How families manage a pediatric hospitalization.
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Biomedical subjects
Publications and source records attributed to K A Knafl.
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The aims of this paper were to clarify the nature and purpose of qualitative research and to suggest specific guidelines for reporting the results of qualitative studies. Confusion about the purpose of qualitative research and the absence of a standardized format for reporting such research make it difficult to assess the validity of qualitative studies. Four general purposes of qualitative research were discussed: instrument development, illustration of results, description, and conceptualization. A framework for reporting qualitative research that provides a guide for assuring consistency across original study purpose, study design, and final report was presented and can be used for either evaluating or writing a report of qualitative research.
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In this study, parents describe siblings' adjustments to a brother's or sister's hospitalization. The families of children hospitalized for relatively usual, non-life-threatening reasons were investigated. The relationship between patterns of sibling participation and family structure and sibling response were explored. Sibling responses were studied through intensive interviews with parents. Interviews were conducted using semistructured interview guides and took place within 24 hours of the child's admission and again from 4 to 6 weeks after the child's discharge from the hospital. Families (N = 59) were divided into those in which siblings participated actively in adjusting to the hospitalization and those in which siblings were passive participants in the adjustment process. Sibling participation was discussed as a function of family structure. Parents reported few negative sibling responses to hospitalization. The quality of sibling response was related to the amount of change experienced.
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Explore the source record for details and available documents.
Explore the source record for details and available documents.
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Explore the source record for details and available documents.
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PURPOSE: To examine how parents respond to and manage the challenges of childhood chronic illness. DESIGN: Qualitative, comparative, secondary analysis. PARTICIPANTS: Fifty-eight families (55 mothers, 44 fathers) with a school-age child (6-15 years old) with a chronic illness. RESULTS: Three approaches to illness management were identified: strict adherence, flexible adherence, and selective adherence. These approaches varied in the extent to which parents developed and relied on target management behaviors that concurred with or deviated from the treatment plan prescribed by healthcare providers. CONCLUSIONS: The three management approaches contribute to understanding the processes associated with differing interactions between healthcare professionals and parents when a child has a chronic illness.
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This article examines the psychologic adjustment among 28 well siblings of children with chronic illness, ages 6 to 16, as measured by parents' rating on the Child Behavior Checklist. Results indicate that, as a group, well siblings do not experience a higher incidence of behavior and social competence problems than the normative sample. These data suggest that well siblings may not be uniformly at greater risk for maladjustment. Sibling adjustment may be selective and vary depending on specific child characteristics and family environment influences.
The purpose of this study was to describe how well siblings view potential stigma in childhood chronic illness. Results of interview of 27 siblings are discussed using three major categories: revealing of the chronic illness to others, responses to the ill child, and impact of the illness on daily living.