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Dental self-care and dietary characteristics of remote-living Indigenous children.

INTRODUCTION: Indigenous children in remote communities carry a disproportionate amount of the dental disease burden among Australian 4-12 year-olds. However, there have been no reports of dental service use, dental self-care or dietary characteristics among remote-living Indigenous children. This information may provide insight into behaviours linked with the high levels of dental disease observed. The purpose of this study was to examine such behaviours among Indigenous children in three remote communities in the Top End of the Northern Territory of Australia. The study is part of a wider investigation involving the implementation and monitoring of water fluoridation plants in two of the communities, and the collection of clinical dental data from children in these three and other remote communities. METHODS: In 2003, small-scale fluoridation plants were installed in two remote communities (Communities A and B) in the Top End of the Northern Territory with naturally low fluoride levels in the water and with a high prevalence of child dental disease. Another community (Community C) was selected as a comparison site (natural levels of water fluoride low). A convenience sample of carers of children from all communities completed a questionnaire that sought information on carer education and their children's age, sex, use of dental services, dental self-care behaviours, dietary characteristics, household water source and water consumption. The questionnaires were administered by a project worker and community residents once consent had been obtained. Data were analysed using SPSS version vers.13.0 (SPSS Inc; Chicago, IL, USA). RESULTS: Some 214 carers completed the questionnaire for 409 children aged 4-12 years; 131 (32.0%) from Community A, 158 (38.6%) from Community B and 120 (29.3%) from Community C. The response rates for the child survey based on Census data (generally regarded as an undercount) was 55% across the three communities. Approximately one-third of carers had had no secondary schooling or could not recall their level of educational attainment. Child age was reasonably spread over the target age-range and there were no significant differences between communities by sex. Approximately one-third of children were reported to have had their teeth checked every year by a dental therapist and most children were reported to use a toothbrush. While most children were also reported to use toothpaste, only 20% of such children reportedly used it every day. Time of toothpaste use was evenly distributed between morning and evening, with a small proportion of children reportedly using it twice a day. The most common age that toothpaste use began was 4 years and most children had never taken fluoride supplements. Over three-quarters of children who reportedly consumed softdrinks, cordial, milk or flavoured milk in the evenings drank such beverages at least a few evenings each week. Over 90% of children across the three communities who reportedly drank tea, and approximately three-quarters of those who consumed sweet snacks, did so at least a few evenings each week. Almost all houses were connected to the community water supply. Most children sourced their drinking water from a tap and approximately two-thirds were reported to drink more than 4 cups of water a day. CONCLUSIONS: Our study showed there were low levels of preventive dental care, irregular use of dentrifices, negligible implementation of alternative fluoride sources, high consumption of sweetened snacks and drinks in the evenings, and almost universal connection of houses to the public water supply among remote-dwelling Indigenous children. The findings provide some insights into factors contributing to the poor and declining state of such children's dental health, and should aid in the planning and implementation of oral health promotion initiatives.

Adolescent↗

Kidney disease among the indigenous peoples of Oceania.

The prevalence of kidney disease is increasing among the indigenous peoples of Oceania--the region of the world that includes Australia, New Zealand, Papua New Guinea, and thousands of smaller islands. The number of indigenous people with early kidney disease is hard to quantify, but risk factors, including hypertension and diabetes, are widespread. The incidence of kidney failure is known in major population centers, where dialysis treatments are available, but few data are available elsewhere in Oceania. Nevertheless, the incidence of end-stage renal disease among Aborigines, Torres Straits Islanders, Pacific Islanders and Maori is considerably higher than in the surrounding non-indigenous populations, and most of the kidney failure is attributed to diabetes. Despite the high incidence of kidney failure among indigenous people, few receive kidney transplants, and geographic and economic constraints limit the availability of dialysis treatment. Consequently, clinical management should emphasize prevention, screening, and early intervention.

Adult↗

[Magical thinking and epilepsy in traditional indigenous medicine].

INTRODUCTION: Witchcraft with regard to epilepsy in ancestral indigenous cultures has been modified by the presence of white doctors so that traditional and scientific-western treatments coexist. OBJECTIVE: To analyze traditional anti-epileptic treatment and the basis of the relevant magic in diverse indigenous cultures in Central Africa and in Central and South America. MATERIAL AND METHODS: Transcultural analysis of the Bassá, Fufulve and Bambiliké tribes (Log-bikoy, Camerun), Wangoni (Songea, Tanzania), Guarani (Paraguay) and Maya Tzeltal (Chiapas). RESULTS: In traditional Africa epilepsy is linked to the evil eye. In the Wangoni tribe the curative ritual requires complete shaving of the entire body using glass, or banishment of the person causing the evil influence. In the Bassá and Bambiliké, burns are a common complication and epilepsy is known as the disease of people with burns. In Meso-american culture epilepsy is caused by some abuse suffered by the animal soul which accompanies the person involved, following a battle between the naguales or spirits who serve the forces of Good and Evil. Traditional indigenous medicine employs herbal remedies, rituals, spiritual cures or combinations of all these. More than 80% of the epileptic patients of the Third World use only these remedies. CONCLUSION: The mythical concept of the disease is the basis for interpretation of epilepsy in traditional indigenous cultures. The psychological benefit obtained from the traditional therapeutic model has made this necessary and complementary to western-style treatment.

Black or African American↗

Making sense of Census data: a components analysis of employment change among indigenous Australians.

"The 1996 Census count of indigenous Australians included a substantial number of individuals who were not recorded as indigenous by the previous census. This paper considers the implications of this for interpreting change in employment numbers. Two adjustments are made to employment change data. First, reverse survival of the 1996 population is applied to reconstruct 1991 employment figures. Second, administrative data are used to discount employment generated by participation in labour market programs. The effect is to substantially deflate the strong intercensal employment growth apparent from census counts with the conclusion that the rate of indigenous employment in the mainstream labour market has fallen."

Australia↗

The cost and cost trajectory of genome sequencing and bioinformatics analysis for Indigenous children with suspected rare diseases.

PURPOSE: Indigenous peoples are underrepresented in reference genome libraries. Consequently, rare disease diagnosis may require bespoke bioinformatics analyses of genome sequences. Establishing diagnostic cost is crucial to support policy development for equitable diagnosis of rare diseases. We estimated the cost and cost trajectory of diagnostic genome sequencing and bioinformatics for Indigenous participants with suspected rare diseases. METHODS: We conducted a microcosting study of Indigenous children and their families receiving genome sequencing through Canada's Silent Genomes Project. Invoice data informed the costs of genome sequencing. We conducted a time-and-motion study for bioinformatics analyses, including labor, computing, and data storage costs. RESULTS: With standard bioinformatics, costs ranged from C$3645 (SD: 455) for singletons to C$7402 (SD: 566) for trios. With advanced, bespoke bioinformatics, costs ranged from C$5344 (SD: 634) for singletons to C$9760 (SD: 822) for trios. Genome sequencing was a primary cost driver; however, sequencing costs decreased by 61% over 4 years. Bioinformatics costs ranged from 21.3% to 58.3% of the total costs. The time required for bioinformatics ranged from 71 hours to 215 hours for standard and advanced analyses, respectively. CONCLUSION: Genome sequencing costs decreased over time. Bioinformatics is a significant cost driver, particularly for bespoke analyses arising from nonrepresentative reference libraries.

Humans↗

One approach to improving indigenous health care through medical education.

The present paper discusses some of the issues relating to the poorer health and shorter life expectancy of Australian Aboriginal and Torres Strait Islander peoples. The barriers to improvement include funding of the medical service, the nature of early contact between Indigenous peoples and the European settlers, and the complex nature of Indigenous cultures. The role of the new medical school at James Cook University is discussed in relation to its mission of meeting the health care needs of the population of tropical and rural North Queensland. Indigenous representation in the management of the Medical School, staff selection, student selection, and curriculum content are discussed, and recommendations are made for a partnership approach to achieving improvements in the functioning of the health system of the area.

Community Participation↗

Indigenous men taking their rightful place in society? A preliminary analysis of a participatory action research process with Yarrabah Men's Health Group.

Men's groups are increasingly being accepted as an important strategy in improving health and well-being, especially in Indigenous communities. However, it is hard to find systematic documentation and evaluation of such initiatives in the literature. This paper analyses the formative stages of a participatory action research (PAR) process which aims to engage and support the members of the Yarrabah Men's Health Group plan, implement and evaluate their activities. Data for the paper are based on a combination of a review of relevant literature, analysis of project documentation, participant observation and discussion and reflection with the participants of the men's group. The paper highlights the importance of (a) using a reflective approach, such as PAR, to engage men's support groups to clearly define the principles and values which both define them and to which they aspire and (b) personal development, education and employment, as a prerequisite for Indigenous men taking greater control and responsibility for their lives. These types of micro-level studies have important implications for the way community development is perceived and approached in Indigenous settings. There are also implications for the roles that academic researchers can play in supporting and adding value to community-driven initiatives to the mutual benefit of both parties.

Community Health Planning↗

Colors, humors and evil eye: indigenous classification and treatment of childhood diarrhea in highland Guatemala.

Focal group interviews on indigenous perceptions and reported management of childhood diarrhea were conducted in 1987-88 in Guatemala as a part of a prospective epidemiological field study of chronic diarrhea. Six cognitive schemata were identified, each with specific causes, a linked progression of concepts, symptoms, signs, and diagnostic characteristics. Nearly all were related to the humoral theory of disease, including the concept of evil eye. Diarrheal disease was conceptualized in the village as a set of processes which could be either "hot" or "cold" rather than as an unchanging single-symptom entity occupying only one spot on the humoral continuum. Clarification of the temporal relationship between concepts was found to be essential to the understanding of these indigenously-defined schemata. Stool color reflecting humoral theory was the primary concept used in household-level diagnosis. Reported behavior associated with these cognitive schemata (traditional treatments, pharmaceutical and dietary management) showed remarkable constancy, and adhered for the most part to the humoral concept of equilibrium. These included the use of oral rehydration solutions (ORS) and liquids. The applied importance of humoral theory to home-based use of ORS is discussed briefly as is the indigenous definition of dehydration.

Child, Preschool↗

Suicide among indigenous peoples: introduction and call to action.

Indigenous people around the world have the highest suicide risk of any identifiable cultural (or ethnic) group. It is a youth epidemic. The World Health Organization (WHO) has called for action; this special issue of Archives of Suicide Research (ASR) is an attempt to heed this call. Scholars, indigenous and non-indigenous, present data from the Arctic, Canada, Australia, New Zealand, Brazil, and other regions. It is concluded that not only data, but also explanations are needed. Suicide is multi determined. Colonialism and its associated genocide are, however, cited as a common factor. Yet, much greater cooperative international efforts are needed to not only understand, but also predict and control the epidemic.

Global Health↗

Suicide among indigenous peoples: a cross-cultural perspective.

The study of suicide in indigenous peoples is explored in different nations, both within nations containing many types of indigenous peoples and also across cultures. Some illustrations are given of how studies of indigenous peoples can be used both to test existing theories of suicide and generate new theories of suicide.

Attitude to Health↗

Dirty questions: Indigenous health and 'Western research'.

OBJECTIVE: This paper explores both Indigenous and non-indigenous critiques of 'Western' research frameworks in an Aboriginal health context. It also discusses the 'reform' of Aboriginal health research practices since the 1980s, particularly in relation to the development of ethical guidelines. METHOD: The text is based on both archival research and a critical review of secondary literature. CONCLUSIONS AND IMPLICATIONS: It is argued here that efforts to reform the practices of mainstream Indigenous health research since the 1980s have oscillated between taking concrete steps towards actually changing research practice and placing too great a reliance on written guidelines and positive rhetoric. In offering this analysis, the paper argues for a more challenging conception of reforming mainstream research, involving an emphasis on shifts in institutional arrangements as well local research practices.

Australia↗

Can human rights discourse improve the health of Indigenous Australians?

OBJECTIVE: Recognition of the poor health outcomes of Indigenous Australians has led to an interest in using human rights discourse as a framework for arguing that the Australian Government has an international obligation to improve Indigenous health. METHOD: This paper explores two potential directions for human rights discourse in this context. The first is the development and elaboration of an asserted 'human right to health'. The second focuses on developing an understanding of the interactions between health and human rights, particularly the underlying social determinants of health, and thereby creating an advocacy framework that could be used to promote the inclusion of human rights considerations into the policy-making agenda. RESULTS: This paper argues that despite the symbolic force of human rights discourse, its capacity to improve the health of Indigenous Australians through international law is limited. This is so irrespective of whether recourse is made to a legal or moral imperative. CONCLUSION AND IMPLICATIONS: The 'human right to health' is limited primarily by several barriers to its implementation, some of which are perpetuated by the current Australian Government itself. Although the potential advocacy capacity of human rights discourse is similarly limited by the hostility of the Government towards the notion of incorporating human rights considerations into its public policy decision making, it does provide a sustainable intellectual framework in which to consider the social and structural determinants of health and maintain these issues on the political agenda.

Australia↗

Outreach and improved access to specialist services for indigenous people in remote Australia: the requirements for sustainability.

STUDY OBJECTIVE: To examine the role of specialist outreach in supporting primary health care and overcoming the barriers to health care faced by the indigenous population in remote areas of Australia, and to examine issues affecting its sustainability. DESIGN: A process evaluation of a specialist outreach service, using health service utilisation data and interviews with health professionals and patients. SETTING: The Top End of Australia's Northern Territory, where Darwin is the capital city and the major base for hospital and specialist services. In the rural and remote areas outside Darwin there are many small, predominantly indigenous communities, which are greatly disadvantaged by a severe burden of disease and limited access to medical care. PARTICIPANTS: Seventeen remote health practitioners, five specialists undertaking outreach, five regional health administrators, and three patients from remote communities. MAIN RESULTS: The barriers faced by many remote indigenous people in accessing specialist and hospital care are substantial. Outreach delivery of specialist services has overcome some of the barriers relating to distance, communication, and cultural inappropriateness of services and has enabled an over fourfold increase in the number of consultations with people from remote communities. Key issues affecting sustainability include: an adequate specialist base; an unmet demand from primary care; integration with, accountability to and capacity building for a multidisciplinary framework centred in primary care; good communication; visits that are regular and predictable; funding and coordination that recognises responsibilities to both hospitals and the primary care sector; and regular evaluation. CONCLUSIONS: In a setting where there is a disadvantaged population with inadequate access to medical care, specialist outreach from a regional centre can provide a more equitable means of service delivery than hospital based services alone. A sustainable outreach service that is organised appropriately, responsive to local community needs, and has an adequate regional specialist base can effectively integrate with and support primary health care processes. Poorly planned and conducted outreach, however, can draw resources away and detract from primary health care.

Community-Institutional Relations↗

[Indigenous peoples' health and the implementation of Health Districts in Brazil: critical issues and proposals for a transdisciplinary dialogue].

Based on the authors' experience, this paper discusses a series of problems during the implementation of so-called Indigenous Health Districts (DSEI) in Brazil, related to organization of health services provision as viewed by both health professionals and anthropologists. The authors report on the Health District model's underlying concepts and present the different approaches used to implement the DSEI. The authors' experience refers to the Rio Negro area - in the northwestern Amazon, representing 10% of Brazil's total indigenous population - and the Brazilian Northeast, specifically the State of Pernambuco, with an indigenous population estimated at 20,000.

Brazil↗

Place of the indigenous and the western systems of medicine in the health services of India.

The interrelationships of the indigenous (traditional and western (modern) systems of medicine are a function of the interplay of social, economic, and political forces in the community. In India, western medicine was used as a political weapon by the colonialists to strengthen the oppressing classes and to weaken the oppressed. Not only were the masses denied access to the western system of medicine, but this system contributed to the decay and degeneration of the preexisting indigenous systems. This western and privileged-class orientation of the health services has been actively perpetuated and promoted by the postcolonial leadership of India. The issue in formulating an alternative health care system for India is essentially that of rectifying the distortions which have been brought about by various forces. The basic premise for such an alternative will be to start with the people. Action in this field will lead to a more harmonious mix between the indigenous and western systems of medicine.

Conflict, Psychological↗

The upsurge of interest in Indigenous health in the 1950s and 1960s.

During the 1950s and 1960s, there was a dramatic explosion in the number of letters to the editor about Indigenous health published in the MJA, reflecting increased reader interest. The letters from Barry Christophers were part of the Federal Council for Aboriginal Advancement's largely successful campaign for equal civil rights for Aboriginal and Torres Strait Islander people. His letters not only drew attention to discriminatory legislation and policies, but also emphasised the structural (especially economic) determinants of Indigenous ill-health, and the negative impact on Indigenous people of racist medical representations.

Australia↗

The Bibbulung Gnarneep Project: practical implementation of guidelines on ethics in indigenous health research.

Human rights and ethical principles justify Indigenous control of health research conducted in Indigenous communities, but also emphasise the need for scientific rigour, knowledge and expertise, much of which currently resides with the non-Indigenous community. In 1994, we began development of the Bibbulung Gnarneep Project on Aboriginal maternal and child health in Perth, Western Australia. We describe the process of developing a protocol to ensure ethical conduct of this research through consultation and negotiation between Aboriginal and non-Aboriginal people involved in the project.

Australia↗

[The indigenous population in Latin American censuses].

"On reviewing the information about the indigenous population in the [Latin American] census data, clear discrepancies can be found. The main problem lies in the various definitions of indigenous population....The greatest difficulty arises from the multiple dimensionality of socio-cultural elements.... Existing estimates on indigenous population for the whole region largely vary and, in most cases, seem to be determined by strong emotions or, at least, based on highly subjective criteria. In spite of the strong criticism about the estimates taken from the population censuses, this source is generally one of the few with a real base." (SUMMARY IN ENG)

Censuses↗