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PubMed · 11912894

Strength in unity.

Mary Suther
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Abstract

Mary Suther is a legend in home care. She has been in home care for many, many, many years, long before there was the National Association for Home Care. In fact, she was instrumental in the creation of the National Association for Home Care. NAHC has grown and prospered in large part to the leadership of Mary Suther, who has been on the Board for years in a variety of different roles and is our Chairman. She is a truly great individual. Mary Suther gave the following speech at NAHC's 2001 Annual Meeting. We reprint it here for the benefit of our readers.

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Mary Suther. 2002. Strength in unity.. https://pubmed.ncbi.nlm.nih.gov/11912894/

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The Severe Respiratory Insufficiency (SRI) Questionnaire: a specific measure of health-related quality of life in patients receiving home mechanical ventilation.

BACKGROUND AND OBJECTIVE: The objective of this study was to develop a specific instrument for measuring health-related quality of life (HRQL) in patients receiving home mechanical ventilation (HMV). METHODS: The Severe Respiratory Insufficiency (SRI) Questionnaire was developed and tested for its psychometric properties following a multicentric clinical trial including 226 patients receiving HMV (mean age 57.3+/-14.0 years). RESULTS: Forty-nine items passed the selection process and were allocated to seven subscales: Respiratory Complaints, Physical Functioning, Attendant Symptoms and Sleep, Social Relationships, Anxiety, Psychologic Well-Being, and Social Functioning. Cronbach's alpha was >0.7 in all subscales and >0.8 in four subscales indicating high internal consistency reliability. Construct validity was confirmed by factor analysis, indicating one summary scale that accounts for 59.8% of the variance. Concurrent validity was confirmed by correlating subscales of the SRI and the SF-36 (0.21<r<0.79). Item-scale correlations revealed a high item discriminant validity. In addition, different diagnostic groups could be discriminated by the SRI. Here, the overall best HRQL was measured in the following order: patients with kyphoscoliosis, miscellaneous disorders, neuromuscular diseases, post-tuberculosis, and chronic obstructive pulmonary disease (P<.05). CONCLUSION: The SRI is a new multidimensional instrument with high psychometric properties designed to measure specific HRQL in patients with SRI receiving HMV.

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