Search PubMed⌕ Search

Biomedical subjects

Peter Callery

Publications and source records attributed to Peter Callery.

At least 19 recordsLinked to original sources

Clinic consultations with children and parents on the dietary management of cystic fibrosis.

This paper examines clinic consultations on the dietary management of cystic fibrosis (CF) with particular consideration to the role of children. The role of parents is also examined to determine how their involvement impacts on the role of children during consultations. The data are drawn from interviews with 32 Irish school aged children with cystic fibrosis and their parents, and participant observations during clinic consultations with a sub-group of 21 children. Data were analysed concurrently with data collection using a method of constant comparison, which involved comparing and contrasting incidents in the data to develop themes. Theoretical sampling was used to further explore and develop emergent themes. Discourse analysis was applied to clinic conversations. Children were seen to have little active involvement during consultations, leaving them marginalised, as conversations were directed at parents primarily, whose accounts were privileged over those of children. A surveillance approach to consultations involving interrogative style questioning and generally closed conversations was seen to contribute to the marginalised position of children. In addition, dietary advice limited children's involvement because it was of little relevance to their understandings of being healthy and the dietary implications of these. The findings highlight a need to acknowledge children as active participants in their dietary care. Implications for developing a child-centred approach to dietary consultations are discussed, including implications for working with children towards improved health outcomes of managing CF diet.

Ambulatory Care Facilities↗

Measuring success.

Explore the source record for details and available documents.

Community Health Nursing↗

Parent or nurse? The experience of being the parent of a technology-dependent child.

AIMS: This paper reports a study exploring parents' experiences of caring for a child who is dependent on medical technology, and in particular of performing clinical procedures on their own children. BACKGROUND: A group of children with a continuing need for the support of medical technology have emerged in community settings as a result of medical advances and government policies. Caring for these children has a significant social and emotional impact on parents, because of their specialized and intensive care needs. Obtaining appropriate and coordinated home support services is problematic. METHODS: Grounded theory techniques were used, and in-depth interviews were conducted with the parents of 24 children. FINDINGS: Parents' accounts revealed that their constructions of parenting were shaped by the nature of their role in caring for their child and by the transformation of their homes by medical equipment and personnel. They described themselves as having a role that had both parenting and nursing dimensions. Parents managed this tension and defined their role and relationship to their child to be primarily one of parenting by differentiating parental care-giving and its underpinning knowledge from that of professionals, particularly nurses. CONCLUSIONS: Parenting a technology-dependent child alters the meaning of parenting. Professionals need to recognize that providing care has a substantial emotional dimension for parents, and that they need opportunities to discuss their feelings about caregiving and what it means for their parenting identity and their relationship with their child. A key professional nursing role will be giving emotional support and supporting parents' coping strategies. Parents' perceptions of nurses raise questions about whether nurses' caregiving is individualized to the needs of the child and family, and whether parental expertise is recognized.

Adolescent↗

Children's accounts of their preoperative information needs.

AIMS AND OBJECTIVES: To explore the information needs of children aged 7-11 years relating to planned admission for surgery. To identify the knowledge of a group of children prior to admission and their own identified information needs. BACKGROUND: There is widespread agreement that children should be given information prior to surgery but continuing debate about the most appropriate form and content of preadmission preparation. There is little research evidence about children's concerns, fears and misconceptions about hospitals and surgery. Previous investigations have examined the views of parents/carers and health care professionals rather than the direct reports of children themselves. This study was designed to explore whether children could identify their own information needs prior to admission for elective surgery. DESIGN: Qualitative. METHOD: Nine children aged 7-11 years were interviewed using the write and draw technique to ascertain their preadmission information needs. Data collection occurred several weeks prior to the child's first admission to hospital for planned surgery. RESULTS: Children reported that they had not received direct information from the hospital or from health professionals. They obtained information from a variety of sources including leaflets for parents, television and the experiences of relatives and friends. Some children knew very little about hospitals and their own planned operation. Children identified 61 questions about their forthcoming admissions, including questions about: getting information; procedures; anaesthesia; timing; hospital environment; family support; feelings/pain; their condition; and concerns. CONCLUSIONS: Children aged 7-11 years can identify their own information needs and so contribute to the development of preadmission education. RELEVANCE TO CLINICAL PRACTICE: Patients attending a children's hospital can have little information provided prior to admission. Information about hospital should be presented directly to children in the most accessible and flexible form.

Art↗

Parents' experiences of caring for their child following day case surgery: a diary study.

The development of children's health care over the last 15-20 years has resulted in an increased move towards ambulatory care, including day case surgery, which has implied benefits in reduced hospitalization and cost. The wider impact on the child and family is less clear. The study aimed for greater insight into the impact of day case surgery on the child and family from the parent's perspective. Using a qualitative approach and descriptive and inductive methods, the design focused on the parent's experiences of their child's surgery. Diaries were completed by 11 families over a 7-14-day period following their child's surgery. Findings demonstrated that there were significant issues for families in managing the care of their child with regard to the social impact for the parent and child, emotional issues for parent and child, and the need for formal and informal support systems.

Adaptation, Psychological↗