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Is the English National Health Service meeting the needs of mentally distressed Chinese women?

OBJECTIVES: To identify barriers to communication between health care workers and Chinese women living in England, a group who are known to use the National Health Service (NHS) less than other ethnic groups; to consider whether such barriers lead to inequitable access to NHS mental health treatment; and to determine the extent to which this results from institutional racism. METHOD: A purposive sample of 42 Chinese women living in South-East England aged 29-60 years derived from a primary care group, two secondary mental health service providers and three Chinese associations. Subjects had all consulted a general practitioner and had either experienced mental distress (n= 24) and/or had used traditional Chinese medicine (n = 25). RESULTS: Communication with health care professionals was hindered by a lack of common language and an absence of shared concepts concerning the causes and manifestations of health and illness, particularly mental health. This lack of communication resulted in delayed diagnoses, misunderstood treatment regimens and deterred women from (re-)presenting to the NHS. Among our informants, these types of problem were more acute for those women who were most marginalised from English-language culture. CONCLUSIONS: Linguistic and conceptual problems explain Chinese women's relatively poor access to mental health services. The continuing failure to tackle systematically these communication problems through the routine provision of interpretation and advocacy services lays the health care system open to the charge of "institutional racism".

Adult↗

Barriers to patient-physician communication about out-of-pocket costs.

BACKGROUND: Though many patients and physicians believe that they should discuss out-of-pocket costs, research suggests that they infrequently do. OBJECTIVE: To examine barriers preventing patient-physician communication about out-of-pocket costs among study subjects recalling a time when they wanted to discuss these costs but did not do so. DESIGN, SETTING, AND PARTICIPANTS: Cross-sectional surveys of 133 general internists and 484 of their patients from 3 academic and 18 community practices in a large midwestern metropolitan region. MEASUREMENTS: Patient- and physician-reported barriers to discussing out-of-pocket costs. MAIN RESULTS: Overall, 54 patients (11%) and 27 physicians (20%) were able to recall a specific time when they wanted to discuss out-of-pocket costs but did not do so. Among patients, a wide variety of barriers were reported including their own discomfort (19%), insufficient time (13%), a belief that their physician did not have a viable solution (11%), and concerns about the impact of discussions on quality of care (9%). Among physicians, the most common barriers reported were insufficient time (67%) and a belief that they did not have a solution to offer (19%). CONCLUSIONS: Efforts to promote discussions of out-of-pocket costs should emphasize the legitimacy of patients' concerns and brief actionable alternatives that physicians can take to address them.

Adolescent↗

The effects of cultural diversity on providing health services.

The purpose of the study was to highlight major aspects and problems of cultural diversity in the context of providing health services, and to suggest means for overcoming problems in this context. The major issues discussed were communication as a culture-dependent process, paradigms of relationships between the health professional and the patient, and the potential of various communication features to serve as barriers or bridges between the patient and the health professional. In order to overcome inhibitory effects of cultural diversity on communication, two theoretical approaches were presented. One approach was grounded in the theory of meaning that deals with processing information, the other in cognitive orientation theory that deals with predicting, understanding and changing behaviours. Results demonstrated how to overcome stereotypes and other communication barriers by means of awareness of meanings and expansion of meanings of the relevant stimuli (e.g., patient), and by means of promoting the production of a motivational disposition grounded in beliefs about oneself, about reality, about norms and about one's goals. In summary it is possible to overcome communication barriers and other difficulties potentially dependent on cultural diversity and produce an environment in which cultural diversity is an advantage rather than a source of problems.

Attitude of Health Personnel↗

All in the family: evaluation of the process and content of sisters' communication about BRCA1 and BRCA2 genetic test results.

Despite the potential importance of family communication, little is known about the process and content of communicating BRCA1/2 test results to relatives. The objectives of this observational study were to describe the process and content of communicating BRCA1/2 test results to sisters, and to evaluate whether the proband's carrier status influenced communication outcomes. Participants were 43 women who were the first family member to have genetic testing (probands). Probands reported on communication outcomes for 81 sisters. Process and content variables were evaluated 1-month after receipt of BRCA1/2 test results using the Family Communication Questionnaire (FCQ). Overall, BRCA1/2 test results were communicated to 85% of sisters, and carriers communicated their results to significantly more sisters compared to uninformative (96% vs. 76%, FET = 0.02). The most important reason for communicating results was to provide genetic risk information; however, compared to uninformatives, carriers communicated their results to significantly more sisters to obtain emotional support (74%) and to get advice about medical decisions (42%) (FET = 0.001). Carriers also discussed the possibility of discrimination and recommendations for cancer management with significantly more sisters. Among sisters to whom BRCA1/2 test results were not communicated, the most important reason for not sharing test results was because of emotionally distant relationships. The results of this study suggest that probands are likely to quickly communicate their BRCA1/2 test results to relatives and that although needs for social support may motivate family communication, emotionally distant relationships may be a barrier to communication with relatives.

Adult↗

Improving communication for people with learning disabilities.

Patients with learning disabilities have higher healthcare risks than the general population. Health professionals need to develop skills that enable them to communicate effectively with this patient group. Identifying barriers to communication is the first step to reducing or removing them. Suggested strategies to improve healthcare access for patients with learning disabilities include: developing individualised health action plans, simplifying communication styles and providing accessible facilities and tailored resources.

Access to Information↗

Ethnicity and prenatal depression: women's experiences and perspectives on communicating about their emotions and feelings during pregnancy.

The purpose of the study was to examine the relationship between ethnicity, the presence of moderate to severe symptoms of depression, and communication about emotions and feelings during prenatal visits. The purpose was also to describe women's perceptions of the barriers to communicating with providers, family, and friends about their emotions or feelings and how to overcome these barriers. Seventy-three women were recruited and interviewed by a bilingual research assistant between June and September 2002 after a prenatal visit occurring between 12- and 32-week gestation. Nineteen percent of women screened as having moderate to severe symptoms of depression. Quality of social relationships had a significant negative relationship with whether women had moderate to severe symptoms of depression. Almost 29% of women reported discussing their emotions or feelings with their providers and this did not differ significantly by ethnicity. Women who discussed their emotions or feelings with their providers did have significantly higher scores on the Beck Depression Inventory-II (BDI-II) than those who did not. Thirty-four percent of women stated that there were barriers to expectant or new mothers communicating with their providers. Women who felt that there were barriers to expectant or new mothers discussing their emotions with their providers did have significantly higher BDI-II scores than those women who did not. Thirty-seven percent of women believed that there were barriers to expectant or new mothers communicating with their family about their emotions. Women felt that providers and families could try to develop trust with them and try to make them feel more comfortable discussing their feelings.

Adolescent↗

Communication and information needs and barriers: an international collaboration model.

This future vision paper describes the emerging issue of multicultural medical informatics teams. In an increasingly networked healthcare environment, the rise of global teams has come to the forefront, calling for an increased understanding of various cultural norms. Team members may reside in other countries and be known to others only virtually. Concomitantly, the team dynamics of physically present members may be impacted by international factors such as culture of origin.

Communication↗

The impact of language barriers on the health care of Latinos in the United States: a review of the literature and guidelines for practice.

Although Spanish was the primary language of an estimated 11 % of adults in the year 2000, the U.S. health care system is largely geared toward serving English speakers. A systematic review was conducted of studies published in biomedical journals from 1990 to 2000 examining language barriers in health care for Latino populations. Aspects of the problem examined were access to health care, quality of care, and health status/health outcomes. Five (55%) of the nine studies examining access to care found a significant adverse effect of language; three (33%) found mixed or weak evidence that language affected access. Six (86%) of the seven studies evaluating quality of care found a significant detrimental effect of language barriers. Two of the three studies examining health status or outcomes found language to be a risk factor for adverse outcomes. Evidence was mixed as to the level of importance attributable to language when access to care is considered; however, non-English-speaking status was a marker of a population at risk for decreased access. Solid evidence showed that language barriers can adversely affect quality of care. Health care practitioners are recommended to devise an effective strategy to bridge language barriers in their setting. National laws and policies are discussed; practical guidelines and resources for providing language access in health care are provided. This article is intended to supply basic knowledge for providers and institutions in devising effective strategies for bridging the language barrier.

Adult↗

Promoting multidisciplinary relationships: a pragmatic framework for helping service providers to work collaboratively.

Multidisciplinary teamwork is increasingly considered the ideal way to provide mental health services. This is especially the case when working with children or families. However, there is little easy-to-use information available to help practicing professionals recognize and overcome barriers to working in multidisciplinary settings. There are even fewer resources intended for use across disiplines. This paper offers a practical approach to help mental health professionals identify barriers to teamwork and create solutions to those barriers.

Canada↗

Gender, sexuality and communication issues that constitute barriers to the use of natural family planning and other fertility awareness-based methods.

Fertility awareness-based methods of family planning are rarely offered through reproductive health services in Latin America, despite evidence that many women use them. Providers state that clients do not want these methods, but provider-bias is evident. Providers overestimate the difficulty of learning and using fertility awareness-based methods, and they underestimate their efficacy. Both providers and clients have difficulty dealing with sexuality (which is central to fertility awareness-based methods). Many providers lack gender sensitivity, 'worsening' the unequal relationship between providers and clients. Experience has shown that when fertility awareness-based methods are well provided, they can have a positive effect on sexuality, self-understanding, and equality in the couple's relationship.

Awareness↗

[Breaking of bad news. Practical advice to physicians for successful communication with patients].

BACKGROUND: In the more and more complex world of modern medicine, communication skills become increasingly important. Many physicians are however unaware of their difficulties in giving information in a clear and comprehensible way. This is especially true for breaking bad news. Keys for good communication consist in: careful preparation of the physical context of the interview; finding out how much the patient knows or suspects; giving the information in small amounts and a balanced way; responding to the patient's feelings and finally making a contract for the future.

Communication Barriers↗

Educating families from ethnic minorities in type 1 diabetes-experiences from a Danish intervention study.

Ethnic minorities may constitute vulnerable groups within Western health care systems as their ability to master severe chronic diseases could be affected by barriers such as different culture and health/illness beliefs, communication problems and limited educational background. An intervention focusing on immigrant families with children with type 1 diabetes is described. The intervention included the development of adapted educational material and guidelines, and a subsequent re-education of children, adolescents and parents from 37 families. The study demonstrated that it was possible to improve health outcome. During the study, the knowledge of diabetes increased, but with considerable differences between the families. HbA(1c) also decreased significantly during the intervention, but increased during follow-up. The paper discusses possible explanations and suggestions for optimising education and calls for new projects where ethnic minorities are active participants in the development of appropriate educational programs and material.

Adolescent↗

Communication systems for the nonvocal based on frequent phoneme sequences.

A new type of nonvocal communication system has been developed for people unable to produce speech because of neuromotor impairment. It is designed to be as flexible as the alphabet, while requiring significantly fewer acts of selection on the part of the user. The items in this type of system are phoneme sequences which have a high frequency of occurrence in the phoneme sequences included, the fewer the selection gestures required. A system of this type--Par le si la b-- is available for French, and one for English--SPEEC (Sequences of Phonemes for Efficient English Communication)--is being field-tested. Both systems are implemented in lapboard form and on encoded eye-gaze selection (Etran) charts (Eichler, 1975) and are potentially compatible with a variety of electronic communication devices. To the nonvocal individual with good comprehension and the ability to begin learning regular sound-letter correspondences, this approach offers an unrestricted and potentially more rapid communication mode that may allow greater opportunity to develop and exercise language than is currently afforded by the alphabet or by preselected-vocabulary systems.

Adult↗

Comparison of continuing care communication.

PURPOSE: To describe and compare the patient-care communication exchanged between personnel in hospitals and nursing homes (NHs) and hospitals and home health agencies (HHAs) in referrals of elderly patients using an adaptation of classic communication theory. Little research on patient-care communication across organizational settings has been reported. This study offers baseline information about inter-organizational communication and insight into barriers to patient care communication. DESIGN: A retrospective, descriptive study using a convenience sample of 455 medical records of referrals to NHs and 300 to HHAs. METHODS: Medical records were audited and a Referral Data Inventory (with established reliability and validity) was completed for each of the records reviewed. Data were collected between January and June 1995. FINDINGS: Greater amounts of referral data were transferred to NHs, than to HHAs. Patient information was composed largely of background and medical data, followed by some nursing care data and limited psychosocial data. Hospitals employed more formal channels of communication in referring patients to NHs than to HHAs, and communicated information more promptly. Some organizational factors related to both the referring hospitals and receiving organizations resulted in discrepancies in patient-care communication. CONCLUSIONS: Continuity of patient care involves a series of coordinating linkages across time, settings, providers, and consumers of health care. Communication is a core task in coordinating patient care. Increased and improved inter-organizational communication is needed when patients are discharged to nursing homes or home health agencies.

Aged↗