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Biomedical subjects

G Geller

Publications and source records attributed to G Geller.

44 records · Page 3Linked to original sources
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Evaluation of nurses and genetic counselors as providers of education about breast cancer susceptibility testing.

PURPOSE/OBJECTIVES: To compare outcomes of pretest education about breast cancer susceptibility testing provided by nurses and genetic counselors. DESIGN: Two-group, post-test only evaluation of an educational intervention. SETTING: A tertiary care hospital. SAMPLE: 87 women who had a first-degree relative with premenopausal breast cancer; six specially-trained providers (four genetic counselors and two nurses). METHODS: Self-administered questionnaire completed immediately following education sessions. MAIN RESEARCH VARIABLES: Subjects' understanding of the limitations of testing, perceived autonomy in decision making, and satisfaction; partnership as perceived by subjects and providers. FINDINGS: After the sessions, 62% of subjects understood the limitations of testing, 98% reported a high degree of perceived autonomy in decision making, 81% were highly satisfied with the session, and 91% reported forming a partnership with their providers. Lower perceived partnership reported by genetic counselors was the only significant difference by provider type. CONCLUSIONS: With training and supervision, nurses and genetic counselors can be equally effective in providing education about genetic testing for breast cancer susceptibility in research settings. Additional research is needed to determine the outcomes of education provided in clinical settings. IMPLICATIONS FOR NURSING PRACTICE: As the demand for education about genetic testing for cancer susceptibility increases, nurses need to be educated and trained to provide this service.

Adult↗
PubMedDate not supplied

Cystic fibrosis and the pediatric caregiver: benefits and burdens of genetic technology.

Pediatric providers will be faced with questions about genetic disease more and more frequently as new technologies are developed for their diagnosis and treatment. With early genetic testing, improved treatments, and the potential for gene therapy, genetic diseases like cystic fibrosis, once thought to be fatal, are now considered chronic. Therefore, many such conditions will be seen not only in the PICU, but in ambulatory pediatric and adolescent settings. The life expectancy and psychosocial adjustment of children with chronic genetic diseases will depend not only on the severity of their disease but on the ongoing care and attention they receive. Because optimal care will require an awareness of the complex and variable moral and social issues raised at each stage of life, pediatric caregivers should be sensitized to issues in counseling families with genetic disease.

Cost of Illness↗
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"Decoding" informed consent. Insights from women regarding breast cancer susceptibility testing.

Cancer susceptibility testing is likely to become routine in medical practice, despite many limitations and unanswered questions. These uncertainties greatly complicate the process of informed consent, creating an excellent opportunity to reconsider exactly how it should be conducted. Research with women's reactions to the availability of genetic susceptibility testing for breast cancer dramatically underscores that informed consent ought to be highly individualized, taking care to discern what patients believe about the disease and its causes and what role they want their physician to play.

Attitude to Health↗