recent, currently unpublished, research project that sought to examine the meaning and enactment of ethical nursing practice across a variety of clinical settings, the significance of moral identity was highlighted. This article describes the findings and illuminates how the moral identities of the nurse participants arose and evolved as they navigated their way through the contextual and systemic forces that shaped the moral situations of their practice. The study revealed the socially-mediated process of identity development and the narrative, dialogical, relational and contextual nature of nurses' moral identities.

Attitude of Health Personnel↗

The nurse's role in bioethics.

Hospital ethics committees consist of representatives from multiple disciplines who discuss potential issues and real-life ethical dilemmas that confront patients, their family members, and the health care professionals involved in patient care. Bioethical issues may provoke strong emotional responses from ethics committee members. Recognizing the difficulty of resolving issues that address moral beliefs is imperative. Nurses are in key positions to help health care professionals navigate these troublesome ethical waters.

Bioethics↗

Black American folk medicine health care beliefs: implication for nursing plans of care.

Even in this age of information, some African Americans equate good health with luck or success. An illness or disease, viewed as undesirable, may be equated with bad luck, chance, fate, poverty, domestic turmoil, or unemployment, and in such case, Black Americans will consult a physician only after attempts with home remedies have failed. It is important for the nurse when working with Black patients, remember that when this patient enters the traditional bio-medical health care delivery system, it is best to assume that all known and available cultural home remedies have been tried. According to Bloch (1976), some Black Americans believe that the nurse should recognize cultural medical practices and the western medical remedies based on these beliefs. It is essential that the nurse determine whether these home remedies will interact or interfere with orthodox medical approaches. If home remedies are found to be efficacious or neutral. they may be kept at the patient's bedside. However, if they are found to be harmful, the nurse should assist the patient in developing an understanding about the remedies' dangers. With an emphasis on education, the patient can be navigated toward modern medical preventive techniques and cures, and the nurse may observe and judge the variety and efficacy of age-old culturally entrenched health care practices. Future studies may just substantiate the science behind the folklore.

Black or African American↗

Integrated case management: the 21st century challenge for HMO case managers: Part I.

As HMOs approach the new millennium, their care and cost management strategies still will be under attack by policy-makers, legislative bodies, the media, American businesses, and the medical professions. The HMO industry will continue to be held accountable for the efficiency of its services, the quality of its care, and the performance and outcome measures that are the results of managing both the care and medical costs of its membership. This first of a two-part series put forward the concept of an integrated CM model to manage the total care of needs of HMO members at the turn of the century. This model consists of three care management approaches commonly used in mature HMOs: demand management, CM, and DM, as illustrated in Figure 1 and defined in Table 1. This article also described the new challenges facing HMOs, physicians, and nurse case managers and how they are navigating the difficult process of mapping demand management and CM approaches to the medical, social, and environmental needs of HMO members. With the costs of chronic conditions consuming 61% of the nation's annual health bill and increased numbers of the elderly joining HMOs, HMOs strongly need to implement DM approaches for economic survival reasons alone. Part two of this series will focus on the newest care management approach: disease state management.

Case Management↗

The role of the nurse in the care of sexual assault victims.

In this article, a unique and comprehensive role has been described for the nurse who functions within the context of a rape counseling team. Nurses can assume a variety of nontraditional roles in facilitating the recovery of sexual assault victims. They can function as crisis intervention counselors, victim advocates with regard to law enforcement and medical personnel, as well as educators in relation to both the victim's significant other and to legal, medical, mental health personnel with whom the victim may interact. The nurse who responds to the victim in a holistic manner, fulfilling a number of nontraditional roles, can promote the victim's smooth navigation of systems involved with her care. In so doing, the nurse provides continuity of care and facilitates the victim's recovery from the trauma of sexual assault by simplifying the process of treatment.

Counseling↗

Gifts from the grave: lessons learned for living well.

Often expected to work institutional miracles although under resourced, most hospice and palliative care nurses excel in meeting consistently intense and demanding clinical and human challenges. They do so by staying focused and being grounded, highly accountable, responsive, and empathetic. With time and experience, they often master the art of advocacy, and through developing a capacity for "organization-with-heart," they navigate very complex institutional, systemic, cultural, and societal waters. Nurses are present to patient and familial wounds; the sights, sounds, smells of chaos and beauty; gladness and grief; intimacy and numbness. Our guest author today distills years of nursing experience into a very few words that can be shared in classrooms, homes, and clinics. It is clear that she not only knows of what she speaks, but, having died many times to that which is not fruitful, she separates the essential from the nonessential and, in so doing, is renewed and full of life. Isn't this an ultimate demonstration of integration and embodiment? Therese Schroeder-Sheker, The Chalice of Repose Project.

Advance Directives↗

Roadmap to HIPAA: keeping occupational health nurses on track.

So what does HIPAA require most covered entities to do? At this point, the Privacy Rule compliance date has already passed for all covered entities except small health plans. Most of the requirements under the Privacy Rule dictate the development of appropriate policies and procedures, a notice of privacy practices and other forms, implementation of measures to secure the privacy of PHI, contracting with Business Associates, and training of all involved. For covered entities, testing of the electronic standard transactions to exchange data between participating parties should have begun by April 16, 2003. Although full implementation of the electronic transactions should have taken place by October 16, 2003, the government has allowed covered entities that are still actively working toward compliance to operate under contingency plans. It remains unclear when the use of such plans will be disallowed. After standards are published for claim attachments and first report of injury, these electronic standard transactions will be incorporated by the designated compliance date. Appropriate use of national identifiers will be implemented after final rules and standards are published. For the occupational health nurse who is not a covered entity, the most critical implementation factor is a HIPAA compliant authorization form so the occupational health nurse can continue to obtain necessary PHI. This is essential when attempting to obtain medical information, even for workers' compensation or disability case management. Although these plans are not considered health plans under HIPAA and, therefore, would not require the designation of covered entity, the occupational health nurse frequently needs to obtain PHI to manage these cases. Most providers in the health care community will be covered entities under HIPAA and will not be able to release PHI without a signed HIPAA compliant authorization form. In addition, providers will want a HIPAA compliant authorization form signed when requesting health information from the occupational health nurse. The HIPAA's privacy regulations are considered "the floor" or minimum standard for the protection of PHI. As such, it is likely that these privacy regulations will become the "industry standard" to which all health care professionals will be held. Even though the occupational health nurse may not be a covered entity, implementing appropriate HIPAA procedures is recommended. Knowing that most of HIPAA's privacy rule contains requirements already in place and in practice for most occupational health nurses can take some of the worry out of this complex regulation. Additionally, the nurse interacts with the health care system in a variety of roles. As a health care consumer, occupational health nurses can assert their own patient rights when interacting with covered entities. As the trusted advisor and consultant to many employees, the occupational health nurse can play a vital role in educating employees about HIPAA and assisting employees with navigating an ever-complex health care system. As a health care professional, the occupational health nurse continues to protect and safeguard all PHI while respecting employees' rights and delivering quality care. Staying knowledgeable and up-to-date on the HIPAA regulations as they continue to evolve and change allows occupational health nurses to stay on the right course while mapping their way toward regulatory compliance (see Sidebar for recommended resources).

Guideline Adherence↗