PubMed · 2689321
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L Knechtly. 1989. Where else but here?. https://pubmed.ncbi.nlm.nih.gov/2689321/
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OBJECTIVE: To test two methods of providing low cost information on the later health status of survivors of neonatal intensive care. DESIGN: Cluster randomised comparison. SETTING: Nine hospitals distributed across two UK health regions. Each hospital was randomised to use one of two methods of follow up. PARTICIPANTS: All infants born </=32 weeks' gestation during 1997 in the study hospitals. METHOD: Families were recruited at the time of discharge. In one method of follow up families were asked to complete a questionnaire about their child's health at the age of 2 years (corrected for gestation). In the other method the children's progress was followed by clerks in the local community child health department by using sources of routine information. RESULTS: 236 infants were recruited to each method of follow up. Questionnaires were returned by 214 parents (91%; 95% confidence interval 84% to 97%) and 223 clerks (95%; 86% to 100%). Completed questionnaires were returned by 201 parents (85%; 76% to 94%) and 158 clerks (67%; 43% to 91%). Most parents found the forms easy to complete, but some had trouble understanding the concept of "corrected age" and hence when to return the form. Community clerks often had to rely on information that was out of date and difficult to interpret. CONCLUSION: Neither questionnaires from parents nor routinely collected health data are adequate methods of providing complete follow up data on children who were born preterm and required neonatal intensive care, though both methods show potential.
People with serious functional disabilities do not always call attention to their needs for care, and are therefore a vulnerable group in our society. In Sweden, The Act Concerning Support and Service for Persons with Certain Functional Impairments (LSS) is intended to provide for them. Our research found that people with serious physical or psychiatric disability suffer more often from intercurrent disease and have more problems with their eyesight, hearing and dental health than do other individuals. The responsibility for their respective health care needs must be clarified, so that the group is given priority access to the health care system and services for rehabilitation.
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