Culturally adapted post-diagnostic dementia support for South Asian people living with dementia and caregivers: a rapid review.

Amirah Akhtar; Emmanuel Nwofe; Emily Dodd; Gary Fry; Nerice Knight; Karan Jutla; Richard Cheston; Sahdia Parveen

doi:10.1093/ageing/afag266

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Culturally adapted post-diagnostic dementia support for South Asian people living with dementia and caregivers: a rapid review.

Amirah Akhtar·Emmanuel Nwofe·Emily Dodd·Gary Fry·Nerice Knight·Karan Jutla·Richard Cheston·Sahdia Parveen

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Abstract

BACKGROUND: The number of minority ethnic people living with dementia (PLWD) in the UK is predicted to rise to 50 000 by 2026 and 172 000 by 2051. As the global population ages, there is a greater need to develop culturally appropriate post-diagnostic support for PLWD from minority ethnic backgrounds. METHODS: A rapid review was conducted of culturally adapted post-diagnostic dementia support for South Asian people with dementia and carers. Eight electronic databases were searched from inception until 16 September 2025. Databases included Cumulative Index to Nursing and Allied Health Literature, Excerpta Medica Database, MEDical Literature Analysis and Retrieval System Online, Psychological Information, Turning Research Into Practice, Allied and Complementary Medicine Database, Social Policy and Practice and the Cochrane Database of Systematic Reviews. Two reviewers independently screened the studies. Consistent with rapid review methods, no formal quality assessment of included studies was undertaken. The rapid review adhered to Preferred Reporting Items for Systematic Review and Meta-Analysis guidelines. RESULTS: Twelve studies were included. These included seven carer support programmes focusing on raising awareness and education on dementia and care. These interventions increased carers' knowledge of dementia and confidence in caregiving. Four studies reported on psychosocial interventions: Cognitive Stimulation Therapy, Cognitive Behaviour Therapy and Meditation Therapy, demonstrating benefits for caregiver burden and mental health. One study reported on service-level innovations through a South Asian link nurse, which improved access to services and facilitated the development of culturally appropriate information materials. CONCLUSION: The findings of this rapid review demonstrate the feasibility and perceived value of culturally sensitive psychoeducation, carer training and psychosocial interventions. However, research remains small-scale, methodologically limited, with little focus given to interventions directly supporting PLWD.

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Humans Dementia Caregivers South Asian People Asia, Southern Culturally Competent Care Social Support United Kingdom Health Knowledge, Attitudes, Practice Alzheimer South Asian culture dementia older people post-diagnostic support Journal Article Review Systematic Review

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Amirah Akhtar, Emmanuel Nwofe, Emily Dodd, Gary Fry, Nerice Knight, Karan Jutla, Richard Cheston, Sahdia Parveen. 2026-09-04. Culturally adapted post-diagnostic dementia support for South Asian people living with dementia and caregivers: a rapid review.. https://doi.org/10.1093/ageing%2Fafag266

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