Nursing the mind. Easing life for the Alzheimer's patient.
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Biomedical subjects
Publications and source records attributed to H S Wilson.
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This qualitative, interpretive study generated a model to describe the course of Alzheimer's disease (AD) as experienced by family caregivers in interaction with an afflicted relative. Stages of experiencing AD from a family caregiver's perspective were identified. These included Stage 1: noticing; Stage 2: discounting and normalizing; Stage 3: suspecting; Stage 4: searching for explanations; Stage 5: recasting; Stage 6: taking it on; Stage 7: going through it; and Stage 8: turning it over. Since describing typical stages of Alzheimer's dementia by focusing on the patient's symptoms has generated controversial results, this study shifted the focus to the lived experience of family caregivers. It supports prior contentions that patterns and progression in patients themselves are variable; however, families can be offered knowledge about the disorder's course to ease their fears and their difficulties in interpreting interactions with their demented relatives. The study is based on "methods for discovering" theory. A purposeful sample of 20 caregivers was interviewed for at least 2 hours in their own homes. All caregivers held primary responsibility for home care for a demented relative and had consented to participate in the study.
An important step in the development of the American Nurses' Association (ANA) Task Force's Classification of Phenomena of Concern for Psychiatric/Mental Health Nursing is a plan for conducting field trials to determine interrater diagnostic reliability using the classification system. The ANA Task Force identified field testing as stage two in a three-stage process for completion of our work. In this article, we identify methodologic directions that will allow us to answer two important questions. First, what is the interrater reliability of the system of psychiatric nursing diagnoses when applied to clients by psychiatric/mental health nurse clinicians in their practice, and second, how do the clinicians who use this system view its usefulness for planning and evaluating nursing care?
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The analytic shceme of "limiting intrusion" was generated in this study, using research strategies that involved direct contact with subjects under natural living conditions. Data were collected in an experimental treatment community for diagnosed schizophrenics, where conventional psychiatric control structures are muted and denied. Approximately 200 hours of field observation, in-depth interviews with staff members, and documents related to the setting formed the data base. Qualitative comparative analysis is presented in detail to emphasize its relevance to theory building in nursing science.
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Thirty-three lesbians ranging in age from 18-68 participated as respondents in this qualitative, theory-generating study. Data were obtained through a written demographic questionnaire and in-depth taped interviews. Findings revealed a two-phase basic social process (BSP) identified as personal risking that is used by lesbians to secure their physical and/or psychological safety within the health care system. In the anticipatory phase, the risk of self-disclosure is calculated using both imaginative and cognitive strategies to determine a disclosure stance. In the interactional phase, scanning and monitoring enable the lesbian client to reevaluate the stance assumed. The data confirm that lesbians are uncomfortable in many health care situations and suggest provider responses to improve their comfort and the level of health care they receive.
The dailiness of nursing practice offers an important source of clinically relevant research problems. Qualitative field methods familiar to all nurses provide tools well suited to studies on nursing practice problems.
This paper is a synthesis of knowledge about Alzheimer's disease (AD) and AD family caregiving published over the last decade (approximately 1979-1990). While there has been an increase in the volume of scientific work in this area, methodological difficulties, unclear findings, and gaps, particularly with regard to inclusion of ethnic minority populations, persist. The current research priority on evaluating intervention programs represents a worthy direction, yet such a focus may be premature until basic knowledge builds on, extends, and transcends the foundation established in the past decade.
The constant comparative method was used to generate a grounded theory explicating the process of family caregiving for a relative with Alzheimer's dementia. Findings from 20 in-depth, face-to-face interviews conducted with a purposive sample of family caregivers in their homes revealed that much of the caregiving experience consists of coping with negative choices wherein all possible alternatives are undesirable. The three stages of Surviving on the Brink, (1) Taking it on, (2) Going through it, and (3) Turning it over, capture the variation in behavior. Continued validation of this process of coping and decision making offers promise for substantive theory development on which nursing intervention programs for easing caregiver burdens might be based.