The paediatric clinic: disability and the family.
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Biomedical subjects
Publications and source records attributed to D Scrutton.
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The aim of the paper is to propose guidelines for good practice in disclosing the diagnosis of cerebral palsy to parents. The guidelines draw on an interview study with parents of 107 children, average age 24 months, in the South East Thames region. In addition case notes were examined, and mothers completed questionnaires to measure current levels of depression and coping strategies. Dissatisfaction with how the diagnosis had been disclosed was greater where children had been premature and/or low birth weight, where they developed more severe degrees of physical disability, and where the diagnosis had been made later. Dissatisfaction was related to greater degrees of later self reported depression. The guidelines take account of the findings, in particular the need for early close liaison between neonatology and community paediatric services. Suggestions are made for how to ensure implementation and monitoring of good practice.
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This article attempts to touch upon several different aspects of developmental deformity. It is intended to show that the position in which children are placed and the time these postures are maintained are important in preventing fixed and structural deformity. These are considered to be the prime causes of deformity. Whilst surgery is often necessary, it should be seen as complementary to an early postural regime, one part of which is the position in which a child sits.
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