TY  - RPRT
TI  - Content validity, face validity and comprehensiveness of generic quality-of-life measures in adults and children with rare genetic conditions and their carers: a think aloud qualitative study.
AU  - Mackenzie Bourke
AU  - Xuemin Zhu
AU  - Tiffany Boughtwood
AU  - Clara Gaff
AU  - Amy Hunter
AU  - Brendan Mulhern
AU  - Tessa Peasgood
AU  - Clare Stuart
AU  - James Buchanan
AU  - Ilias Goranitis
PY  - 2026
DO  - 10.1007/s11136-026-04324-7
UR  - https://pubmed.ncbi.nlm.nih.gov/42365553/
ID  - 42365553
ER  -