Biomedical subjects
M C Bax
Publications and source records attributed to M C Bax.
Prevention of cerebral palsy.
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Sexuality disability and abuse. Research into practice?
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Behaviour in mucopolysaccharide disorders.
This paper reports a study of the nature and prevalence of behaviour problems in 258 children with mucopolysaccharide disorders. Questionnaire data obtained through the post was supplemented by home visits to 42 families in the sample and by regular discussions with families at meetings of the Society for Mucopolysaccharide Diseases. High rates of behaviour problems were found, particularly in children with Sanfilippo's and Hunter's disease aged 5 to 9 years. These included destructiveness, restlessness, and aggressiveness. Sleep problems were common across subtypes with an overall prevalence of 66%. Parents reported that they received little or no support in the management of these difficult behaviours. It is concluded that behaviour problems are a primary feature of the mucopolysaccharide disorders and place a major strain on families. Services to help families cope with these problems are urgently needed.
A new clinic for young adults with spina bifida and/or hydrocephalus--age 16-25 years.
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You, your partner and continence: an introduction to sexuality, disability and continence.
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District handicap teams in England: 1983-8.
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District handicap teams in England 1983-8.
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Checking the health of school entrants.
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Health care of physically handicapped young adults.
Little is known about the health needs of physically handicapped young adults after they become too old for the paediatric service. To assess these needs 104 young people with physical handicaps were given a medical examination and interviewed. They had diverse physical handicaps, many of which were rare (41 subjects); 45 had cerebral palsy and 18 spina bifida. Mental handicap (42 subjects) and a need for special education (28) were also diagnosed. The state of health of all subjects was generally poor. Sixty one subjects had contractures of the lower joints and almost a quarter contractures of the upper joints; 26 had deformed feet. Consequently, many subjects (41) could not walk; only 13 could walk without difficulty. Urinary and bowel incontinence were prevalent (58 and 55 subjects, respectively) and with contractures and pressure sores resulted in skin problems (35 subjects). Kyphoscoliosis was present in 30 subjects, particularly those with spina bifida (10 out of 18), of whom one third had respiratory problems and almost half cardiac problems. Thirty one subjects had epilepsy. Many subjects (49) had difficulty communicating or some visual defect (27). Although over half the subjects had health problems that were severe enough to warrant intervention, less than a third were receiving any form of regular hospital care; regular contact with physiotherapists, speech therapists, and dentists was also poor. Moreover, the original diagnoses and prescriptions had not been reviewed regularly. Teams for handicapped adults should be set up in all district health authorities to provide a clinical and coordination service for all adults with physical and mental handicaps.
The health care of physically handicapped young adults.
It has been recognised for many years that the amount of health care received by physically handicapped young adults rapidly declines after they leave the paediatric services. However, little is known about their specific health needs at that stage of their lives, or how these needs may be best met by the statutory services. The results of this study indicate a considerable degree of unmet need and point to a failure by the Health Service to maintain a continuity of health care for young adults with physical handicaps. A policy is called for to set up multidisciplinary Handicapped Adult Teams, at District level, to provide a clinical service for all physically and multiply handicapped adults.
Contractures and their therapy.
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Sleep disturbance in the young child.
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Analysis of a developmental language delay.
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Developmental assessment is a necessity.
In this paper I shall discuss a typical developmental disorder, showing how its manifestations vary throughout childhood, and comment upon the basic criteria for an assessment service.