@misc{indiciae17366a8eba39,
  title = {Content validity, face validity and comprehensiveness of generic quality-of-life measures in adults and children with rare genetic conditions and their carers: a think aloud qualitative study.},
  author = {Mackenzie Bourke and Xuemin Zhu and Tiffany Boughtwood and Clara Gaff and Amy Hunter and Brendan Mulhern and Tessa Peasgood and Clare Stuart and James Buchanan and Ilias Goranitis},
  year = {2026},
  doi = {10.1007/s11136-026-04324-7},
  url = {https://pubmed.ncbi.nlm.nih.gov/42365553/},
  note = {Source identifier: 42365553}
}